E-Bibliothek Gesundheitskompetenz des DNGK
Fachliteratur Palliative Versorgung
Hier finden Sie die in der Datenbank des DNGK eingestellten Fachartikel zum Thema.
6298796
99FDCW4Z
1
chicago-fullnote-bibliography
50
creator
asc
title
11170
https://gesundheitskompetenz.online/wp-content/plugins/zotpress/
%7B%22status%22%3A%22success%22%2C%22updateneeded%22%3Afalse%2C%22instance%22%3Afalse%2C%22meta%22%3A%7B%22request_last%22%3A50%2C%22request_next%22%3A50%2C%22used_cache%22%3Atrue%7D%2C%22data%22%3A%5B%7B%22key%22%3A%22UU9LKF9K%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Afshar%20et%20al.%22%2C%22parsedDate%22%3A%222018-02-17%22%2C%22numChildren%22%3A1%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BAfshar%2C%20Kambiz%2C%20Angelika%20Feichtner%2C%20Kirsty%20Boyd%2C%20Scott%20Murray%2C%20Saskia%20J%26%23xFC%3Bnger%2C%20Birgitt%20Wiese%2C%20Nils%20Schneider%2C%20and%20Gabriele%20M%26%23xFC%3Bller-Mundt.%20%26%23x201C%3BSystematic%20Development%20and%20Adjustment%20of%20the%20German%20Version%20of%20the%20Supportive%20and%20Palliative%20Care%20Indicators%20Tool%20%28SPICT-DE%29.%26%23x201D%3B%20%26lt%3Bi%26gt%3BBMC%20Palliative%20Care%26lt%3B%5C%2Fi%26gt%3B%2017%2C%20no.%201%20%28February%2017%2C%202018%29%3A%2027.%20%26lt%3Ba%20class%3D%26%23039%3Bzp-DOIURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1186%5C%2Fs12904-018-0283-7%26%23039%3B%26gt%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1186%5C%2Fs12904-018-0283-7%26lt%3B%5C%2Fa%26gt%3B.%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Systematic%20development%20and%20adjustment%20of%20the%20German%20version%20of%20the%20Supportive%20and%20Palliative%20Care%20Indicators%20Tool%20%28SPICT-DE%29%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Kambiz%22%2C%22lastName%22%3A%22Afshar%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Angelika%22%2C%22lastName%22%3A%22Feichtner%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Kirsty%22%2C%22lastName%22%3A%22Boyd%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Scott%22%2C%22lastName%22%3A%22Murray%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Saskia%22%2C%22lastName%22%3A%22J%5Cu00fcnger%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Birgitt%22%2C%22lastName%22%3A%22Wiese%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Nils%22%2C%22lastName%22%3A%22Schneider%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Gabriele%22%2C%22lastName%22%3A%22M%5Cu00fcller-Mundt%22%7D%5D%2C%22abstractNote%22%3A%22BACKGROUND%3A%20The%20Supportive%20and%20Palliative%20Care%20Indicators%20tool%20%28SPICT%29%20supports%20the%20identification%20of%20patients%20with%20potential%20palliative%20care%20%28PC%29%20needs.%20An%20Austrian-German%20expert%20group%20translated%20SPICT%20into%20German%20%28SPICT-DE%29%20in%202014.%20The%20aim%20of%20this%20study%20was%20the%20systematic%20development%2C%20refinement%2C%20and%20testing%20of%20SPICT-DE%20for%20its%20application%20in%20primary%20care%20%28general%20practice%29.%5CnMETHODS%3A%20SPICT-DE%20was%20developed%20by%20a%20multiprofessional%20research%20team%20according%20to%20the%20TRAPD%20model%3A%20translation%2C%20review%2C%20adjudication%2C%20pretesting%20and%20documentation.%20In%20a%20pretest%2C%20five%20general%20practitioners%20%28GPs%29%20rated%20four%20case%20vignettes%20of%20patients%20with%20different%20PC%20needs.%20GPs%20were%20asked%20to%20assess%20whether%20each%20patient%20might%20benefit%20from%20PC%20or%20not%20%28I%29%20based%20on%20their%20subjective%20appraisal%20%28%26quot%3Busual%20practice%26quot%3B%29%20and%20%28II%29%20by%20using%20SPICT-DE.%20After%20further%20refinement%2C%20two%20focus%20groups%20with%2028%20GPs%20%2868%25%20with%20a%20further%20qualification%20in%20PC%29%20were%20conducted%20to%20test%20SPICT-DE.%20Again%2C%20participants%20rated%20two%20selected%20case%20vignettes%20%28I%29%20based%20on%20their%20subjective%20appraisal%20and%20%28II%29%20by%20using%20SPICT-DE.%20Afterwards%2C%20participants%20reflected%20the%20suitability%20of%20SPICT-DE%20for%20use%20in%20their%20daily%20practice%20routine%20within%20the%20German%20primary%20care%20system.%20Quantitative%20data%20were%20analysed%20with%20descriptive%20statistics%20and%20non-parametric%20tests%20for%20small%20samples.%20Qualitative%20data%20were%20analysed%20by%20conventional%20content%20analysis.%20Focus%20group%20discussion%20was%20analysed%20combining%20formal%20and%20conventional%20content%20analysis.%5CnRESULTS%3A%20Compared%20to%20the%20spontaneous%20rating%20of%20the%20case%20vignettes%20based%20on%20subjective%20appraisal%2C%20participants%20in%20both%20the%20pretest%20and%20the%20focus%20groups%20considered%20PC%20more%20often%20as%20being%20beneficial%20for%20the%20patients%20described%20in%20the%20case%20vignettes%20when%20using%20SPICT-DE.%20Participants%20in%20the%20focus%20groups%20agreed%20that%20SPICT-DE%20includes%20all%20relevant%20indicators%20necessary%20for%20an%20adequate%20clinical%20identification%20of%20patients%20who%20might%20benefit%20from%20PC.%5CnCONCLUSIONS%3A%20SPICT-DE%20supports%20the%20identification%20of%20patients%20who%20might%20benefit%20from%20PC%20and%20seems%20suitable%20for%20routine%20application%20in%20general%20practice%20in%20Germany.%20The%20systematic%20development%2C%20refinement%2C%20and%20testing%20of%20SPICT-DE%20in%20this%20study%20was%20successfully%20completed%20by%20using%20a%20multiprofessional%20and%20participatory%20approach.%22%2C%22date%22%3A%22Feb%2017%2C%202018%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1186%5C%2Fs12904-018-0283-7%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%221472-684X%22%2C%22language%22%3A%22eng%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%2299FDCW4Z%22%2C%22I6PUATQS%22%2C%22IE7JTZ2W%22%2C%22MY43R6KV%22%2C%22P9CVNWVH%22%2C%22X7PUUBWP%22%5D%2C%22dateModified%22%3A%222021-03-23T15%3A56%3A29Z%22%7D%7D%2C%7B%22key%22%3A%22SNBEGVPT%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Behmann%20et%20al.%22%2C%22parsedDate%22%3A%222012-08-01%22%2C%22numChildren%22%3A0%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BBehmann%2C%20Mareike%2C%20Saskia%20J%5Cu00fcnger%2C%20Lukas%20Radbruch%2C%20and%20Nils%20Schneider.%20%26quot%3B%26lt%3Ba%20class%3D%26%23039%3Bzp-ItemURL%26%23039%3B%20href%3D%26%23039%3Bhttp%3A%5C%2F%5C%2Fwww.sciencedirect.com%5C%2Fscience%5C%2Farticle%5C%2Fpii%5C%2FS0168851012000796%26%23039%3B%26gt%3BPublic%20health%20actions%20to%20improve%20palliative%20care%20in%20Germany%3A%20Results%20of%20a%20three-round%20Delphi%20study%26lt%3B%5C%2Fa%26gt%3B.%26quot%3B%20%26lt%3Bi%26gt%3BHealth%20Policy%26lt%3B%5C%2Fi%26gt%3B%20106%2C%20no.%203%20%28August%201%2C%202012%29%3A%20303%5Cu201312.%20https%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1016%5C%2Fj.healthpol.2012.03.014.%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Public%20health%20actions%20to%20improve%20palliative%20care%20in%20Germany%3A%20Results%20of%20a%20three-round%20Delphi%20study%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Mareike%22%2C%22lastName%22%3A%22Behmann%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Saskia%22%2C%22lastName%22%3A%22J%5Cu00fcnger%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Lukas%22%2C%22lastName%22%3A%22Radbruch%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Nils%22%2C%22lastName%22%3A%22Schneider%22%7D%5D%2C%22abstractNote%22%3A%22Background%5CnIn%20previous%20studies%2C%20key%20targets%20for%20public%20health%20initiatives%20to%20improve%20palliative%20care%20in%20Germany%20were%20defined.%20The%20aim%20of%20this%20study%20was%20the%20identification%20and%20prioritisation%20of%20actions%20to%20achieve%20these%20targets.%5CnMethods%5CnA%20three-round%20Delphi%20study%20with%20107%20stakeholders%20acting%20on%20the%20meso%20and%20macrolevel%20of%20the%20healthcare%20system%20was%20undertaken.%20First%20round%3A%20proposing%20actions%20for%20each%20of%20the%20key%20targets%3B%20second%20round%3A%20assessment%20of%20the%20actions%20regarding%20their%20relevance%3B%20third%20round%3A%20ranking%20of%20the%20actions.%5CnResults%5Cn37%20actions%20were%20generated%20%28first%20round%29%20of%20which%2014%20actions%20were%20rated%20as%20relevant%20%28second%20round%29.%20In%20the%20third%20round%2C%20the%20action%20ranked%20highest%20was%20%5Cu201cclose%20collaboration%20between%20specialist%20palliative%20care%20services%2C%20general%20practitioners%20and%20community%20nursing%20services%5Cu201d%2C%20followed%20by%20%5Cu201cImplementing%20specialist%20palliative%20care%20in%20the%20community%20consequently%5Cu201d%20and%20%5Cu201cStrengthening%20generalist%20palliative%20care%20through%20training%20and%20education%20of%20general%20practitioners%20and%20nursing%20services%5Cu201d.%5CnConclusions%5CnThe%20range%20and%20the%20ranking%20of%20the%20actions%20provide%20an%20empirical%20basis%20to%20improve%20palliative%20care%20in%20Germany%20on%20different%20levels%20of%20policy%2C%20education%20and%20clinical%20practice.%20A%20focus%20should%20be%20on%20strengthening%20the%20collaboration%20between%20primary%20health%20care%20providers%20and%20specialist%20palliative%20care%20services.%22%2C%22date%22%3A%22August%201%2C%202012%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1016%5C%2Fj.healthpol.2012.03.014%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22http%3A%5C%2F%5C%2Fwww.sciencedirect.com%5C%2Fscience%5C%2Farticle%5C%2Fpii%5C%2FS0168851012000796%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%220168-8510%22%2C%22language%22%3A%22en%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%2299FDCW4Z%22%2C%22I6PUATQS%22%2C%22JL4N5KDE%22%2C%22P9CVNWVH%22%2C%22X7PUUBWP%22%5D%2C%22dateModified%22%3A%222024-05-17T08%3A25%3A33Z%22%7D%7D%2C%7B%22key%22%3A%22SVEXWF58%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Behmann%20et%20al.%22%2C%22parsedDate%22%3A%222011-05-01%22%2C%22numChildren%22%3A0%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BBehmann%2C%20M.%2C%20S.%20J%5Cu00fcnger%2C%20L.%20Radbruch%2C%20and%20N.%20Schneider.%20%26quot%3B%26lt%3Ba%20class%3D%26%23039%3Bzp-ItemURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fwww.researchgate.net%5C%2Fpublication%5C%2F51103187_Key_measures_for_developing_palliative_care_from_a_public_health_perspective_Initial_results_from_a_three-round_Delphi_study%26%23039%3B%26gt%3BKernma%5Cu00dfnahmen%20zur%20Entwicklung%20der%20Palliativversorgung%20aus%20Public-Health-Perspektive%26lt%3B%5C%2Fa%26gt%3B.%26quot%3B%20%26lt%3Bi%26gt%3BBundesgesundheitsblatt%20-%20Gesundheitsforschung%20-%20Gesundheitsschutz%26lt%3B%5C%2Fi%26gt%3B%2054%2C%20no.%205%20%28May%201%2C%202011%29%3A%20642%5Cu201348.%20https%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1007%5C%2Fs00103-011-1267-4.%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Kernma%5Cu00dfnahmen%20zur%20Entwicklung%20der%20Palliativversorgung%20aus%20Public-Health-Perspektive%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22M.%22%2C%22lastName%22%3A%22Behmann%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22S.%22%2C%22lastName%22%3A%22J%5Cu00fcnger%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22L.%22%2C%22lastName%22%3A%22Radbruch%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22N.%22%2C%22lastName%22%3A%22Schneider%22%7D%5D%2C%22abstractNote%22%3A%22In%20einer%20fr%5Cu00fcheren%20Arbeit%20wurden%20sechs%20Kernziele%20f%5Cu00fcr%20Public-Health-Initiativen%20zur%20Verbesserung%20der%20Palliativversorgung%20in%20Deutschland%20definiert.%20Der%20vorliegende%20Beitrag%20stellt%20die%20ersten%20Ergebnisse%20einer%20Folgestudie%20vor%2C%20mit%20der%20konkrete%20Ma%5Cu00dfnahmen%20zur%20Realisierung%20der%20Ziele%20entwickelt%20werden%20sollen.%20Durchgef%5Cu00fchrt%20wurde%20eine%20dreistufige%20Delphi-Befragung%20von%20Akteuren%20auf%20der%20Meso-%20und%20Makroebene%20des%20Gesundheitssystems%20%28zum%20Beispiel%20Repr%5Cu00e4sentanten%20von%20Patientenorganisationen%2C%20Krankenkassen%2C%20Politik%2C%20Fachverb%5Cu00e4nden%20der%20Medizin%20und%20Pflege%29.%20In%20der%20ersten%20Delphi-Runde%20schlugen%20die%20Teilnehmer%20in%20einer%20schriftlichen%20Befragung%20Ma%5Cu00dfnahmen%20in%20Freitextform%20vor%2C%20um%20die%20Ziele%20zu%20erreichen.%20Die%20Antworten%20wurden%20qualitativ-deskriptiv%20ausgewertet.%20107%5Cu00a0Personen%20nahmen%20an%20der%20ersten%20Delphi-Runde%20teil.%20Es%20konnten%2037%5Cu00a0Ma%5Cu00dfnahmen%20formuliert%20werden%2C%20die%20sich%20sechs%20Themenbereichen%20zuordnen%20lassen%3A%20Angeh%5Cu00f6rige%2C%20Qualifizierung%20und%20Bef%5Cu00e4higung%2C%20Qualit%5Cu00e4t%2C%20%5Cu00d6ffentlichkeitsarbeit%2C%20Versorgungsangebote%20und%20Qualifikation.%20Das%20Spektrum%20unterschiedlicher%20Ma%5Cu00dfnahmen%20auf%20der%20Ebene%20von%20Politik%2C%20Versorgung%20und%20Qualifizierung%20bietet%20eine%20fundierte%20Grundlage%20f%5Cu00fcr%20zielgerichtete%20Public-Health-Initiativen%20zur%20Verbesserung%20der%20Palliativversorgung.%20Die%20geplante%20Priorisierung%20der%20Ma%5Cu00dfnahmen%20in%20der%20zweiten%20und%20dritten%20Delphi-Runde%20wird%20die%20empirische%20Basis%20f%5Cu00fcr%20Entscheidungsprozesse%20unterst%5Cu00fctzen.%22%2C%22date%22%3A%222011-05-01%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1007%5C%2Fs00103-011-1267-4%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22https%3A%5C%2F%5C%2Fwww.researchgate.net%5C%2Fpublication%5C%2F51103187_Key_measures_for_developing_palliative_care_from_a_public_health_perspective_Initial_results_from_a_three-round_Delphi_study%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%221437-1588%22%2C%22language%22%3A%22de%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%226DCTQ3Z4%22%2C%2299FDCW4Z%22%2C%22I6PUATQS%22%2C%22IE7JTZ2W%22%2C%22P9CVNWVH%22%2C%22SPWXRLZV%22%2C%22WK7W2JLX%22%2C%22X7PUUBWP%22%5D%2C%22dateModified%22%3A%222024-05-26T15%3A49%3A38Z%22%7D%7D%2C%7B%22key%22%3A%2296TT46I3%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Breuing%20et%20al.%22%2C%22parsedDate%22%3A%222022-04-19%22%2C%22numChildren%22%3A1%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BBreuing%2C%20Jessica%2C%20Nadja%20K%26%23xF6%3Bnsgen%2C%20Katharina%20Doni%2C%20Annika%20Lena%20Neuhaus%2C%20and%20Dawid%20Pieper.%20%26%23x201C%3BInformation%20Needs%20of%20Patients%20Undergoing%20Bariatric%20Surgery%20in%20Germany%3A%20A%20Qualitative%20Study.%26%23x201D%3B%20%26lt%3Bi%26gt%3BBMC%20Health%20Services%20Research%26lt%3B%5C%2Fi%26gt%3B%2022%2C%20no.%201%20%28April%2019%2C%202022%29%3A%20515.%20%26lt%3Ba%20class%3D%26%23039%3Bzp-DOIURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1186%5C%2Fs12913-022-07950-2%26%23039%3B%26gt%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1186%5C%2Fs12913-022-07950-2%26lt%3B%5C%2Fa%26gt%3B.%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Information%20needs%20of%20patients%20undergoing%20bariatric%20surgery%20in%20Germany%3A%20a%20qualitative%20study%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Jessica%22%2C%22lastName%22%3A%22Breuing%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Nadja%22%2C%22lastName%22%3A%22K%5Cu00f6nsgen%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Katharina%22%2C%22lastName%22%3A%22Doni%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Annika%20Lena%22%2C%22lastName%22%3A%22Neuhaus%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Dawid%22%2C%22lastName%22%3A%22Pieper%22%7D%5D%2C%22abstractNote%22%3A%22BACKGROUND%3A%20Obesity%20is%20a%20worldwide%20problem%20with%20different%20treatment%20options.%20Bariatric%20surgery%20is%20an%20effective%20treatment%20for%20severe%20obesity%3B%20however%2C%20it%20leads%20to%20drastic%20changes%20%28e.g.%2C%20changes%20in%20everyday%20life%20and%20eating%20behavior%29%20for%20patients%2C%20which%20may%20lead%20to%20information%20needs.%20Our%20aim%20was%20to%20identify%20the%20information%20needs%20of%20patients%20undergoing%20bariatric%20surgery%20and%20to%20explore%20the%20information%20provision%20within%20the%20healthcare%20process%20of%20bariatric%20surgery%20in%20Germany.%5CnMETHODS%3A%20We%20conducted%20a%20qualitative%20study%20%28n%5Cu2009%3D%5Cu200914%20single%2C%20semi-structured%20telephone%20interviews%29%20between%20April%202018%20and%20April%202019.%20The%20interview%20guide%20was%20designed%20prior%20to%20the%20interviews%20and%20consisted%20of%20four%20main%20sections%20%28demographic%20information%2C%20pre-%5C%2Fpostoperative%20healthcare%20provision%2C%20information%20needs%29.%20The%20interviews%20were%20transcribed%20verbatim%20and%20analyzed%20using%20qualitative%20content%20analysis%20with%20MAXQDA%20software.%5CnRESULTS%3A%20There%20were%20unmet%20information%20needs%20with%20two%20factors%20%28time%3A%20pre%5C%2Fpostoperative%20and%20categories%20of%20information%3A%20general%5C%2Fspecific%29%20to%20be%20considered.%20Due%20to%20the%20patients%26%23039%3B%20description%20of%20information%2C%20we%20categorized%20information%20into%20general%20%28different%20surgical%20procedures%2C%20general%20nutritional%20information%29%20and%20specific%20%28occurring%20simultaneously%20with%20a%20problem%29%20information.%20Most%20patients%20felt%20well%20informed%20concerning%20general%20information.%20However%2C%20it%20was%20pointed%20out%20that%20it%20was%20not%20possible%20to%20provide%20complete%20information%20preoperatively%2C%20as%20the%20need%20for%20information%20only%20arises%20when%20there%20are%20postoperative%20%28specific%29%20problems.%20In%20addition%2C%20there%20seems%20to%20be%20a%20high%20demand%20for%20specific%20postoperative%20information%20regarding%20nutrition%20and%20nutrition-related%20problems.%20However%2C%20patients%20stated%20that%20postoperative%20nutritional%20counseling%20is%20not%20reimbursed%20by%20health%20insurance%20funds.%20The%20information%20conveyed%20in%20support%20groups%20and%20the%20exchange%20of%20experiences%20are%20highly%20valued%20by%20patients.%20However%2C%20some%20patients%20describe%20the%20information%20provided%20within%20the%20support%20groups%20as%20unfiltered%2C%20frightening%20or%20exaggerated.%5CnCONCLUSION%3A%20Overall%2C%20there%20were%20unmet%20information%20needs.%20Reimbursement%20by%20health%20insurance%20funds%20could%20increase%20the%20use%20of%20postoperative%20nutritional%20counseling%20and%20thus%20serve%20existing%20information%20needs.%20Support%20groups%20enable%20an%20exchange%20of%20experiences%20and%20therefore%20offer%20low-barrier%20access%20to%20information.%20Cooperation%20between%20support%20groups%20and%20healthcare%20professionals%20in%20information%20provision%20could%20be%20an%20approach%20to%20improving%20existing%20information%20needs%20or%20to%20avoiding%20the%20development%20of%20information%20gaps.%20Furthermore%2C%20the%20development%20and%20implementation%20of%20a%20digital%20solution%20for%20%28postoperative%29%20information%20dissemination%20could%20be%20helpful.%22%2C%22date%22%3A%222022-04-19%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1186%5C%2Fs12913-022-07950-2%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%221472-6963%22%2C%22language%22%3A%22eng%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%2272HALNLA%22%2C%2299FDCW4Z%22%2C%22AQHM6PNY%22%2C%22LIQP8YA3%22%2C%22P9CVNWVH%22%2C%22SPWXRLZV%22%2C%22WK7W2JLX%22%2C%22X7PUUBWP%22%5D%2C%22dateModified%22%3A%222024-05-26T15%3A49%3A49Z%22%7D%7D%2C%7B%22key%22%3A%22N7QRB4K6%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Dust%20et%20al.%22%2C%22parsedDate%22%3A%222022-11-28%22%2C%22numChildren%22%3A1%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BDust%2C%20Gloria%2C%20Nicolas%20Schippel%2C%20Stephanie%20Stock%2C%20Julia%20Strupp%2C%20Raymond%20Voltz%2C%20Christian%20Rietz%2C%20and%20CoRe-Net%20Co-applicants.%20%26%23x201C%3BQuality%20of%20Care%20in%20the%20Last%20Year%20of%20Life%3A%20Adaptation%20and%20Validation%20of%20the%20German%20%26%23x2018%3BViews%20of%20Informal%20Carers%26%23x2019%3B%20Evaluation%20of%20Services%20-%20Last%20Year%20of%20Life%20-%20Cologne.%26%23x2019%3B%26%23x201D%3B%20%26lt%3Bi%26gt%3BBMC%20Health%20Services%20Research%26lt%3B%5C%2Fi%26gt%3B%2022%2C%20no.%201%20%28November%2028%2C%202022%29%3A%201433.%20%26lt%3Ba%20class%3D%26%23039%3Bzp-DOIURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1186%5C%2Fs12913-022-08700-0%26%23039%3B%26gt%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1186%5C%2Fs12913-022-08700-0%26lt%3B%5C%2Fa%26gt%3B.%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Quality%20of%20care%20in%20the%20last%20year%20of%20life%3A%20adaptation%20and%20validation%20of%20the%20German%20%5C%22Views%20of%20Informal%20Carers%27%20Evaluation%20of%20Services%20-%20Last%20Year%20of%20Life%20-%20Cologne%5C%22%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Gloria%22%2C%22lastName%22%3A%22Dust%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Nicolas%22%2C%22lastName%22%3A%22Schippel%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Stephanie%22%2C%22lastName%22%3A%22Stock%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Julia%22%2C%22lastName%22%3A%22Strupp%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Raymond%22%2C%22lastName%22%3A%22Voltz%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Christian%22%2C%22lastName%22%3A%22Rietz%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22name%22%3A%22CoRe-Net%20Co-applicants%22%7D%5D%2C%22abstractNote%22%3A%22BACKGROUND%3A%20To%20inform%20quality%20improvement%20and%20strengthen%20services%20provided%20in%20the%20last%20year%20of%20life%2C%20measuring%20quality%20of%20care%20is%20essential.%20For%20Germany%2C%20data%20on%20care%20experiences%20in%20the%20last%20year%20of%20life%20that%20go%20beyond%20diagnoses%20and%20care%20settings%20are%20still%20rare.%20The%20aim%20of%20this%20study%20was%20to%20develop%20and%20validate%20a%20German%20version%20of%20the%20%26%23039%3BViews%20of%20Informal%20Carers%26%23039%3B%20Evaluation%20of%20Services%20-%20Short%20Form%20%28VOICES-SF%29%26%23039%3B%20suitable%20to%20assess%20the%20quality%20of%20care%20and%20services%20received%20across%20settings%20and%20healthcare%20providers%20in%20the%20German%20setting%20in%20the%20last%20year%20of%20life%20%28VOICES-LYOL-Cologne%29.%5CnMETHODS%3A%20VOICES-SF%20was%20adapted%20and%20translated%20following%20the%20%26%23039%3BTRAPD%26%23039%3B%20team%20approach.%20Data%20collected%20in%20a%20retrospective%20cross-sectional%20survey%20with%20bereaved%20relatives%20in%20the%20region%20of%20Cologne%2C%20Germany%20were%20used%20to%20assess%20validity%20and%20reliability.%5CnRESULTS%3A%20Data%20from%20351%20bereaved%20relatives%20of%20adult%20decedents%20were%20analysed.%20The%20VOICES-LYOL-Cologne%20demonstrated%20construct%20validity%20in%20performing%20according%20to%20expected%20patterns%2C%20i.e.%20correlation%20of%20scores%20to%20care%20experiences%20and%20significant%20variability%20based%20on%20care%20settings.%20It%20further%20correlated%20with%20the%20PACIC-S9%20Proxy%2C%20indicating%20good%20criterion%20validity.%20The%20newly%20added%20scale%20%26quot%3Bsubjective%20experiences%20of%20process%20and%20outcome%20of%20care%20in%20the%20last%20year%20of%20life%26quot%3B%20showed%20good%20internal%20consistency%20for%20each%20given%20care%20setting%2C%20except%20for%20the%20homecare%20setting.%20Test-retest%20analyses%20revealed%20no%20significant%20differences%20in%20satisfaction%20ratings%20according%20to%20the%20length%20of%20time%20since%20the%20patient%26%23039%3Bs%20death.%20Overall%2C%20our%20data%20demonstrated%20the%20feasibility%20of%20collecting%20patient%20care%20experiences%20reported%20by%20proxy-respondents%20across%20multiple%20care%20settings.%5CnCONCLUSION%3A%20VOICES-LYOL-Cologne%20is%20the%20first%20German%20instrument%20to%20analyse%20care%20experiences%20in%20the%20last%20year%20of%20life%20in%20a%20comprehensive%20manner%20and%20encourages%20further%20research%20in%20German-speaking%20countries.%20This%20instrument%20enables%20the%20comparison%20of%20quality%20of%20care%20between%20settings%20and%20may%20be%20used%20to%20inform%20local%20and%20national%20quality%20improvement%20activities.%5CnTRIAL%20REGISTRATION%3A%20This%20study%20was%20registered%20in%20the%20German%20Clinical%20Trials%20Register%20%28DRKS00011925%3B%20Date%20of%20registration%3A%2013%5C%2F06%5C%2F2017%29.%22%2C%22date%22%3A%222022-11-28%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1186%5C%2Fs12913-022-08700-0%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%221472-6963%22%2C%22language%22%3A%22eng%22%2C%22collections%22%3A%5B%223ASQKG6E%22%2C%2246NNKHWR%22%2C%2299FDCW4Z%22%2C%22NPCAGTXX%22%2C%22P9CVNWVH%22%2C%22X7PUUBWP%22%5D%2C%22dateModified%22%3A%222024-03-11T12%3A21%3A54Z%22%7D%7D%2C%7B%22key%22%3A%22E6CGP56A%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Ehmann%20et%20al.%22%2C%22parsedDate%22%3A%222013%22%2C%22numChildren%22%3A1%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BEhmann%2C%20Michael%2C%20Martin%20H%26%23xE4%3Brter%2C%20Ralf%20Rambach%2C%20and%20Eva%20Winkler.%20%26%23x201C%3BOnkologische%20Therapien%20-%20was%20sind%20patientenrelevante%20Endpunkte%3F%26%23x201D%3B%20%26lt%3Bi%26gt%3BOnkologie%26lt%3B%5C%2Fi%26gt%3B%2036%20Suppl%206%20%282013%29%3A%205%26%23x2013%3B8.%20%26lt%3Ba%20class%3D%26%23039%3Bzp-DOIURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1159%5C%2F000353716%26%23039%3B%26gt%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1159%5C%2F000353716%26lt%3B%5C%2Fa%26gt%3B.%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Onkologische%20Therapien%20-%20was%20sind%20patientenrelevante%20Endpunkte%3F%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Michael%22%2C%22lastName%22%3A%22Ehmann%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Martin%22%2C%22lastName%22%3A%22H%5Cu00e4rter%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Ralf%22%2C%22lastName%22%3A%22Rambach%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Eva%22%2C%22lastName%22%3A%22Winkler%22%7D%5D%2C%22abstractNote%22%3A%22%22%2C%22date%22%3A%222013%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1159%5C%2F000353716%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%221423-0240%22%2C%22language%22%3A%22ger%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%2299FDCW4Z%22%2C%22SPWXRLZV%22%2C%22W637CI9M%22%5D%2C%22dateModified%22%3A%222024-05-15T14%3A15%3A18Z%22%7D%7D%2C%7B%22key%22%3A%22CXS9DQVH%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Ernstmann%20et%20al.%22%2C%22parsedDate%22%3A%222019-04-13%22%2C%22numChildren%22%3A1%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BErnstmann%2C%20Nicole%2C%20Anna%20Enders%2C%20Sarah%20Halbach%2C%20Hannah%20Nakata%2C%20Christina%20Kehrer%2C%20Holger%20Pfaff%2C%20and%20Franziska%20Geiser.%20%26%23x201C%3BPsycho-Oncology%20Care%20in%20Breast%20Cancer%20Centres%3A%20A%20Nationwide%20Survey.%26%23x201D%3B%20%26lt%3Bi%26gt%3BBMJ%20Supportive%20%26amp%3B%20Palliative%20Care%26lt%3B%5C%2Fi%26gt%3B%2C%20April%2013%2C%202019.%20%26lt%3Ba%20class%3D%26%23039%3Bzp-DOIURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1136%5C%2Fbmjspcare-2018-001704%26%23039%3B%26gt%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1136%5C%2Fbmjspcare-2018-001704%26lt%3B%5C%2Fa%26gt%3B.%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Psycho-oncology%20care%20in%20breast%20cancer%20centres%3A%20a%20nationwide%20survey%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Nicole%22%2C%22lastName%22%3A%22Ernstmann%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Anna%22%2C%22lastName%22%3A%22Enders%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Sarah%22%2C%22lastName%22%3A%22Halbach%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Hannah%22%2C%22lastName%22%3A%22Nakata%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Christina%22%2C%22lastName%22%3A%22Kehrer%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Holger%22%2C%22lastName%22%3A%22Pfaff%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Franziska%22%2C%22lastName%22%3A%22Geiser%22%7D%5D%2C%22abstractNote%22%3A%22OBJECTIVE%3A%20To%20describe%20psycho-oncological%20care%20structures%20and%20processes%20in%20German%20breast%20cancer%20centres%20from%20the%20perspective%20of%20the%20centre%20administration.%5CnMETHODS%3A%20The%20findings%20are%20based%20on%20a%20postal%20survey%20of%20a%20representative%20random%20sample%20of%20surgical%20sites%20of%20certified%20breast%20cancer%20centres%20in%20Germany.%20Data%20were%20collected%20in%202013%20and%202014.%20The%20questionnaire%20included%20questions%20about%20infrastructure%2C%20patient%20information%20standards%2C%20psycho-oncological%20services%20and%20aspects%20of%20organisational%20culture.%20Data%20analyses%20included%20frequencies%2C%20means%20and%20bivariate%20relationships.%5CnRESULTS%3A%20The%20return%20rate%20was%2088.3%25%20%2853%20hospital%20sites%29.%20Psycho-oncological%20care%20is%20provided%20by%20permanent%20employees%20in%2087%25.%20The%20average%20number%20of%20full-time-equivalent%20employees%20%28FTE%29%20is%201.23.%20Most%20breast%20cancer%20centres%20engage%20the%20occupational%20group%20of%20psycho-oncologists%20for%20psycho-oncological%20care%20%2890%25%29%2C%20followed%20by%20the%20medical%20service%20%2880%25%29%20and%20breast%20care%20nurses%20%2878%25%29%20%28multiple%20answers%20were%20possible%29.%20The%20correlation%20coefficient%20between%20FTEs%20and%20surgical%20treatments%20per%20year%20is%20not%20significant%20%28r%3D0.292%2C%20p%3D0.051%29.%20Hospitals%20are%20screening%20every%20inpatient%20for%20the%20need%20of%20psycho-oncological%20support%20in%2076%25%20of%20all%20sites.%20Frequently%20used%20screening%20instruments%20are%20distress%20thermometer%20%2819%25%29%2C%20clinical%20interview%20%2813%25%29%20and%20basic%20psycho-oncological%20documentation%20%2811%25%29.%5CnCONCLUSION%3A%20Our%20data%20provide%20insights%20into%20the%20self-reported%20structural%20and%20procedural%20quality%20of%20psycho-oncological%20care%20in%20German%20breast%20cancer%20centres.%20Further%20research%20should%20examine%20patient%20and%20caregiver%20perspective%20on%20the%20psycho-oncological%20services%20provided%20by%20breast%20cancer%20centres.%22%2C%22date%22%3A%22Apr%2013%2C%202019%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1136%5C%2Fbmjspcare-2018-001704%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%222045-4368%22%2C%22language%22%3A%22eng%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%226DCTQ3Z4%22%2C%227NLACL24%22%2C%2298J4DESJ%22%2C%2299FDCW4Z%22%2C%22BEQ38XPW%22%2C%22IE7JTZ2W%22%2C%22P9CVNWVH%22%2C%22QXIGN3AI%22%2C%22SPWXRLZV%22%2C%22SXDM3NIR%22%2C%22W637CI9M%22%2C%22X7PUUBWP%22%2C%22ZAW5JYVL%22%5D%2C%22dateModified%22%3A%222024-05-15T14%3A21%3A18Z%22%7D%7D%2C%7B%22key%22%3A%22DGUDFM5V%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Ewertowski%20et%20al.%22%2C%22parsedDate%22%3A%222018-01-30%22%2C%22numChildren%22%3A0%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BEwertowski%2C%20Helen%2C%20Fabian%20Tetzlaff%2C%20Stephanie%20Stiel%2C%20Nils%20Schneider%2C%20and%20Saskia%20J%5Cu00fcnger.%20%26quot%3B%26lt%3Ba%20class%3D%26%23039%3Bzp-ItemURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1186%5C%2Fs12904-018-0276-6%26%23039%3B%26gt%3BPrimary%20palliative%20Care%20in%20General%20Practice%20%5Cu2013%20study%20protocol%20of%20a%20three-stage%20mixed-methods%20organizational%20health%20services%20research%20study%26lt%3B%5C%2Fa%26gt%3B.%26quot%3B%20%26lt%3Bi%26gt%3BBMC%20Palliative%20Care%26lt%3B%5C%2Fi%26gt%3B%2017%2C%20no.%201%20%28January%2030%2C%202018%29%3A%2021.%20%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Primary%20palliative%20Care%20in%20General%20Practice%20%5Cu2013%20study%20protocol%20of%20a%20three-stage%20mixed-methods%20organizational%20health%20services%20research%20study%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Helen%22%2C%22lastName%22%3A%22Ewertowski%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Fabian%22%2C%22lastName%22%3A%22Tetzlaff%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Stephanie%22%2C%22lastName%22%3A%22Stiel%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Nils%22%2C%22lastName%22%3A%22Schneider%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Saskia%22%2C%22lastName%22%3A%22J%5Cu00fcnger%22%7D%5D%2C%22abstractNote%22%3A%22The%20focus%20of%20this%20project%20is%20on%20improving%20the%20provision%20of%20primary%20palliative%20care%20%28PC%29%20by%20general%20practitioners%20%28GPs%29.%20While%20approximately%2010%5Cu201315%25%20of%20the%20incurable%2C%20seriously%20ill%20or%20dying%20people%20will%20be%20in%20need%20of%20specialist%20PC%2C%20the%20vast%20majority%20can%20be%20adequately%20treated%20within%20generalist%20care.%20The%20strengthening%20of%20the%20GP%5Cu2019s%20role%20in%20PC%2C%20as%20well%20as%20ensuring%20close%20collaboration%20between%20specialist%20PC%20services%20and%20GPs%20have%20been%20identified%20as%20top%20priorities%20for%20the%20improvement%20of%20PC%20in%20Germany.%20Despite%20healthcare%20policy%20actions%2C%20diverse%20obstacles%20still%20exist%20to%20successful%20implementation%20of%20primary%20PC%20on%20a%20structural%2C%20process%2C%20and%20economic%20level.%20Therefore%2C%20this%20project%20aims%20at%20addressing%20barriers%20and%20facilitators%20to%20primary%20PC%20delivery%20in%20general%20practice%20in%20Germany.%22%2C%22date%22%3A%222018-01-30%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1186%5C%2Fs12904-018-0276-6%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22https%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1186%5C%2Fs12904-018-0276-6%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%221472-684X%22%2C%22language%22%3A%22en%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%2299FDCW4Z%22%2C%22I6PUATQS%22%2C%22JL4N5KDE%22%2C%22P9CVNWVH%22%2C%22X7PUUBWP%22%5D%2C%22dateModified%22%3A%222024-03-11T09%3A56%3A17Z%22%7D%7D%2C%7B%22key%22%3A%22G2LAY9PN%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Gaertner%20et%20al.%22%2C%22parsedDate%22%3A%222010-11%22%2C%22numChildren%22%3A1%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BGaertner%2C%20Jan%2C%20Sonja%20Zindel%2C%20Stephanie%20Stock%2C%20and%20Raymond%20Voltz.%20%26%23x201C%3BTalking%20about%20Life-Threatening%20Illness.%20JPM%20Patient%20Information.%26%23x201D%3B%20%26lt%3Bi%26gt%3BJournal%20of%20Palliative%20Medicine%26lt%3B%5C%2Fi%26gt%3B%2013%2C%20no.%2011%20%28November%202010%29%3A%201396%26%23x2013%3B97.%20%26lt%3Ba%20class%3D%26%23039%3Bzp-DOIURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1089%5C%2Fjpm.2010.9758%26%23039%3B%26gt%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1089%5C%2Fjpm.2010.9758%26lt%3B%5C%2Fa%26gt%3B.%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Talking%20about%20life-threatening%20illness.%20JPM%20Patient%20Information%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Jan%22%2C%22lastName%22%3A%22Gaertner%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Sonja%22%2C%22lastName%22%3A%22Zindel%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Stephanie%22%2C%22lastName%22%3A%22Stock%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Raymond%22%2C%22lastName%22%3A%22Voltz%22%7D%5D%2C%22abstractNote%22%3A%22%22%2C%22date%22%3A%222010-11%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1089%5C%2Fjpm.2010.9758%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%221557-7740%22%2C%22language%22%3A%22eng%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%2299FDCW4Z%22%5D%2C%22dateModified%22%3A%222024-05-16T04%3A02%3A26Z%22%7D%7D%2C%7B%22key%22%3A%228SQZWVZM%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Gaertner%20et%20al.%22%2C%22parsedDate%22%3A%222017-07-04%22%2C%22numChildren%22%3A1%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BGaertner%2C%20Jan%2C%20Waldemar%20Siemens%2C%20Joerg%20J%20Meerpohl%2C%20Gerd%20Antes%2C%20Cornelia%20Meffert%2C%20Carola%20Xander%2C%20Stephanie%20Stock%2C%20Dirk%20Mueller%2C%20Guido%20Schwarzer%2C%20and%20Gerhild%20Becker.%20%26quot%3B%26lt%3Ba%20class%3D%26%23039%3Bzp-ItemURL%26%23039%3B%20href%3D%26%23039%3Bhttp%3A%5C%2F%5C%2Fwww.bmj.com%5C%2Flookup%5C%2Fdoi%5C%2F10.1136%5C%2Fbmj.j2925%26%23039%3B%26gt%3BEffect%20of%20specialist%20palliative%20care%20services%20on%20quality%20of%20life%20in%20adults%20with%20advanced%20incurable%20illness%20in%20hospital%2C%20hospice%2C%20or%20community%20settings%3A%20systematic%20review%20and%20meta-analysis%26lt%3B%5C%2Fa%26gt%3B.%26quot%3B%20%26lt%3Bi%26gt%3BBMJ%26lt%3B%5C%2Fi%26gt%3B%2C%20July%204%2C%202017%2C%20j2925.%20https%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1136%5C%2Fbmj.j2925.%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Effect%20of%20specialist%20palliative%20care%20services%20on%20quality%20of%20life%20in%20adults%20with%20advanced%20incurable%20illness%20in%20hospital%2C%20hospice%2C%20or%20community%20settings%3A%20systematic%20review%20and%20meta-analysis%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Jan%22%2C%22lastName%22%3A%22Gaertner%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Waldemar%22%2C%22lastName%22%3A%22Siemens%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Joerg%20J%22%2C%22lastName%22%3A%22Meerpohl%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Gerd%22%2C%22lastName%22%3A%22Antes%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Cornelia%22%2C%22lastName%22%3A%22Meffert%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Carola%22%2C%22lastName%22%3A%22Xander%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Stephanie%22%2C%22lastName%22%3A%22Stock%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Dirk%22%2C%22lastName%22%3A%22Mueller%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Guido%22%2C%22lastName%22%3A%22Schwarzer%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Gerhild%22%2C%22lastName%22%3A%22Becker%22%7D%5D%2C%22abstractNote%22%3A%22%22%2C%22date%22%3A%222017-07-04%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1136%5C%2Fbmj.j2925%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22http%3A%5C%2F%5C%2Fwww.bmj.com%5C%2Flookup%5C%2Fdoi%5C%2F10.1136%5C%2Fbmj.j2925%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%220959-8138%2C%201756-1833%22%2C%22language%22%3A%22en%22%2C%22collections%22%3A%5B%222RCW3DVB%22%2C%2246NNKHWR%22%2C%2299FDCW4Z%22%2C%22ACPQBWRE%22%2C%22N24UXA6K%22%2C%22NPCAGTXX%22%2C%22QXIGN3AI%22%2C%22SPWXRLZV%22%2C%22YT56KJXE%22%5D%2C%22dateModified%22%3A%222024-06-06T10%3A42%3A48Z%22%7D%7D%2C%7B%22key%22%3A%22ZR7E3EDE%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Geiger%20et%20al.%22%2C%22parsedDate%22%3A%222016-06-02%22%2C%22numChildren%22%3A1%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BGeiger%2C%20Karin%2C%20Nils%20Schneider%2C%20Jutta%20Bleidorn%2C%20Katharina%20Klindtworth%2C%20Saskia%20J%26%23xFC%3Bnger%2C%20and%20Gabriele%20M%26%23xFC%3Bller-Mundt.%20%26%23x201C%3BCaring%20for%20Frail%20Older%20People%20in%20the%20Last%20Phase%20of%20Life%20-%20the%20General%20Practitioners%26%23x2019%3B%20View.%26%23x201D%3B%20%26lt%3Bi%26gt%3BBMC%20Palliative%20Care%26lt%3B%5C%2Fi%26gt%3B%2015%20%28June%202%2C%202016%29%3A%2052.%20%26lt%3Ba%20class%3D%26%23039%3Bzp-DOIURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1186%5C%2Fs12904-016-0124-5%26%23039%3B%26gt%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1186%5C%2Fs12904-016-0124-5%26lt%3B%5C%2Fa%26gt%3B.%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Caring%20for%20frail%20older%20people%20in%20the%20last%20phase%20of%20life%20-%20the%20general%20practitioners%27%20view%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Karin%22%2C%22lastName%22%3A%22Geiger%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Nils%22%2C%22lastName%22%3A%22Schneider%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Jutta%22%2C%22lastName%22%3A%22Bleidorn%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Katharina%22%2C%22lastName%22%3A%22Klindtworth%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Saskia%22%2C%22lastName%22%3A%22J%5Cu00fcnger%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Gabriele%22%2C%22lastName%22%3A%22M%5Cu00fcller-Mundt%22%7D%5D%2C%22abstractNote%22%3A%22BACKGROUND%3A%20Frail%20older%20people%20are%20an%20increasingly%20important%20group%20in%20primary%20care%20due%20to%20demographic%20change.%20For%20these%20patients%2C%20a%20palliative%20care%20approach%20may%20be%20useful%20to%20sustain%20the%20quality%20of%20life%20in%20the%20last%20phase%20of%20their%20lives.%20While%20general%20practitioners%20%28GPs%29%20play%20a%20key%20role%20in%20the%20primary%20care%20for%20older%20patients%2C%20general%20palliative%20care%20is%20still%20in%20its%20infancy%20and%20little%20is%20known%20in%20Germany%20about%20caring%20for%20frail%20older%20people%20towards%20the%20end%20of%20life.%20This%20study%20aims%20to%20explore%20the%20tasks%20and%20challenges%20regarding%20the%20care%20for%20frail%20older%20patients%20in%20the%20last%20phase%20of%20life%20from%20the%20GPs%26%23039%3B%20point%20of%20view%2C%20and%20the%20latter%26%23039%3Bs%20perception%20of%20their%20own%20role%20and%20responsibilities.%5CnMETHODS%3A%20Explorative%20qualitative%20study%20based%20on%20semi-structured%20in-depth%20interviews%20with%2014%20GPs%20from%20urban%20and%20rural%20regions%20in%20Lower%20Saxony%2C%20Germany.%20Analysis%20was%20carried%20out%20according%20to%20the%20principles%20of%20Grounded%20Theory.%5CnRESULTS%3A%20The%20GPs%26%23039%3B%20key%20commitment%20%26quot%3Bcaring%20for%20frail%20older%20patients%20until%20the%20end%26quot%3B%20as%20an%20integral%20part%20of%20primary%20care%20was%20worked%20out%20as%20a%20key%20category%2C%20flanked%20by%20central%20issues%3A%20%26quot%3Bcausal%20conditions%20and%20challenges%2C%26quot%3B%20which%20include%20patients%26%23039%3B%20preconditions%20and%20care%20needs%20as%20well%20as%20communication%20and%20cooperation%20aspects%20on%20the%20carers%26%23039%3B%20level.%20%26quot%3BBarriers%20and%20facilitators%20within%20the%20health%20system%26quot%3B%20refers%20to%20prerequisites%20of%20the%20German%20healthcare%20system%2C%20such%20as%20high%20caseloads.%20Regarding%20%26quot%3Bstrategies%20to%20comply%20with%20this%20commitment%26quot%3B%2C%20various%20self-developed%20strategies%20for%20the%20care%20of%20frail%20older%20people%20are%20presented%2C%20depending%20on%20the%20GPs%26%23039%3B%20understanding%20of%20their%20professional%20role%20and%20individual%20circumstances.%5CnCONCLUSIONS%3A%20The%20GPs%20show%20a%20strong%20commitment%20to%20caring%20for%20the%20frail%20older%20patients%20until%20the%20end%20of%20life.%20However%2C%20it%20is%20a%20challenging%20and%20complex%20task%20that%20requires%20significant%20time%2C%20which%20can%20take%20GPs%20to%20their%20limits.%20There%20is%20a%20great%20need%20to%20improve%20patient-and%20family-centered%20proactive%20communication%2C%20as%20well%20as%20interprofessional%20cooperation.%20Strengthening%20the%20team%20approach%20in%20primary%20care%20could%20relieve%20the%20burden%20on%20GPs%2C%20especially%20in%20rural%20areas%2C%20while%20simultaneously%20improving%20end-of-life%20care%20for%20their%20patients.%22%2C%22date%22%3A%22Jun%2002%2C%202016%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1186%5C%2Fs12904-016-0124-5%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%221472-684X%22%2C%22language%22%3A%22eng%22%2C%22collections%22%3A%5B%222JLBQKWD%22%2C%2246NNKHWR%22%2C%2299FDCW4Z%22%2C%22I6PUATQS%22%2C%22N24UXA6K%22%2C%22P9CVNWVH%22%2C%22X7PUUBWP%22%5D%2C%22dateModified%22%3A%222024-06-05T08%3A55%3A38Z%22%7D%7D%2C%7B%22key%22%3A%22XYEZL2C4%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Hentrich%20et%20al.%22%2C%22parsedDate%22%3A%222009-12-01%22%2C%22numChildren%22%3A1%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BHentrich%2C%20Marie-Christin%2C%20S.%20J%5Cu00fcnger%2C%20Marion%20Grumbach-Wendt%2C%20S.%20Reichling%2C%20and%20Lukas%20Radbruch.%20%26quot%3B%26lt%3Ba%20class%3D%26%23039%3Bzp-ItemURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fwww.researchgate.net%5C%2Fpublication%5C%2F250878510_Die_Palliativversorgung_von_Kindern_und_Jugendlichen_in_Nordrhein-Westfalen_aus_der_Sicht_der_Eltern%26%23039%3B%26gt%3BDie%20Palliativversorgung%20von%20Kindern%20und%20Jugendlichen%20in%20Nordrhein-Westfalen%20aus%20der%20Sicht%20der%20Eltern%26lt%3B%5C%2Fa%26gt%3B.%26quot%3B%20%26lt%3Bi%26gt%3BZeitschrift%20f%5Cu00fcr%20Palliativmedizin%26lt%3B%5C%2Fi%26gt%3B%2010%20%28December%201%2C%202009%29.%20https%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1055%5C%2Fs-0029-1223415.%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Die%20Palliativversorgung%20von%20Kindern%20und%20Jugendlichen%20in%20Nordrhein-Westfalen%20aus%20der%20Sicht%20der%20Eltern%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Marie-Christin%22%2C%22lastName%22%3A%22Hentrich%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22S.%22%2C%22lastName%22%3A%22J%5Cu00fcnger%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Marion%22%2C%22lastName%22%3A%22Grumbach-Wendt%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22S.%22%2C%22lastName%22%3A%22Reichling%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Lukas%22%2C%22lastName%22%3A%22Radbruch%22%7D%5D%2C%22abstractNote%22%3A%22Im%20Rahmen%20des%20Modellprojekts%20%5Cu201eLandesinitiative%20NRW%20zur%20ambulanten%20Palliativversorgung%20von%20Kindern%20und%20Jugendlichen%5Cu201d%20wurde%20eine%20Befragung%20von%20Eltern%20durchgef%5Cu00fchrt%2C%20deren%20Kinder%20an%20einer%20lebenslimitierenden%20Erkrankung%20verstorben%20waren.%20Ziel%20dieser%20Befragung%20war%20es%2C%20die%20Versorgung%20in%20NRW%20aus%20Sicht%20der%20betroffenen%20Eltern%20zu%20beleuchten.%20Die%20Ergebnisse%20der%20Fokusgruppe%20und%20die%20erg%5Cu00e4nzenden%20Einzelinterviews%20wurden%20einer%20qualitativen%20Inhaltsanalyse%20unterzogen.%20Es%20lie%5Cu00dfen%20sich%20verschiedene%20Probleme%20und%20Bed%5Cu00fcrfnisse%20von%20Eltern%20schwerkranker%20Kinder%20identifizieren.%20Die%20von%20den%20Eltern%20geschilderten%20Probleme%20waren%20finanzieller%2C%20organisatorischer%20und%20medizinischer%20Art.%20Die%20Eltern%20beklagten%20einen%20schwierigen%20Zugang%20zu%20Informationen.%20Im%20Kontakt%20zu%20%5Cu00c4rzten%20und%20Pflegepersonal%20betonten%20sie%20die%20Relevanz%20von%20gegenseitigem%20Vertrauen%2C%20konstanten%20Ansprechpartnern%20und%20einf%5Cu00fchlsamer%20Kommunikation.%20Diese%20Ergebnisse%20stehen%20im%20Einklang%20zu%20internationalen%20Studien.%20Die%20vorliegende%20Untersuchung%20zeigt%20die%20Relevanz%20solcher%20Ergebnisse%20auch%20im%20Einzelfall%20und%20die%20Notwendigkeit%2C%20Zugang%20zu%20Informationen%20und%20Versorgungsangeboten%20zu%20erleichtern.%22%2C%22date%22%3A%222009-12-01%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1055%5C%2Fs-0029-1223415%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22https%3A%5C%2F%5C%2Fwww.researchgate.net%5C%2Fpublication%5C%2F250878510_Die_Palliativversorgung_von_Kindern_und_Jugendlichen_in_Nordrhein-Westfalen_aus_der_Sicht_der_Eltern%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%22%22%2C%22language%22%3A%22de%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%226DCTQ3Z4%22%2C%2299FDCW4Z%22%2C%22I6PUATQS%22%2C%22P9CVNWVH%22%2C%22S488ZYK4%22%2C%22SPWXRLZV%22%2C%22X7PUUBWP%22%5D%2C%22dateModified%22%3A%222024-05-25T06%3A09%3A21Z%22%7D%7D%2C%7B%22key%22%3A%22SVWUUJHG%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Hodiamont%20et%20al.%22%2C%22parsedDate%22%3A%222019-03-12%22%2C%22numChildren%22%3A1%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BHodiamont%2C%20Farina%2C%20Saskia%20J%26%23xFC%3Bnger%2C%20Reiner%20Leidl%2C%20Bernd%20Oliver%20Maier%2C%20Eva%20Schildmann%2C%20and%20Claudia%20Bausewein.%20%26%23x201C%3BUnderstanding%20Complexity%20-%20the%20Palliative%20Care%20Situation%20as%20a%20Complex%20Adaptive%20System.%26%23x201D%3B%20%26lt%3Bi%26gt%3BBMC%20Health%20Services%20Research%26lt%3B%5C%2Fi%26gt%3B%2019%2C%20no.%201%20%28March%2012%2C%202019%29%3A%20157.%20%26lt%3Ba%20class%3D%26%23039%3Bzp-DOIURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1186%5C%2Fs12913-019-3961-0%26%23039%3B%26gt%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1186%5C%2Fs12913-019-3961-0%26lt%3B%5C%2Fa%26gt%3B.%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Understanding%20complexity%20-%20the%20palliative%20care%20situation%20as%20a%20complex%20adaptive%20system%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Farina%22%2C%22lastName%22%3A%22Hodiamont%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Saskia%22%2C%22lastName%22%3A%22J%5Cu00fcnger%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Reiner%22%2C%22lastName%22%3A%22Leidl%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Bernd%20Oliver%22%2C%22lastName%22%3A%22Maier%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Eva%22%2C%22lastName%22%3A%22Schildmann%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Claudia%22%2C%22lastName%22%3A%22Bausewein%22%7D%5D%2C%22abstractNote%22%3A%22BACKGROUND%3A%20The%20concept%20of%20complexity%20is%20used%20in%20palliative%20care%20%28PC%29%20to%20describe%20the%20nature%20of%20patients%26%23039%3B%20situations%20and%20the%20extent%20of%20resulting%20needs%20and%20care%20demands.%20However%2C%20the%20term%20or%20concept%20is%20not%20clearly%20defined%20and%20operationalised%20with%20respect%20to%20its%20particular%20application%20in%20PC.%20As%20a%20complex%20problem%2C%20a%20care%20situation%20in%20PC%20is%20characterized%20by%20reciprocal%2C%20nonlinear%20relations%20and%20uncertainties.%20Dealing%20with%20complex%20problems%20necessitates%20problem-solving%20methods%20tailored%20to%20specific%20situations.%20The%20theory%20of%20complex%20adaptive%20systems%20%28CAS%29%20provides%20a%20framework%20for%20locating%20problems%20and%20solutions.%20This%20study%20aims%20to%20describe%20criteria%20contributing%20to%20complexity%20of%20PC%20situations%20from%20the%20professionals%26%23039%3B%20view%20and%20to%20develop%20a%20conceptual%20framework%20to%20improve%20understanding%20of%20the%20concept%20of%20%26quot%3Bcomplexity%26quot%3B%20and%20related%20elements%20of%20a%20PC%20situation%20by%20locating%20the%20complex%20problem%20%26quot%3BPC%20situation%26quot%3B%20in%20a%20CAS.%5CnMETHODS%3A%20Qualitative%20interview%20study%20with%2042%20semi-structured%20expert%20%28clinical%5C%2Feconomical%5C%2Fpolitical%29%20interviews.%20Data%20was%20analysed%20using%20the%20framework%20method.%20The%20thematic%20framework%20was%20developed%20inductively.%20Categories%20were%20reviewed%2C%20subsumed%20and%20connected%20considering%20CAS%20theory.%5CnRESULTS%3A%20The%20CAS%20of%20a%20PC%20situation%20consists%20of%20three%20subsystems%3A%20patient%2C%20social%20system%2C%20and%20team.%20Agents%20in%20the%20%26quot%3Bsystem%20patient%26quot%3B%20are%20allocated%20to%20further%20subsystems%20on%20patient%20level%3A%20physical%2C%20psycho-spiritual%2C%20and%20socio-cultural.%20The%20%26quot%3Bsocial%20system%26quot%3B%20and%20the%20%26quot%3Bsystem%20team%26quot%3B%20are%20composed%20of%20social%20agents%2C%20who%20affect%20the%20CAS%20as%20carriers%20of%20characteristics%2C%20roles%2C%20and%20relationships.%20Environmental%20factors%20interact%20with%20the%20care%20situation%20from%20outside%20the%20system.%20Agents%20within%20subsystems%20and%20subsystems%20themselves%20interact%20on%20all%20hierarchical%20system%20levels%20and%20shape%20the%20system%20behaviour%20of%20a%20PC%20situation.%5CnCONCLUSIONS%3A%20This%20paper%20provides%20a%20conceptual%20framework%20and%20comprehensive%20understanding%20of%20complexity%20in%20PC.%20The%20systemic%20view%20can%20help%20to%20understand%20and%20shape%20situations%20and%20dynamics%20of%20individual%20care%20situations%3B%20on%20higher%20hierarchical%20level%2C%20it%20can%20support%20an%20understanding%20and%20framework%20for%20the%20development%20of%20care%20structures%20and%20concepts.%20The%20framework%20provides%20a%20foundation%20for%20the%20development%20of%20a%20model%20to%20differentiate%20PC%20situations%20by%20complexity%20of%20patients%20and%20care%20needs.%20To%20enable%20an%20operationalisation%20and%20classification%20of%20complexity%2C%20relevant%20outcome%20measures%20mirroring%20the%20identified%20system%20elements%20should%20be%20identified%20and%20implemented%20in%20clinical%20practice.%22%2C%22date%22%3A%22Mar%2012%2C%202019%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1186%5C%2Fs12913-019-3961-0%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%221472-6963%22%2C%22language%22%3A%22eng%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%2299FDCW4Z%22%2C%22I6PUATQS%22%2C%22IE7JTZ2W%22%2C%22S488ZYK4%22%2C%22X7PUUBWP%22%5D%2C%22dateModified%22%3A%222021-03-23T15%3A56%3A59Z%22%7D%7D%2C%7B%22key%22%3A%22ZU7LCPG6%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Hodiamont%20et%20al.%22%2C%22parsedDate%22%3A%222021-05%22%2C%22numChildren%22%3A1%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BHodiamont%2C%20Farina%2C%20Helena%20Hock%2C%20Clare%20Ellis-Smith%2C%20Catherine%20Evans%2C%20Susanne%20de%20Wolf-Linder%2C%20Saskia%20J%26%23xFC%3Bnger%2C%20Janine%20Diehl-Schmid%2C%20Isabel%20Burner-Fritsch%2C%20and%20Claudia%20Bausewein.%20%26%23x201C%3BCulture%20in%20the%20Spotlight-Cultural%20Adaptation%20and%20Content%20Validity%20of%20the%20Integrated%20Palliative%20Care%20Outcome%20Scale%20for%20Dementia%3A%20A%20Cognitive%20Interview%20Study.%26%23x201D%3B%20%26lt%3Bi%26gt%3BPalliative%20Medicine%26lt%3B%5C%2Fi%26gt%3B%2035%2C%20no.%205%20%28May%202021%29%3A%20962%26%23x2013%3B71.%20%26lt%3Ba%20class%3D%26%23039%3Bzp-DOIURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1177%5C%2F02692163211004403%26%23039%3B%26gt%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1177%5C%2F02692163211004403%26lt%3B%5C%2Fa%26gt%3B.%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Culture%20in%20the%20spotlight-cultural%20adaptation%20and%20content%20validity%20of%20the%20integrated%20palliative%20care%20outcome%20scale%20for%20dementia%3A%20A%20cognitive%20interview%20study%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Farina%22%2C%22lastName%22%3A%22Hodiamont%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Helena%22%2C%22lastName%22%3A%22Hock%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Clare%22%2C%22lastName%22%3A%22Ellis-Smith%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Catherine%22%2C%22lastName%22%3A%22Evans%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Susanne%22%2C%22lastName%22%3A%22de%20Wolf-Linder%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Saskia%22%2C%22lastName%22%3A%22J%5Cu00fcnger%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Janine%22%2C%22lastName%22%3A%22Diehl-Schmid%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Isabel%22%2C%22lastName%22%3A%22Burner-Fritsch%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Claudia%22%2C%22lastName%22%3A%22Bausewein%22%7D%5D%2C%22abstractNote%22%3A%22BACKGROUND%3A%20Dementia%20is%20a%20life-limiting%20disease%20with%20high%20symptom%20burden.%20The%20Integrated%20Palliative%20Care%20Outcome%20Scale%20for%20Dementia%20%28IPOS-Dem%29%20is%20the%20first%20comprehensive%20person-centered%20measure%20to%20identify%20and%20measure%20palliative%20care%20needs%20of%20people%20with%20dementia.%20However%2C%20such%20a%20measure%20is%20missing%20in%20the%20German%20health%20care%20system.%5CnAIM%3A%20To%20develop%20a%20culturally%20adapted%20German%20version%20of%20the%20IPOS-Dem%20and%20determine%20its%20content%20validity%20as%20a%20foundation%20for%20comprehensive%20psychometric%20testing.%5CnDESIGN%3A%20Cognitive%20interview%20study%20with%20intermittent%20analysis%20and%20questionnaire%20adaptation.%20Interview%20guide%20and%20coding%20frame%20followed%20thematic%20analysis%20according%20to%20Willis%20complemented%20by%20Tourangeau%26%23039%3Bs%20model%20of%20cognitive%20aspects%20of%20survey%20methodology%3A%20comprehension%2C%20retrieval%2C%20judgment%2C%20response.%5CnPARTICIPANTS%3A%20Purposive%20sample%20with%20professionals%20%28n%5Cu2009%3D%5Cu200929%29%20and%20family%20carers%20%28n%5Cu2009%3D%5Cu20096%29%20of%20people%20with%20advanced%20dementia%20in%20seven%20nursing%20homes%20and%20person%26%23039%3Bs%20own%20home%20care%20in%20four%20interview%20rounds%20%28n%5Cu2009%3D%5Cu200911%3B%2010%3B%207%3B%207%29.%5CnRESULTS%3A%20IPOS-Dem%20was%20regarded%20as%20comprehensive%20and%20accessible.%20Cultural%20adaption%20pertained%20to%20issues%20of%20comprehension%20and%20judgment.%20Comprehension%20challenges%20referred%20to%20the%20person-centered%20concept%20of%20%26quot%3Bbeing%20affected%20by%26quot%3B%20used%20in%20the%20POS-measures.%20Judgment%20problems%20related%20to%20persons%20with%20limited%20communication%20causing%20challenges%20in%20assessment.%5CnCONCLUSION%3A%20Most%20issues%20of%20cultural%20adaptation%20could%20be%20addressed%20by%20questionnaire%20modifications.%20However%2C%20interviews%20unveiled%20fundamental%20challenges%20for%20using%20proxy%20reported%20person-centered%20assessments.%20Continuous%20training%20on%20how%20to%20use%20the%20instrument%20is%20imperative%20to%20integrate%20the%20person-centered%20approach%20of%20palliative%20care%20into%20nursing%20homes%20as%20a%20key%20provider%20of%20generalist%20palliative%20care%20for%20people%20with%20dementia.%20The%20refined%20version%20is%20ready%20for%20psychometric%20testing.%22%2C%22date%22%3A%222021-05%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1177%5C%2F02692163211004403%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%221477-030X%22%2C%22language%22%3A%22eng%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%2299FDCW4Z%22%2C%22I6PUATQS%22%2C%22X7PUUBWP%22%5D%2C%22dateModified%22%3A%222024-03-11T09%3A57%3A30Z%22%7D%7D%2C%7B%22key%22%3A%224Z73VHXS%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22J%5Cu00fcnger%20and%20Payne%22%2C%22parsedDate%22%3A%222011-01-01%22%2C%22numChildren%22%3A1%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BJ%5Cu00fcnger%2C%20S.%2C%20and%20S.%20Payne.%20%26quot%3B%26lt%3Ba%20class%3D%26%23039%3Bzp-ItemURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fwww.researchgate.net%5C%2Fpublication%5C%2F281380970_Guidance_on_postgraduate_education_for_psychologists_involved_in_palliative_care%26%23039%3B%26gt%3BGuidance%20on%20postgraduate%20education%20for%20psychologists%20involved%20in%20palliative%20care%26lt%3B%5C%2Fa%26gt%3B.%26quot%3B%20%26lt%3Bi%26gt%3BEuropean%20Journal%20of%20Palliative%20Care%26lt%3B%5C%2Fi%26gt%3B%2018%20%28January%201%2C%202011%29%3A%20238%5Cu201352.%20%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Guidance%20on%20postgraduate%20education%20for%20psychologists%20involved%20in%20palliative%20care%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22S.%22%2C%22lastName%22%3A%22J%5Cu00fcnger%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22S.%22%2C%22lastName%22%3A%22Payne%22%7D%5D%2C%22abstractNote%22%3A%22%22%2C%22date%22%3A%222011-01-01%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%22%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22https%3A%5C%2F%5C%2Fwww.researchgate.net%5C%2Fpublication%5C%2F281380970_Guidance_on_postgraduate_education_for_psychologists_involved_in_palliative_care%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%22%22%2C%22language%22%3A%22en%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%2299FDCW4Z%22%2C%22I6PUATQS%22%2C%22X7PUUBWP%22%5D%2C%22dateModified%22%3A%222024-03-11T09%3A54%3A15Z%22%7D%7D%2C%7B%22key%22%3A%22MX6A7SXY%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22J%5Cu00fcnger%20and%20Radbruch%22%2C%22parsedDate%22%3A%222013-01%22%2C%22numChildren%22%3A1%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BJ%26%23xFC%3Bnger%2C%20Saskia%2C%20and%20Lukas%20Radbruch.%20%26%23x201C%3BCartographers%20in%20an%20Uncharted%20Terrain--the%20Importance%20of%20Going%20the%20Extra%20Mile.%26%23x201D%3B%20%26lt%3Bi%26gt%3BEuropean%20Journal%20of%20Pediatrics%26lt%3B%5C%2Fi%26gt%3B%20172%2C%20no.%201%20%28January%202013%29%3A%201%26%23x2013%3B3.%20%26lt%3Ba%20class%3D%26%23039%3Bzp-DOIURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1007%5C%2Fs00431-012-1881-7%26%23039%3B%26gt%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1007%5C%2Fs00431-012-1881-7%26lt%3B%5C%2Fa%26gt%3B.%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Cartographers%20in%20an%20uncharted%20terrain--the%20importance%20of%20going%20the%20extra%20mile%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Saskia%22%2C%22lastName%22%3A%22J%5Cu00fcnger%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Lukas%22%2C%22lastName%22%3A%22Radbruch%22%7D%5D%2C%22abstractNote%22%3A%22%22%2C%22date%22%3A%22Jan%202013%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1007%5C%2Fs00431-012-1881-7%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%221432-1076%22%2C%22language%22%3A%22eng%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%2299FDCW4Z%22%2C%22I6PUATQS%22%2C%22S488ZYK4%22%5D%2C%22dateModified%22%3A%222021-03-23T15%3A57%3A32Z%22%7D%7D%2C%7B%22key%22%3A%223CQX83SJ%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22J%5Cu00fcnger%20et%20al.%22%2C%22parsedDate%22%3A%222010-03-01%22%2C%22numChildren%22%3A1%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BJ%5Cu00fcnger%2C%20S.%2C%20Sheila%20Payne%2C%20Anna%20Costantini%2C%20C.%20Kalus%2C%20and%20J.%20Werth.%20%26quot%3B%26lt%3Ba%20class%3D%26%23039%3Bzp-ItemURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fwww.researchgate.net%5C%2Fpublication%5C%2F277190808_The_EAPC_TASK_Force_on_education_for_psychologists_in_palliative_care%26%23039%3B%26gt%3BThe%20EAPC%20TASK%20Force%20on%20education%20for%20psychologists%20in%20palliative%20care%26lt%3B%5C%2Fa%26gt%3B.%26quot%3B%20%26lt%3Bi%26gt%3BEuropean%20Journal%20of%20Palliative%20Care%26lt%3B%5C%2Fi%26gt%3B%2017%20%28March%201%2C%202010%29.%20%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22The%20EAPC%20TASK%20Force%20on%20education%20for%20psychologists%20in%20palliative%20care%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22S.%22%2C%22lastName%22%3A%22J%5Cu00fcnger%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Sheila%22%2C%22lastName%22%3A%22Payne%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Anna%22%2C%22lastName%22%3A%22Costantini%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22C.%22%2C%22lastName%22%3A%22Kalus%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22J.%22%2C%22lastName%22%3A%22Werth%22%7D%5D%2C%22abstractNote%22%3A%22%22%2C%22date%22%3A%222010-03-01%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%22%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22https%3A%5C%2F%5C%2Fwww.researchgate.net%5C%2Fpublication%5C%2F277190808_The_EAPC_TASK_Force_on_education_for_psychologists_in_palliative_care%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%22%22%2C%22language%22%3A%22en%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%2299FDCW4Z%22%2C%22I6PUATQS%22%2C%22X7PUUBWP%22%5D%2C%22dateModified%22%3A%222024-05-16T04%3A22%3A44Z%22%7D%7D%2C%7B%22key%22%3A%22CQJJCLUV%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22J%5Cu00fcnger%20et%20al.%22%2C%22parsedDate%22%3A%222012-08-01%22%2C%22numChildren%22%3A0%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BJ%5Cu00fcnger%2C%20Saskia%2C%20Sheila%20Payne%2C%20Sarah%20Brearley%2C%20Verena%20Ploenes%2C%20and%20Lukas%20Radbruch.%20%26quot%3B%26lt%3Ba%20class%3D%26%23039%3Bzp-ItemURL%26%23039%3B%20href%3D%26%23039%3Bhttp%3A%5C%2F%5C%2Fwww.sciencedirect.com%5C%2Fscience%5C%2Farticle%5C%2Fpii%5C%2FS0885392412001455%26%23039%3B%26gt%3BConsensus%20Building%20in%20Palliative%20Care%3A%20A%20Europe-Wide%20Delphi%20Study%20on%20Common%20Understandings%20and%20Conceptual%20Differences%26lt%3B%5C%2Fa%26gt%3B.%26quot%3B%20%26lt%3Bi%26gt%3BJournal%20of%20Pain%20and%20Symptom%20Management%26lt%3B%5C%2Fi%26gt%3B%2044%2C%20no.%202%20%28August%201%2C%202012%29%3A%20192%5Cu2013205.%20https%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1016%5C%2Fj.jpainsymman.2011.09.009.%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Consensus%20Building%20in%20Palliative%20Care%3A%20A%20Europe-Wide%20Delphi%20Study%20on%20Common%20Understandings%20and%20Conceptual%20Differences%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Saskia%22%2C%22lastName%22%3A%22J%5Cu00fcnger%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Sheila%22%2C%22lastName%22%3A%22Payne%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Sarah%22%2C%22lastName%22%3A%22Brearley%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Verena%22%2C%22lastName%22%3A%22Ploenes%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Lukas%22%2C%22lastName%22%3A%22Radbruch%22%7D%5D%2C%22abstractNote%22%3A%22Context%5CnThroughout%20Europe%2C%20there%20are%20major%20differences%20in%20the%20stages%20of%20development%20and%20in%20the%20types%20of%20service%20delivery%20of%20palliative%20care.%20Consensus%20on%20standards%20and%20norms%20for%20palliative%20care%20in%20Europe%20is%20needed%20for%20advocacy%20and%20health%20policy%20decision%20making.%5CnObjectives%5CnTo%20provide%20an%20empirical%20basis%20for%20a%20common%20understanding%20of%20palliative%20care%20delivery%20in%20Europe.%5CnMethods%5CnA%20two-round%2C%20online%20consensus%20Delphi%20study%20was%20undertaken%20with%20a%20multiprofessional%20expert%20panel%20of%20board%20members%20of%20national%20hospice%20and%20palliative%20care%20associations%20in%20Europe.%5CnResults%5CnRespondents%20represented%2080%25%20of%20the%20member%20associations%20of%20the%20European%20Association%20for%20Palliative%20Care%2C%20comprising%2096%20experts%20and%2035%20national%20hospice%20and%20palliative%20care%20associations%20from%2022%20countries.%20High%20to%20very%20high%20consensus%20was%20found%20for%20common%20values%20and%20principles%20of%20palliative%20care%20%28e.g.%2C%20autonomy%2C%20dignity%29%20and%20the%20provision%20of%20different%20levels%20of%20palliative%20care.%20Lower%20consensus%20emerged%20for%20concepts%20such%20as%20end-of-life%20care%20or%20terminal%20care%2C%20the%20demand%20of%20services%20and%20the%20composition%20of%20palliative%20care%20teams.%20The%20role%20of%20social%20workers%20was%20emphasized%2C%20but%20there%20was%20ambiguity%20about%20the%20contribution%20of%20psychologists.%20The%20need%20for%20health%20professionals%20without%20specialist%20palliative%20care%20skills%20to%20strengthen%20their%20contribution%20to%20palliative%20care%20provision%20was%20emphasized.%5CnConclusion%5CnOverall%2C%20this%20study%20contributed%20to%20a%20higher%20level%20of%20consensus%20toward%20the%20proposed%20recommendations.%20Expert%20comments%20underlined%20the%20need%20for%20clearer%20definitions%20and%20specifications%20of%20terms%20and%20indicated%20important%20topics%20where%20cultural%20issues%2C%20geographical%20aspects%2C%20and%20the%20local%20health%20care%20setting%20have%20to%20be%20considered%20in%20palliative%20care.%22%2C%22date%22%3A%22August%201%2C%202012%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1016%5C%2Fj.jpainsymman.2011.09.009%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22http%3A%5C%2F%5C%2Fwww.sciencedirect.com%5C%2Fscience%5C%2Farticle%5C%2Fpii%5C%2FS0885392412001455%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%220885-3924%22%2C%22language%22%3A%22en%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%2299FDCW4Z%22%2C%22I6PUATQS%22%2C%22JL4N5KDE%22%5D%2C%22dateModified%22%3A%222021-03-23T15%3A57%3A27Z%22%7D%7D%2C%7B%22key%22%3A%22WTZR3KYQ%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22J%5Cu00fcnger%20et%20al.%22%2C%22parsedDate%22%3A%222010-03%22%2C%22numChildren%22%3A0%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BJ%5Cu00fcnger%2C%20S.%2C%20Sheila%20Payne%2C%20A.%20Costantini%2C%20C.%20Kalus%2C%20and%20J.%20L.%20Werth.%20%26quot%3B%26lt%3Ba%20class%3D%26%23039%3Bzp-ItemURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Feprints.lancs.ac.uk%5C%2Fid%5C%2Feprint%5C%2F32728%5C%2F%26%23039%3B%26gt%3BEAPC%20task%20force%20on%20education%20for%20psychologists%20in%20palliative%20care%26lt%3B%5C%2Fa%26gt%3B.%26quot%3B%20%26lt%3Bi%26gt%3BEuropean%20Journal%20of%20Palliative%20Care%26lt%3B%5C%2Fi%26gt%3B%2017%2C%20no.%202%20%28March%202010%29%3A%2084%5Cu201387.%20%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22EAPC%20task%20force%20on%20education%20for%20psychologists%20in%20palliative%20care%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22S.%22%2C%22lastName%22%3A%22J%5Cu00fcnger%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Sheila%22%2C%22lastName%22%3A%22Payne%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22A.%22%2C%22lastName%22%3A%22Costantini%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22C.%22%2C%22lastName%22%3A%22Kalus%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22J.%20L.%22%2C%22lastName%22%3A%22Werth%22%7D%5D%2C%22abstractNote%22%3A%22It%20is%20argued%20that%20psychological%20aspects%20of%20care%20and%20psychosocial%20problems%20are%20essential%20components%20of%20palliative%20care.%20However%2C%20the%20provision%20of%20appropriate%20services%20remains%20somewhat%20arbitrary.%20Unlike%20medical%20and%20nursing%20care%2C%20which%20are%20clearly%20delivered%20by%20doctors%20and%20nurses%20respectively%2C%20psychological%20and%20psychosocial%20support%20in%20palliative%20care%20are%20not%20assigned%20exclusively%20to%20psychologists.%20It%20is%20generally%20expected%20that%20all%20professionals%20working%20in%20palliative%20care%20should%20have%20some%20knowledge%20of%20the%20psychological%20dynamics%20in%20terminal%20illness%2C%20as%20well%20as%20skills%20in%20communication%20and%20psychological%20risk%20assessment.%20On%20the%20one%20hand%2C%20palliative%20care%20education%20programmes%20for%20nurses%20and%20doctors%20comprise%20a%20considerable%20amount%20of%20psychological%20and%20psychosocial%20content.%20On%20the%20other%20hand%2C%20only%20a%20few%20palliative%20care%20associations%20provide%20explicit%20information%20on%20the%20role%20and%20tasks%20of%20psychologists%20in%20palliative%20care.%20Psychologists%5Cu2019%20associations%20do%20not%20deal%20much%20with%20this%20issue%20either.%20If%20they%20refer%20to%20it%20at%20all%2C%20it%20is%20in%20the%20context%20of%20the%20care%20of%20the%20aged%2C%20end-of-life%20care%20or%20how%20to%20deal%20with%20grief.%22%2C%22date%22%3A%222010-03%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%22%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22https%3A%5C%2F%5C%2Feprints.lancs.ac.uk%5C%2Fid%5C%2Feprint%5C%2F32728%5C%2F%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%221352-2779%22%2C%22language%22%3A%22en%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%226DCTQ3Z4%22%2C%2299FDCW4Z%22%2C%22I6PUATQS%22%2C%22SPWXRLZV%22%2C%22ZKMQLZWF%22%5D%2C%22dateModified%22%3A%222024-05-17T09%3A52%3A33Z%22%7D%7D%2C%7B%22key%22%3A%22LCF5HC7W%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22J%5Cu00fcnger%20et%20al.%22%2C%22parsedDate%22%3A%222010-06-04%22%2C%22numChildren%22%3A0%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BJ%5Cu00fcnger%2C%20Saskia%2C%20Andrea%20E.%20Vedder%2C%20Sigurd%20Milde%2C%20Thomas%20Fischbach%2C%20Boris%20Zernikow%2C%20and%20Lukas%20Radbruch.%20%26quot%3B%26lt%3Ba%20class%3D%26%23039%3Bzp-ItemURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1186%5C%2F1472-684X-9-11%26%23039%3B%26gt%3BPaediatric%20palliative%20home%20care%20by%20general%20paediatricians%3A%20a%20multimethod%20study%20on%20perceived%20barriers%20and%20incentives%26lt%3B%5C%2Fa%26gt%3B.%26quot%3B%20%26lt%3Bi%26gt%3BBMC%20Palliative%20Care%26lt%3B%5C%2Fi%26gt%3B%209%2C%20no.%201%20%28June%204%2C%202010%29%3A%2011.%20%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Paediatric%20palliative%20home%20care%20by%20general%20paediatricians%3A%20a%20multimethod%20study%20on%20perceived%20barriers%20and%20incentives%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Saskia%22%2C%22lastName%22%3A%22J%5Cu00fcnger%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Andrea%20E.%22%2C%22lastName%22%3A%22Vedder%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Sigurd%22%2C%22lastName%22%3A%22Milde%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Thomas%22%2C%22lastName%22%3A%22Fischbach%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Boris%22%2C%22lastName%22%3A%22Zernikow%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Lukas%22%2C%22lastName%22%3A%22Radbruch%22%7D%5D%2C%22abstractNote%22%3A%22Non-specialist%20palliative%20care%2C%20as%20it%20is%20delivered%20by%20general%20practitioners%2C%20is%20a%20basic%20component%20of%20a%20comprehensive%20palliative%20care%20infrastructure%20for%20adult%20patients%20with%20progressive%20and%20far%20advanced%20disease.%20Currently%20palliative%20care%20for%20children%20and%20adolescents%20is%20recognized%20as%20a%20distinct%20entity%20of%20care%2C%20requiring%20networks%20of%20service%20providers%20across%20different%20settings%2C%20including%20paediatricians%20working%20in%20general%20practice.%20In%20Germany%2C%20the%20medical%20home%20care%20for%20children%20and%20adolescents%20is%20to%20a%20large%20extent%20delivered%20by%20general%20paediatricians%20working%20in%20their%20own%20practice.%20However%2C%20these%20are%20rarely%20confronted%20with%20children%20suffering%20from%20life-limiting%20diseases.%20The%20aim%20of%20this%20study%20was%20therefore%20to%20examine%20potential%20barriers%2C%20incentives%2C%20and%20the%20professional%20self-image%20of%20general%20paediatricians%20with%20regard%20to%20paediatric%20palliative%20care.%22%2C%22date%22%3A%222010-06-04%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1186%5C%2F1472-684X-9-11%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22https%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1186%5C%2F1472-684X-9-11%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%221472-684X%22%2C%22language%22%3A%22en%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%2299FDCW4Z%22%2C%22I6PUATQS%22%2C%22P9CVNWVH%22%2C%22S488ZYK4%22%5D%2C%22dateModified%22%3A%222024-03-11T09%3A53%3A59Z%22%7D%7D%2C%7B%22key%22%3A%222QHZYK5N%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22J%5Cu00fcnger%20et%20al.%22%2C%22parsedDate%22%3A%222010-06-02%22%2C%22numChildren%22%3A0%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BJ%5Cu00fcnger%2C%20Saskia%2C%20Tania%20Pastrana%2C%20Martina%20Pestinger%2C%20Martina%20Kern%2C%20Boris%20Zernikow%2C%20and%20Lukas%20Radbruch.%20%26quot%3B%26lt%3Ba%20class%3D%26%23039%3Bzp-ItemURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1186%5C%2F1472-684X-9-10%26%23039%3B%26gt%3BBarriers%20and%20needs%20in%20paediatric%20palliative%20home%20care%20in%20Germany%3A%20a%20qualitative%20interview%20study%20with%20professional%20experts%26lt%3B%5C%2Fa%26gt%3B.%26quot%3B%20%26lt%3Bi%26gt%3BBMC%20Palliative%20Care%26lt%3B%5C%2Fi%26gt%3B%209%2C%20no.%201%20%28June%202%2C%202010%29%3A%2010.%20%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Barriers%20and%20needs%20in%20paediatric%20palliative%20home%20care%20in%20Germany%3A%20a%20qualitative%20interview%20study%20with%20professional%20experts%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Saskia%22%2C%22lastName%22%3A%22J%5Cu00fcnger%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Tania%22%2C%22lastName%22%3A%22Pastrana%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Martina%22%2C%22lastName%22%3A%22Pestinger%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Martina%22%2C%22lastName%22%3A%22Kern%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Boris%22%2C%22lastName%22%3A%22Zernikow%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Lukas%22%2C%22lastName%22%3A%22Radbruch%22%7D%5D%2C%22abstractNote%22%3A%22In%20North-Rhine%20Westphalia%20%28Germany%29%20a%20pilot%20project%20for%20an%20extensive%20service%20provision%20of%20palliative%20care%20for%20children%20and%20adolescents%20has%20been%20implemented.%20Accompanying%20research%20was%20undertaken%20with%20the%20aim%20to%20assess%20the%20status%20quo%20of%20service%20delivery%20at%20the%20outset%20of%20the%20project%20and%20to%20evaluate%20the%20effects%20of%20the%20pilot%20project.%20As%20part%20of%20the%20research%2C%20barriers%20and%20needs%20with%20respect%20to%20paediatric%20palliative%20home%20care%20in%20the%20target%20region%20were%20explored.%22%2C%22date%22%3A%222010-06-02%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1186%5C%2F1472-684X-9-10%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22https%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1186%5C%2F1472-684X-9-10%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%221472-684X%22%2C%22language%22%3A%22en%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%2299FDCW4Z%22%2C%22I6PUATQS%22%2C%22P9CVNWVH%22%2C%22S488ZYK4%22%2C%22X7PUUBWP%22%5D%2C%22dateModified%22%3A%222021-03-23T15%3A57%3A18Z%22%7D%7D%2C%7B%22key%22%3A%22784WZYBE%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22J%5Cu00fcnger%20et%20al.%22%2C%22parsedDate%22%3A%222015%22%2C%22numChildren%22%3A1%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BJ%26%23xFC%3Bnger%2C%20Saskia%2C%20Jasper%20Klose%2C%20Sarah%20Brearley%2C%20Katalin%20Hegedus%2C%20Sheila%20Payne%2C%20and%20Lukas%20Radbruch.%20%26%23x201C%3BPalliative%20Care%20Information%20Needs%20in%20Central%20and%20Eastern%20Europe%20and%20the%20Commonwealth%20of%20Independent%20States.%26%23x201D%3B%20%26lt%3Bi%26gt%3BJournal%20of%20Palliative%20Care%26lt%3B%5C%2Fi%26gt%3B%2031%2C%20no.%202%20%282015%29%3A%20109%26%23x2013%3B17.%20%26lt%3Ba%20class%3D%26%23039%3Bzp-DOIURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1177%5C%2F082585971503100207%26%23039%3B%26gt%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1177%5C%2F082585971503100207%26lt%3B%5C%2Fa%26gt%3B.%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Palliative%20Care%20Information%20Needs%20in%20Central%20and%20Eastern%20Europe%20and%20the%20Commonwealth%20of%20Independent%20States%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Saskia%22%2C%22lastName%22%3A%22J%5Cu00fcnger%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Jasper%22%2C%22lastName%22%3A%22Klose%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Sarah%22%2C%22lastName%22%3A%22Brearley%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Katalin%22%2C%22lastName%22%3A%22Hegedus%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Sheila%22%2C%22lastName%22%3A%22Payne%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Lukas%22%2C%22lastName%22%3A%22Radbruch%22%7D%5D%2C%22abstractNote%22%3A%22In%20a%20cross-national%20survey%2C%20we%20examined%20the%20information%20needs%20and%20barriers%20to%20accessing%20palliative%20care%20information%20in%20Central%20and%20Eastern%20Europe%20%28CEE%29%20and%20the%20Commonwealth%20of%20Independent%20States%20%28CIS%29.%20In%20total%2C%20584%20healthcare%20professionals%20from%2022%20countries%20completed%20the%20questionnaire.%20Information%20on%20legislation%20and%20official%20papers%20%2867%20percent%29%20and%20information%20on%20education%20courses%20in%20palliative%20care%20%2865%20percent%29%20were%20the%20most%20frequently%20reported%20information%20needs.%20Major%20barriers%20to%20accessing%20palliative%20care%20information%20were%20language%20and%20a%20lack%20of%20easily%20accessible%20and%20affordable%2C%20clinically%20relevant%20information.%20An%20informative%20Web%20site%2C%20an%20electronic%20newsletter%2C%20and%20regular%20meetings%20or%20conferences%20were%20rated%20as%20the%20most%20important%20information%20channels.%20We%20concluded%20that%20access%20to%20reliable%20and%20well-structured%20information%20should%20be%20facilitated%20for%20healthcare%20professionals%20in%20CEE%20and%20CIS%20countries%20to%20assist%20them%20in%20their%20clinical%20decision%20making.%20Most%20importantly%2C%20more%20in-depth%20qualitative%20research%20and%20dialogue%20with%20stakeholders%20in%20the%20different%20countries%20are%20needed%20to%20develop%20context-specific%2C%20tailor-made%20strategies.%22%2C%22date%22%3A%222015%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1177%5C%2F082585971503100207%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%220825-8597%22%2C%22language%22%3A%22eng%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%2299FDCW4Z%22%2C%22AQHM6PNY%22%2C%22I6PUATQS%22%2C%22S488ZYK4%22%2C%22X7PUUBWP%22%5D%2C%22dateModified%22%3A%222024-05-26T14%3A53%3A46Z%22%7D%7D%2C%7B%22key%22%3A%22G99UW4EE%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22J%5Cu00fcnger%20et%20al.%22%2C%22parsedDate%22%3A%222006-08-01%22%2C%22numChildren%22%3A1%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BJ%5Cu00fcnger%2C%20S%2C%20M%20Pestinger%2C%20Frank%20Elsner%2C%20Norbert%20Krumm%2C%20and%20Lukas%20Radbruch.%20%26quot%3B%26lt%3Ba%20class%3D%26%23039%3Bzp-ItemURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fwww.researchgate.net%5C%2Fpublication%5C%2F315072395_Erfolgskriterien_berufsgruppenubergreifender_Kooperation_im_Team_einer_Palliativstation%26%23039%3B%26gt%3BErfolgskriterien%20berufsgruppen%5Cu00fcbergreifender%20Kooperation%20im%20Team%20einer%20Palliativstation%26lt%3B%5C%2Fa%26gt%3B.%26quot%3B%20%26lt%3Bi%26gt%3BZeitschrift%20f%5Cu00fcr%20Palliativmedizin%26lt%3B%5C%2Fi%26gt%3B%207%20%28August%201%2C%202006%29.%20https%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1055%5C%2Fs-2006-954097.%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Erfolgskriterien%20berufsgruppen%5Cu00fcbergreifender%20Kooperation%20im%20Team%20einer%20Palliativstation%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22S%22%2C%22lastName%22%3A%22J%5Cu00fcnger%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22M%22%2C%22lastName%22%3A%22Pestinger%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Frank%22%2C%22lastName%22%3A%22Elsner%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Norbert%22%2C%22lastName%22%3A%22Krumm%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Lukas%22%2C%22lastName%22%3A%22Radbruch%22%7D%5D%2C%22abstractNote%22%3A%22%22%2C%22date%22%3A%222006-08-01%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1055%5C%2Fs-2006-954097%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22https%3A%5C%2F%5C%2Fwww.researchgate.net%5C%2Fpublication%5C%2F315072395_Erfolgskriterien_berufsgruppenubergreifender_Kooperation_im_Team_einer_Palliativstation%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%22%22%2C%22language%22%3A%22de%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%2299FDCW4Z%22%2C%22I2KQCY6E%22%2C%22I6PUATQS%22%2C%22P9CVNWVH%22%2C%22X7PUUBWP%22%5D%2C%22dateModified%22%3A%222024-05-26T16%3A47%3A39Z%22%7D%7D%2C%7B%22key%22%3A%22LMJNA375%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22J%5Cu00fcnger%20et%20al.%22%2C%22parsedDate%22%3A%222007-07-01%22%2C%22numChildren%22%3A1%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BJ%5Cu00fcnger%2C%20S%2C%20M%20Pestinger%2C%20Frank%20Elsner%2C%20Norbert%20Krumm%2C%20and%20Lukas%20Radbruch.%20%26quot%3B%26lt%3Ba%20class%3D%26%23039%3Bzp-ItemURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fwww.researchgate.net%5C%2Fpublication%5C%2F6183248_Criteria_for_successful_multiprofessional_cooperation_in_palliative_care_teams%26%23039%3B%26gt%3BCriteria%20for%20successful%20multiprofessional%20cooperation%20in%20palliative%20care%20teams%26lt%3B%5C%2Fa%26gt%3B.%26quot%3B%20%26lt%3Bi%26gt%3BPalliative%20medicine%26lt%3B%5C%2Fi%26gt%3B%2021%20%28July%201%2C%202007%29%3A%20347%5Cu201354.%20https%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1177%5C%2F0269216307078505.%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Criteria%20for%20successful%20multiprofessional%20cooperation%20in%20palliative%20care%20teams%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22S%22%2C%22lastName%22%3A%22J%5Cu00fcnger%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22M%22%2C%22lastName%22%3A%22Pestinger%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Frank%22%2C%22lastName%22%3A%22Elsner%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Norbert%22%2C%22lastName%22%3A%22Krumm%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Lukas%22%2C%22lastName%22%3A%22Radbruch%22%7D%5D%2C%22abstractNote%22%3A%22Team%20work%20is%20considered%20a%20central%20component%20of%20palliative%20care.%20Within%20this%20comparatively%20young%20field%20of%20medicine%2C%20the%20emergence%20of%20new%20institutions%20%28eg%2C%20palliative%20care%20units%29%20highlights%20the%20challenge%20of%20establishing%20a%20completely%20new%20team.%5CnThis%20study%20focuses%20on%20the%20factors%2C%20which%20enhance%20both%20the%20success%20and%20outcome%20criteria%20of%20good%20team%20work%20from%20the%20perception%20of%20team%20members%20in%20a%20palliative%20care%20unit.%20The%20palliative%20care%20team%20at%20the%20University%20Hospital%20of%20Aachen%20%28n%20%3D%2019%29%20was%20interviewed%201%20year%20after%20the%20unit%26%23039%3Bs%20startup%20by%20the%20means%20of%20semistructured%20interviews.%20Interview%20texts%20were%20analysed%20using%20qualitative%20content%20analysis.%5CnFactors%20crucial%20to%20cooperation%20in%20the%20team%20members%26%23039%3B%20views%20were%20close%20communication%2C%20team%20philosophy%2C%20good%20interpersonal%20relationships%2C%20high%20team%20commitment%2C%20autonomy%20and%20the%20ability%20to%20deal%20with%20death%20and%20dying.%20Moreover%2C%20close%20communication%20was%20by%20far%20the%20most%20frequently%20mentioned%20criteria%20for%20cooperation.%20Team%20performance%2C%20good%20coordination%20of%20workflow%20and%20mutual%20trust%20underpin%20the%20evaluation%20of%20efficient%20team%20work.%20Inefficient%20team%20work%20is%20associated%20with%20the%20absence%20of%20clear%20goals%2C%20tasks%20and%20role%20delegation%2C%20as%20well%20as%20a%20lack%20of%20team%20commitment.%20Conclusion%3A%20In%20a%20new%20team%2C%20close%20communication%20is%20particularly%20important%20for%20staff%20as%20they%20reorientate%20themselves%20to%20the%20dynamics%20of%20a%20new%20peer%20group.%20The%20results%20confirm%20the%20overwhelming%20importance%20of%20clarity%2C%20commitment%20and%20close%2C%20positive%20exchange%20among%20team%20members%20for%20successful%20team%20work.%22%2C%22date%22%3A%222007-07-01%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1177%5C%2F0269216307078505%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22https%3A%5C%2F%5C%2Fwww.researchgate.net%5C%2Fpublication%5C%2F6183248_Criteria_for_successful_multiprofessional_cooperation_in_palliative_care_teams%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%22%22%2C%22language%22%3A%22de%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%2299FDCW4Z%22%2C%22I2KQCY6E%22%2C%22I6PUATQS%22%2C%22QXIGN3AI%22%2C%22SPWXRLZV%22%2C%22X7PUUBWP%22%5D%2C%22dateModified%22%3A%222024-05-24T13%3A25%3A15Z%22%7D%7D%2C%7B%22key%22%3A%22I6BMDGCG%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22J%5Cu00fcnger%20et%20al.%22%2C%22parsedDate%22%3A%222016-09%22%2C%22numChildren%22%3A0%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BJ%5Cu00fcnger%2C%20S.%2C%20S.%20A.%20Payne%2C%20J.%20Brine%2C%20L.%20Radbruch%2C%20and%20S.%20G.%20Brearley.%20%26quot%3B%26lt%3Ba%20class%3D%26%23039%3Bzp-ItemURL%26%23039%3B%20href%3D%26%23039%3Bhttp%3A%5C%2F%5C%2Fwww.thieme-connect.de%5C%2FDOI%5C%2FDOI%3F10.1055%5C%2Fs-0036-1594187%26%23039%3B%26gt%3BVerwendung%20der%20Delphi-Technik%20zur%20Entwicklung%20von%20Best-Practice-Leitlinien%20in%20der%20Palliativversorgung%20%5Cu2013%20eine%20methodologische%20systematische%20%5Cu00dcbersichtsarbeit%26lt%3B%5C%2Fa%26gt%3B.%26quot%3B%20In%20%26lt%3Bi%26gt%3BZeitschrift%20f%5Cu00fcr%20Palliativmedizin%26lt%3B%5C%2Fi%26gt%3B%2C%2017%3AP174.%20Georg%20Thieme%20Verlag%20KG%2C%202016.%20https%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1055%5C%2Fs-0036-1594187.%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22conferencePaper%22%2C%22title%22%3A%22Verwendung%20der%20Delphi-Technik%20zur%20Entwicklung%20von%20Best-Practice-Leitlinien%20in%20der%20Palliativversorgung%20%5Cu2013%20eine%20methodologische%20systematische%20%5Cu00dcbersichtsarbeit%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22S.%22%2C%22lastName%22%3A%22J%5Cu00fcnger%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22S.%20A.%22%2C%22lastName%22%3A%22Payne%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22J.%22%2C%22lastName%22%3A%22Brine%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22L.%22%2C%22lastName%22%3A%22Radbruch%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22S.%20G.%22%2C%22lastName%22%3A%22Brearley%22%7D%5D%2C%22abstractNote%22%3A%22Thieme%20E-Books%20%26amp%3B%20E-Journals%22%2C%22proceedingsTitle%22%3A%22Zeitschrift%20f%5Cu00fcr%20Palliativmedizin%22%2C%22conferenceName%22%3A%2211.%20Kongress%20der%20Deutschen%20Gesellschaft%20f%5Cu00fcr%20Palliativmedizin%22%2C%22date%22%3A%222016%5C%2F09%22%2C%22eventPlace%22%3A%22%22%2C%22DOI%22%3A%2210.1055%5C%2Fs-0036-1594187%22%2C%22ISBN%22%3A%22%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22http%3A%5C%2F%5C%2Fwww.thieme-connect.de%5C%2FDOI%5C%2FDOI%3F10.1055%5C%2Fs-0036-1594187%22%2C%22ISSN%22%3A%22%22%2C%22language%22%3A%22de%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%224KVK6YUS%22%2C%2299FDCW4Z%22%2C%22I6PUATQS%22%2C%22SPWXRLZV%22%5D%2C%22dateModified%22%3A%222021-03-23T15%3A57%3A04Z%22%7D%7D%2C%7B%22key%22%3A%22HTFJFB24%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22J%5Cu00fcnger%20et%20al.%22%2C%22parsedDate%22%3A%222016-09-21%22%2C%22numChildren%22%3A1%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BJ%5Cu00fcnger%2C%20Saskia%2C%20Nils%20Schneider%2C%20Birgitt%20Wiese%2C%20Jochen%20Vollmann%2C%20and%20Jan%20Schildmann.%20%26quot%3B%26lt%3Ba%20class%3D%26%23039%3Bzp-ItemURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fbooks.google.de%5C%2Fbooks%3Fhl%3Dde%26amp%3Blr%3D%26amp%3Bid%3Df2P2DwAAQBAJ%26amp%3Boi%3Dfnd%26amp%3Bpg%3DPA253%26amp%3Bdq%3D%2522Saskia%2BJ%25C3%25BCnger%2522%26amp%3Bots%3DwjCG22yGS7%26amp%3Bsig%3Dl3MeBW8ro66VEfNN3N1ZFqZgHAw%23v%3Donepage%26amp%3Bq%3D%2522Saskia%2520J%25C3%25BCnger%2522%26amp%3Bf%3Dfalse%26%23039%3B%26gt%3BPalliativversorgung%20und%20Sterbehilfe%26lt%3B%5C%2Fa%26gt%3B.%26quot%3B%20In%20%26lt%3Bi%26gt%3BGesundheitsmonitor%202016%3A%20B%5Cu00fcrgerorientierung%20im%20Gesundheitswesen%26lt%3B%5C%2Fi%26gt%3B%2C%20253%20ff.%20G%5Cu00fctersloh%3A%20Verlag%20Bertelsmann%20Stiftung%2C%202016.%20%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22bookSection%22%2C%22title%22%3A%22Palliativversorgung%20und%20Sterbehilfe%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Saskia%22%2C%22lastName%22%3A%22J%5Cu00fcnger%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Nils%22%2C%22lastName%22%3A%22Schneider%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Birgitt%22%2C%22lastName%22%3A%22Wiese%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Jochen%22%2C%22lastName%22%3A%22Vollmann%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Jan%22%2C%22lastName%22%3A%22Schildmann%22%7D%5D%2C%22abstractNote%22%3A%22Der%20Gesundheitsmonitor%20informiert%20seit%2015%20Jahren%20aus%20der%20Perspektive%20von%20Versicherten%20und%20Patienten%20%5Cu00fcber%20den%20Status%20quo%20und%20die%20Defizite%20in%20der%20deutschen%20Gesundheitsversorgung.%20Die%20Grundlage%20bilden%20repr%5Cu00e4sentative%20Befragungen%20der%20deutschen%20Bev%5Cu00f6lkerung%2C%20die%20durch%20Sonderbefragungen%20von%20BARMER%20GEK-Versicherten%20erg%5Cu00e4nzt%20werden.%20Die%20Ergebnisse%20helfen%2C%20gesundheitspolitische%20Informationsl%5Cu00fccken%20zu%20schlie%5Cu00dfen%20und%20Reformkonzepte%20zu%20entwickeln%2C%20die%20von%20den%20Versicherten%20mitgetragen%20werden.%20Der%20diesj%5Cu00e4hrige%20Gesundheitsmonitor%20umfasst%20ein%20breites%20Themenspektrum.%20Den%20Ausgangspunkt%20bilden%20%5Cu00dcberblicksbeitr%5Cu00e4ge%2C%20die%20den%20Blick%20der%20Bev%5Cu00f6lkerung%20sowohl%20auf%20das%20Gesundheitssystem%20als%20Ganzes%20als%20auch%20speziell%20auf%20die%20haus%5Cu00e4rztliche%20Versorgung%20umfassen.%20Es%20folgen%20Beitr%5Cu00e4ge%20zu%20zentralen%20Reformthemen%3A%20dem%20%5Cu00c4rztemangel%20auf%20dem%20Land%2C%20dem%20Patientenrechtegesetz%2C%20der%20elektronischen%20Gesundheitskarte%2C%20dem%20Zweitmeinungsverfahren%20sowie%20zu%20Palliativversorgung%20und%20Sterbehilfe.%20Indikationsspezifische%20Artikel%20besch%5Cu00e4ftigen%20sich%20mit%20der%20kieferorthop%5Cu00e4dischen%20Versorgung%2C%20der%20Darmkrebsfr%5Cu00fcherkennung%20sowie%20mit%20Notfalldiagnosen%20im%20Krankenhaus%20am%20Beispiel%20der%20R%5Cu00fccken-OP.%20Analysen%20auf%20Basis%20einer%20%5Cu00c4rztebefragung%20gehen%20der%20Frage%20nach%20dem%20Umgang%20von%20%5Cu00c4rzten%20mit%20informierten%20Patienten%20nach%2C%20bevor%20abschlie%5Cu00dfend%20das%20Thema%20Gesundheits%5Cu00e4ngste%20behandelt%20wird.%22%2C%22bookTitle%22%3A%22Gesundheitsmonitor%202016%3A%20B%5Cu00fcrgerorientierung%20im%20Gesundheitswesen%22%2C%22date%22%3A%222016-09-21%22%2C%22originalDate%22%3A%22%22%2C%22originalPublisher%22%3A%22%22%2C%22originalPlace%22%3A%22%22%2C%22format%22%3A%22%22%2C%22ISBN%22%3A%22978-3-86793-775-7%22%2C%22DOI%22%3A%22%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22https%3A%5C%2F%5C%2Fbooks.google.de%5C%2Fbooks%3Fhl%3Dde%26lr%3D%26id%3Df2P2DwAAQBAJ%26oi%3Dfnd%26pg%3DPA253%26dq%3D%2522Saskia%2BJ%25C3%25BCnger%2522%26ots%3DwjCG22yGS7%26sig%3Dl3MeBW8ro66VEfNN3N1ZFqZgHAw%23v%3Donepage%26q%3D%2522Saskia%2520J%25C3%25BCnger%2522%26f%3Dfalse%22%2C%22ISSN%22%3A%22%22%2C%22language%22%3A%22de%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%2299FDCW4Z%22%2C%22BEQ38XPW%22%2C%22I6PUATQS%22%2C%22S488ZYK4%22%2C%22SPWXRLZV%22%2C%22W637CI9M%22%5D%2C%22dateModified%22%3A%222024-05-15T14%3A17%3A36Z%22%7D%7D%2C%7B%22key%22%3A%22539U4CI4%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22J%5Cu00fcnger%20et%20al.%22%2C%22parsedDate%22%3A%222016-12-13%22%2C%22numChildren%22%3A1%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BJ%5Cu00fcnger%2C%20S%2C%20N%20Schneider%2C%20Birgitt%20Wiese%2C%20Jochen%20Vollmann%2C%20and%20J%20Schildmann.%20%26quot%3B%26lt%3Ba%20class%3D%26%23039%3Bzp-ItemURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fwww.researchgate.net%5C%2Fpublication%5C%2F311622841_Haltungen_zur_Palliativversorgung_und_zur_arztlich_assistierten_Selbsttotung_-_eine_reprasentative_Bevolkerungsumfrage%26%23039%3B%26gt%3BHaltungen%20zur%20Palliativversorgung%20und%20zur%20%5Cu00e4rztlich%20assistierten%20Selbstt%5Cu00f6tung%20%5Cu2013%20eine%20repr%5Cu00e4sentative%20Bev%5Cu00f6lkerungsumfrage%26lt%3B%5C%2Fa%26gt%3B.%26quot%3B%20%26lt%3Bi%26gt%3BZeitschrift%20f%5Cu00fcr%20Palliativmedizin%26lt%3B%5C%2Fi%26gt%3B%2017%20%28December%2013%2C%202016%29%3A%201%5Cu201359.%20https%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1055%5C%2Fs-0036-1594155.%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Haltungen%20zur%20Palliativversorgung%20und%20zur%20%5Cu00e4rztlich%20assistierten%20Selbstt%5Cu00f6tung%20%5Cu2013%20eine%20repr%5Cu00e4sentative%20Bev%5Cu00f6lkerungsumfrage%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22S%22%2C%22lastName%22%3A%22J%5Cu00fcnger%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22N%22%2C%22lastName%22%3A%22Schneider%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Birgitt%22%2C%22lastName%22%3A%22Wiese%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Jochen%22%2C%22lastName%22%3A%22Vollmann%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22J%22%2C%22lastName%22%3A%22Schildmann%22%7D%5D%2C%22abstractNote%22%3A%22%22%2C%22date%22%3A%222016-12-13%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1055%5C%2Fs-0036-1594155%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22https%3A%5C%2F%5C%2Fwww.researchgate.net%5C%2Fpublication%5C%2F311622841_Haltungen_zur_Palliativversorgung_und_zur_arztlich_assistierten_Selbsttotung_-_eine_reprasentative_Bevolkerungsumfrage%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%22%22%2C%22language%22%3A%22de%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%2299FDCW4Z%22%2C%22I6PUATQS%22%2C%22SPWXRLZV%22%2C%22X7PUUBWP%22%5D%2C%22dateModified%22%3A%222024-06-06T03%3A43%3A34Z%22%7D%7D%2C%7B%22key%22%3A%22H84AJVH5%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22J%5Cu00fcnger%20et%20al.%22%2C%22parsedDate%22%3A%222008-09-01%22%2C%22numChildren%22%3A1%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BJ%5Cu00fcnger%2C%20S%2C%20Andrea%20Vedder%2C%20Tania%20Pastrana%2C%20M%20Pestinger%2C%20and%20Lukas%20Radbruch.%20%26quot%3B%26lt%3Ba%20class%3D%26%23039%3Bzp-ItemURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fwww.researchgate.net%5C%2Fpublication%5C%2F240951556_Ambulante_padiatrische_Palliativversorgung_durch_niedergelassene_Kinder_und_Jugendarzte%26%23039%3B%26gt%3BAmbulante%20p%5Cu00e4diatrische%20Palliativversorgung%20durch%20niedergelassene%20Kinder%20und%20Jugend%5Cu00e4rzte%26lt%3B%5C%2Fa%26gt%3B.%26quot%3B%20%26lt%3Bi%26gt%3BZeitschrift%20f%5Cu00fcr%20Palliativmedizin%26lt%3B%5C%2Fi%26gt%3B%209%20%28September%201%2C%202008%29.%20https%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1055%5C%2Fs-0028-1088458.%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Ambulante%20p%5Cu00e4diatrische%20Palliativversorgung%20durch%20niedergelassene%20Kinder%20und%20Jugend%5Cu00e4rzte%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22S%22%2C%22lastName%22%3A%22J%5Cu00fcnger%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Andrea%22%2C%22lastName%22%3A%22Vedder%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Tania%22%2C%22lastName%22%3A%22Pastrana%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22M%22%2C%22lastName%22%3A%22Pestinger%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Lukas%22%2C%22lastName%22%3A%22Radbruch%22%7D%5D%2C%22abstractNote%22%3A%22%22%2C%22date%22%3A%222008-09-01%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1055%5C%2Fs-0028-1088458%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22https%3A%5C%2F%5C%2Fwww.researchgate.net%5C%2Fpublication%5C%2F240951556_Ambulante_padiatrische_Palliativversorgung_durch_niedergelassene_Kinder_und_Jugendarzte%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%22%22%2C%22language%22%3A%22de%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%2299FDCW4Z%22%2C%22I6PUATQS%22%2C%22S488ZYK4%22%2C%22SPWXRLZV%22%2C%22X7PUUBWP%22%5D%2C%22dateModified%22%3A%222024-05-24T10%3A13%3A56Z%22%7D%7D%2C%7B%22key%22%3A%22Z7ARM7HC%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22J%5Cu00fcnger%20et%20al.%22%2C%22parsedDate%22%3A%222013-05-21%22%2C%22numChildren%22%3A1%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BJ%5Cu00fcnger%2C%20Saskia%2C%20Sarah%20Brearley%2C%20Sheila%20Payne%2C%20Aukje%20Mantel-Teeuwisse%2C%20Thomas%20Lynch%2C%20Willem%20Scholten%2C%20and%20Lukas%20Radbruch.%20%26quot%3B%26lt%3Ba%20class%3D%26%23039%3Bzp-ItemURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fwww.researchgate.net%5C%2Fpublication%5C%2F236938054_Consensus_Building_on_Access_to_Controlled_Medicines_A_Four-Stage_Delphi_Consensus_Procedure%26%23039%3B%26gt%3BConsensus%20Building%20on%20Access%20to%20Controlled%20Medicines%3A%20A%20Four-Stage%20Delphi%20Consensus%20Procedure%26lt%3B%5C%2Fa%26gt%3B.%26quot%3B%20%26lt%3Bi%26gt%3BJournal%20of%20Pain%20and%20Symptom%20Management%26lt%3B%5C%2Fi%26gt%3B%2046%20%28May%2021%2C%202013%29.%20https%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1016%5C%2Fj.jpainsymman.2013.01.014.%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Consensus%20Building%20on%20Access%20to%20Controlled%20Medicines%3A%20A%20Four-Stage%20Delphi%20Consensus%20Procedure%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Saskia%22%2C%22lastName%22%3A%22J%5Cu00fcnger%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Sarah%22%2C%22lastName%22%3A%22Brearley%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Sheila%22%2C%22lastName%22%3A%22Payne%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Aukje%22%2C%22lastName%22%3A%22Mantel-Teeuwisse%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Thomas%22%2C%22lastName%22%3A%22Lynch%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Willem%22%2C%22lastName%22%3A%22Scholten%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Lukas%22%2C%22lastName%22%3A%22Radbruch%22%7D%5D%2C%22abstractNote%22%3A%22Context%3A%20%5CnIn%202011%2C%20the%20World%20Health%20Organization%20%28WHO%29%20published%20the%20policy%20guidelines%20Ensuring%20Balance%20in%20National%20Controlled%20Substances%20Policies-Guidance%20for%20Availability%20and%20Accessibility%20of%20Controlled%20Medicines%2C%20presenting%20a%20revised%20version%20of%20the%20previous%20guidelines%20from%202000.%5Cn%5CnObjectives%3A%5CnTo%20describe%20the%20consensus%20process%20that%20guided%20the%20revision%20of%20the%20guidelines.%5Cn%5CnMethods%3A%5CnA%20four-stage%20revision%20process%20was%20undertaken%20with%20a%20panel%20of%2029%20international%20experts%20from%20palliative%20care%2C%20public%20health%2C%20and%20harm%20reduction%3A%201%29%20a%20qualitative%20inventory%20of%20required%20changes%20by%20means%20of%20a%20structured%20checklist%2C%202%29%20%26amp%3B%203%29%20a%20two-round%20online%20consensus%20Delphi%20process%20about%20the%20draft%20revision%20of%20the%20guidelines%2C%20and%204%29%20a%20WHO%20advisory%20meeting%20for%20the%20discussion%20of%20remaining%20controversies%20and%20final%20issues.%5Cn%5CnResults%3A%5CnThe%20qualitative%20inventory%20resulted%20in%20a%20draft%20revision%20of%20the%20guidelines%20meeting%20requirements%20on%20different%20levels%2C%20such%20as%20a%20broader%20focus%20and%20more%20accurate%20evidence.%20Operationalization%20of%20the%20guidelines%20was%20improved%20by%20specifying%20measures%2C%20procedures%2C%20and%20responsibilities.%20The%20Delphi%20procedure%20provided%20concrete%20indications%20for%20the%20rewording%20of%20both%20the%20guidelines%20and%20the%20associated%20text.%20During%20the%20advisory%20meeting%2C%20any%20persistent%20disagreements%20were%20systematically%20discussed%20to%20achieve%20consensus%20on%20the%20new%20version%20of%20the%20guidelines.%5Cn%5CnConclusion%3A%5CnThe%20four-stage%20multimethod%20consensus%20process%20resulted%20in%20a%20substantial%20revision%20to%20the%20WHO%20guidelines.%20This%20takes%20into%20account%20the%20increase%20in%20knowledge%20about%20opioid%20medication%20since%20the%20first%20edition%20of%20the%20guidelines.%20Disagreement%20emerging%20from%20the%20process%20underlines%20the%20complexity%20of%20preparing%20guidance%20because%20of%20the%20delicate%20balance%20between%20need%20and%20control.%22%2C%22date%22%3A%222013-05-21%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1016%5C%2Fj.jpainsymman.2013.01.014%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22https%3A%5C%2F%5C%2Fwww.researchgate.net%5C%2Fpublication%5C%2F236938054_Consensus_Building_on_Access_to_Controlled_Medicines_A_Four-Stage_Delphi_Consensus_Procedure%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%22%22%2C%22language%22%3A%22en%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%2299FDCW4Z%22%2C%22I6PUATQS%22%2C%22IE7JTZ2W%22%2C%22JL4N5KDE%22%2C%22SPWXRLZV%22%2C%22X7PUUBWP%22%5D%2C%22dateModified%22%3A%222025-05-18T07%3A46%3A46Z%22%7D%7D%2C%7B%22key%22%3A%228BAWSC4S%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22J%5Cu00fcnger%20et%20al.%22%2C%22parsedDate%22%3A%222017-02-13%22%2C%22numChildren%22%3A1%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BJ%5Cu00fcnger%2C%20Saskia%2C%20Sheila%20Payne%2C%20Jenny%20Brine%2C%20Lukas%20Radbruch%2C%20and%20Sarah%20Brearley.%20%26quot%3B%26lt%3Ba%20class%3D%26%23039%3Bzp-ItemURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fwww.researchgate.net%5C%2Fpublication%5C%2F313684990_Guidance_on_Conducting_and_REporting_DElphi_Studies_CREDES_in_palliative_care_Recommendations_based_on_a_methodological_systematic_review%26%23039%3B%26gt%3BGuidance%20on%20Conducting%20and%20REporting%20DElphi%20Studies%20%28CREDES%29%20in%20palliative%20care%3A%20Recommendations%20based%20on%20a%20methodological%20systematic%20review%26lt%3B%5C%2Fa%26gt%3B.%26quot%3B%20%26lt%3Bi%26gt%3BPalliative%20Medicine%26lt%3B%5C%2Fi%26gt%3B%2031%20%28February%2013%2C%202017%29%3A%20026921631769068.%20https%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1177%5C%2F0269216317690685.%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Guidance%20on%20Conducting%20and%20REporting%20DElphi%20Studies%20%28CREDES%29%20in%20palliative%20care%3A%20Recommendations%20based%20on%20a%20methodological%20systematic%20review%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Saskia%22%2C%22lastName%22%3A%22J%5Cu00fcnger%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Sheila%22%2C%22lastName%22%3A%22Payne%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Jenny%22%2C%22lastName%22%3A%22Brine%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Lukas%22%2C%22lastName%22%3A%22Radbruch%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Sarah%22%2C%22lastName%22%3A%22Brearley%22%7D%5D%2C%22abstractNote%22%3A%22Background%3A%20%5CnThe%20Delphi%20technique%20is%20widely%20used%20for%20the%20development%20of%20guidance%20in%20palliative%20care%2C%20having%20impact%20on%20decisions%20with%20relevance%20for%20patient%20care.%5Cn%5CnAim%3A%5CnTo%20systematically%20examine%20the%20application%20of%20the%20Delphi%20technique%20for%20the%20development%20of%20best%20practice%20guidelines%20in%20palliative%20care.%5Cn%5CnDesign%3A%5CnA%20methodological%20systematic%20review%20was%20undertaken%20using%20the%20databases%20PubMed%2C%20CINAHL%2C%20Web%20of%20Science%2C%20Academic%20Search%20Complete%20and%20EMBASE.%5Cn%5CnData%20sources%3A%5CnOriginal%20articles%20%28English%20language%29%20were%20included%20when%20reporting%20on%20empirical%20studies%20that%20had%20used%20the%20Delphi%20technique%20to%20develop%20guidance%20for%20good%20clinical%20practice%20in%20palliative%20care.%20Data%20extraction%20included%20a%20quality%20appraisal%20on%20the%20rigour%20in%20conduct%20of%20the%20studies%20and%20the%20quality%20of%20reporting.%5Cn%5CnResults%3A%5CnA%20total%20of%2030%20empirical%20studies%20%281997-2015%29%20were%20considered%20for%20full-text%20analysis.%20Considerable%20differences%20were%20identified%20regarding%20the%20rigour%20of%20the%20design%20and%20the%20reporting%20of%20essential%20process%20and%20outcome%20parameters.%20Furthermore%2C%20discrepancies%20regarding%20the%20use%20of%20terms%20for%20describing%20the%20method%20were%20observed%2C%20for%20example%2C%20concerning%20the%20understanding%20of%20a%20%26%23039%3Bround%26%23039%3B%20or%20a%20%26%23039%3Bmodified%20Delphi%20study%26%23039%3B.%5Cn%5CnConclusion%3A%5CnSubstantial%20variation%20was%20found%20concerning%20the%20quality%20of%20the%20study%20conduct%20and%20the%20transparency%20of%20reporting%20of%20Delphi%20studies%20used%20for%20the%20development%20of%20best%20practice%20guidance%20in%20palliative%20care.%20Since%20credibility%20of%20the%20resulting%20recommendations%20depends%20on%20the%20rigorous%20use%20of%20the%20Delphi%20technique%2C%20there%20is%20a%20need%20for%20consistency%20and%20quality%20both%20in%20the%20conduct%20and%20reporting%20of%20studies.%20To%20allow%20a%20critical%20appraisal%20of%20the%20methodology%20and%20the%20resulting%20guidance%2C%20a%20reporting%20standard%20for%20Conducting%20and%20REporting%20of%20DElphi%20Studies%20%28CREDES%29%20is%20proposed.%22%2C%22date%22%3A%222017-02-13%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1177%5C%2F0269216317690685%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22https%3A%5C%2F%5C%2Fwww.researchgate.net%5C%2Fpublication%5C%2F313684990_Guidance_on_Conducting_and_REporting_DElphi_Studies_CREDES_in_palliative_care_Recommendations_based_on_a_methodological_systematic_review%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%22%22%2C%22language%22%3A%22en%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%2299FDCW4Z%22%2C%22I6PUATQS%22%2C%22SPWXRLZV%22%2C%22X7PUUBWP%22%5D%2C%22dateModified%22%3A%222025-05-18T07%3A47%3A30Z%22%7D%7D%2C%7B%22key%22%3A%22S5SN3R4E%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Kasdorf%20et%20al.%22%2C%22parsedDate%22%3A%222022%22%2C%22numChildren%22%3A1%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BKasdorf%2C%20Alina%2C%20Gloria%20Dust%2C%20Nicolas%20Schippel%2C%20Holger%20Pfaff%2C%20Christian%20Rietz%2C%20Raymond%20Voltz%2C%20Julia%20Strupp%2C%20and%20And%20on%20Behalf%20Of%20CoRe-Net.%20%26quot%3B%26lt%3Ba%20class%3D%26%23039%3Bzp-ItemURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fonlinelibrary.wiley.com%5C%2Fdoi%5C%2Fabs%5C%2F10.1111%5C%2Fecc.13683%26%23039%3B%26gt%3BDying%20in%20hospital%20is%20worse%20for%20non-cancer%20patients.%20A%20regional%20cross-sectional%20survey%20of%20bereaved%20relatives%26%23039%3B%20views%26lt%3B%5C%2Fa%26gt%3B.%26quot%3B%20%26lt%3Bi%26gt%3BEuropean%20Journal%20of%20Cancer%20Care%26lt%3B%5C%2Fi%26gt%3B%2031%2C%20no.%206%20%282022%29%3A%20e13683.%20https%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1111%5C%2Fecc.13683.%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Dying%20in%20hospital%20is%20worse%20for%20non-cancer%20patients.%20A%20regional%20cross-sectional%20survey%20of%20bereaved%20relatives%27%20views%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Alina%22%2C%22lastName%22%3A%22Kasdorf%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Gloria%22%2C%22lastName%22%3A%22Dust%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Nicolas%22%2C%22lastName%22%3A%22Schippel%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Holger%22%2C%22lastName%22%3A%22Pfaff%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Christian%22%2C%22lastName%22%3A%22Rietz%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Raymond%22%2C%22lastName%22%3A%22Voltz%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Julia%22%2C%22lastName%22%3A%22Strupp%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22And%20on%20Behalf%20Of%22%2C%22lastName%22%3A%22CoRe-Net%22%7D%5D%2C%22abstractNote%22%3A%22Objective%20The%20aim%20of%20the%20study%20is%20to%20examine%20differences%20in%20hospital%20care%20between%20patients%20with%20cancer%20and%20non-cancer%20conditions%20in%20their%20dying%20phase%2C%20perceived%20by%20bereaved%20relatives.%20Methods%20A%20retrospective%20cross-sectional%20post-bereavement%20survey%2C%20with%20the%20total%20population%20of%20351%20deceased%2C%2091%20cancer%20patients%20and%2046%20non-cancer%20patients%2C%20who%20spent%20their%20last%202%20days%20of%20life%20in%20hospital.%20A%20validated%20German%20version%20of%20the%20VOICES-questionnaire%20%28%5Cu2018VOICES-LYOL-Cologne%5Cu2019%29%20was%20used.%20Results%20There%20were%20substantial%20differences%20between%20the%20two%20groups%20in%20the%20rating%20of%20sufficient%20practical%20care%20such%20as%20pain%20relief%20or%20support%20to%20eat%20or%20drink%20%28p%20%3D%200.005%29%20and%20sufficient%20emotional%20care%20needs%20%28p%20%3D%200.006%29%20and%20in%20the%20quality%20of%20communication%20with%20healthcare%20professionals%20%28p%20%26lt%3B%200.001%29%2C%20with%20non-cancer%20patients%20scoring%20lowest%20in%20all%20these%20dimensions.%20Conclusion%20In%20all%20surveyed%20dimensions%20on%20the%20quality%20of%20care%20in%20the%20dying%20phase%2C%20non-cancer%20patients%26%23039%3B%20relatives%20rated%20the%20provided%20care%20worse%20than%20those%20of%20cancer%20patients.%20To%20compensate%20any%20differences%20in%20care%20in%20the%20dying%20phase%20between%20diagnosis%20groups%2C%20hospital%20care%20should%20be%20provided%20as%20needs-oriented%20and%20non-indication-specific.%22%2C%22date%22%3A%222022%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1111%5C%2Fecc.13683%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22https%3A%5C%2F%5C%2Fonlinelibrary.wiley.com%5C%2Fdoi%5C%2Fabs%5C%2F10.1111%5C%2Fecc.13683%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%221365-2354%22%2C%22language%22%3A%22en%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%2298J4DESJ%22%2C%2299FDCW4Z%22%2C%22NPCAGTXX%22%2C%22QXIGN3AI%22%2C%22SPWXRLZV%22%2C%22W637CI9M%22%5D%2C%22dateModified%22%3A%222024-05-15T13%3A51%3A29Z%22%7D%7D%2C%7B%22key%22%3A%22JYVBAERJ%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Kasdorf%20et%20al.%22%2C%22parsedDate%22%3A%222022-06%22%2C%22numChildren%22%3A1%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BKasdorf%2C%20Alina%2C%20Gloria%20Dust%2C%20Stefanie%20Hamacher%2C%20Nicolas%20Schippel%2C%20Christian%20Rietz%2C%20Raymond%20Voltz%2C%20Julia%20Strupp%2C%20and%20CoRe-Net.%20%26%23x201C%3BThe%20Last%20Year%20of%20Life%20for%20Patients%20Dying%20from%20Cancer%20vs.%20Non-Cancer%20Causes%3A%20A%20Retrospective%20Cross-Sectional%20Survey%20of%20Bereaved%20Relatives.%26%23x201D%3B%20%26lt%3Bi%26gt%3BSupportive%20Care%20in%20Cancer%3A%20Official%20Journal%20of%20the%20Multinational%20Association%20of%20Supportive%20Care%20in%20Cancer%26lt%3B%5C%2Fi%26gt%3B%2030%2C%20no.%206%20%28June%202022%29%3A%204971%26%23x2013%3B79.%20%26lt%3Ba%20class%3D%26%23039%3Bzp-DOIURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1007%5C%2Fs00520-022-06908-8%26%23039%3B%26gt%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1007%5C%2Fs00520-022-06908-8%26lt%3B%5C%2Fa%26gt%3B.%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22The%20last%20year%20of%20life%20for%20patients%20dying%20from%20cancer%20vs.%20non-cancer%20causes%3A%20a%20retrospective%20cross-sectional%20survey%20of%20bereaved%20relatives%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Alina%22%2C%22lastName%22%3A%22Kasdorf%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Gloria%22%2C%22lastName%22%3A%22Dust%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Stefanie%22%2C%22lastName%22%3A%22Hamacher%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Nicolas%22%2C%22lastName%22%3A%22Schippel%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Christian%22%2C%22lastName%22%3A%22Rietz%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Raymond%22%2C%22lastName%22%3A%22Voltz%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Julia%22%2C%22lastName%22%3A%22Strupp%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22name%22%3A%22CoRe-Net%22%7D%5D%2C%22abstractNote%22%3A%22PURPOSE%3A%20To%20compare%20health%20care%20experiences%20of%20patients%20with%20cancer%20or%20non-cancer%20diseases%20in%20their%20last%20year%20of%20life.%5CnMETHODS%3A%20A%20cross-sectional%20post-bereavement%20survey%20was%20conducted%20using%20an%20adapted%20German%20version%20of%20the%20VOICES%20questionnaire%20%28VOICES-LYOL-Cologne%29.%20Differences%20in%20the%20reported%20experiences%20were%20assessed%20using%20a%20two-sided%20Pearson%26%23039%3Bs%20chi-square%20test%20and%20Mann-Whitney%20U%20test.%5CnRESULTS%3A%20We%20collected%20data%20from%20351%20bereaved%20relatives.%20More%20than%20half%20of%20non-cancer%20patients%20were%20not%20informed%20that%20their%20disease%20could%20lead%20to%20death%20%28p%5Cu2009%26lt%3B%5Cu20090.001%29.%20When%20this%20was%20communicated%2C%20in%2046.7%25%20of%20non-cancer%20and%2064.5%25%20of%20cancer%20patients%2C%20it%20was%20reported%20by%20the%20hospital%20doctor%20%28p%5Cu2009%3D%5Cu20090.050%29.%20In%20all%2C%2066.9%25%20of%20non-cancer%20and%2041.6%25%20of%20cancer%20patients%20were%20not%20informed%20about%20death%20being%20imminent%20%28p%5Cu2009%26lt%3B%5Cu20090.001%29.%20On%20average%2C%20non-cancer%20patients%20had%20significantly%20fewer%20transitions%20and%20hospital%20stays%20in%20their%20last%20year%20of%20life%20%28p%5Cu2009%3D%5Cu20090.014%3B%20p%5Cu2009%3D%5Cu20090.008%2C%20respectively%29.%20Non-cancer%20patients%20were%20treated%20more%20often%20by%20general%20practitioners%2C%20and%20cancer%20patients%20were%20treated%20more%20often%20by%20specialists%20%28p%5Cu2009%3D%5Cu20090.002%3B%20p%5Cu2009%3D%5Cu20090.002%2C%20respectively%29.%20A%20substantially%20lower%20proportion%20of%20non-cancer%20patients%20were%20treated%20by%20at%20least%20one%20member%20of%20or%20in%20the%20setting%20of%20general%20or%20specialized%20palliative%20care%20%28p%5Cu2009%26lt%3B%5Cu20090.001%29.%5CnCONCLUSIONS%3A%20Non-cancer%20patients%20experience%20disadvantages%20in%20communication%20regarding%20their%20care%20and%20in%20access%20to%20specialized%20palliative%20care%20in%20their%20last%20year%20of%20life%20compared%20to%20cancer%20patients.%20Regarding%20the%20assessment%20of%20palliative%20care%20needs%20and%20the%20lack%20of%20communication%20of%20an%20incurable%20disease%2C%20non-cancer%20patients%20are%20underserved.%20An%20early%20identification%20of%20patients%20requiring%20palliative%20care%20is%20a%20major%20public%20health%20concern%20and%20should%20be%20addressed%20irrespective%20of%20diagnosis.%5CnTRIAL%20REGISTRATION%3A%20Prospectively%20registered%20by%20the%20German%20Clinical%20Trials%20Register%20%28DRKS00011925%2C%20data%20of%20registration%3A%2013.06.2017%29.%22%2C%22date%22%3A%222022-06%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1007%5C%2Fs00520-022-06908-8%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%221433-7339%22%2C%22language%22%3A%22eng%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%2299FDCW4Z%22%2C%22NPCAGTXX%22%2C%22QXIGN3AI%22%2C%22SPWXRLZV%22%2C%22W637CI9M%22%5D%2C%22dateModified%22%3A%222024-05-16T06%3A39%3A12Z%22%7D%7D%2C%7B%22key%22%3A%22QZZ73S7R%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Klose%20et%20al.%22%2C%22parsedDate%22%3A%222012-09-05%22%2C%22numChildren%22%3A1%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BKlose%2C%20J%2C%20S%20J%5Cu00fcnger%2C%20Katalin%20Hegedus%2C%20Tom%20Lynch%2C%20A%20Greenwood%2C%20S%20Payne%2C%20and%20Lukas%20Radbruch.%20%26quot%3B%26lt%3Ba%20class%3D%26%23039%3Bzp-ItemURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fwww.thieme-connect.de%5C%2Fproducts%5C%2Fejournals%5C%2Fabstract%5C%2F10.1055%5C%2Fs-0032-1323126%26%23039%3B%26gt%3BInformationsbedarf%20zur%20Palliativversorgung%20in%20Mittel-%20und%20Osteuropa%20und%20der%20Gemeinschaft%20Unabh%5Cu00e4ngiger%20Staaten%26lt%3B%5C%2Fa%26gt%3B.%26quot%3B%20%26lt%3Bi%26gt%3BZeitschrift%20f%5Cu00fcr%20Palliativmedizin%26lt%3B%5C%2Fi%26gt%3B%2013%20%28September%205%2C%202012%29.%20https%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1055%5C%2Fs-0032-1323126.%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Informationsbedarf%20zur%20Palliativversorgung%20in%20Mittel-%20und%20Osteuropa%20und%20der%20Gemeinschaft%20Unabh%5Cu00e4ngiger%20Staaten%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22J%22%2C%22lastName%22%3A%22Klose%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22S%22%2C%22lastName%22%3A%22J%5Cu00fcnger%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Katalin%22%2C%22lastName%22%3A%22Hegedus%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Tom%22%2C%22lastName%22%3A%22Lynch%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22A%22%2C%22lastName%22%3A%22Greenwood%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22S%22%2C%22lastName%22%3A%22Payne%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Lukas%22%2C%22lastName%22%3A%22Radbruch%22%7D%5D%2C%22abstractNote%22%3A%22Fragestellung%3A%20Der%20Zugang%20zu%20Informationen%20wie%20medizinischen%20Fachzeitschriften%20sowie%20zu%20Bildungsmoglichkeiten%20wird%20fur%20qualitativ%20hochwertige%20Palliativversorgung%20%28PV%29%20als%20wesentlich%20erachtet.%20In%20vielen%20Landern%20ist%20der%20Zugang%20aufgrund%20von%20finanziellen%20Problemen%20und%20Sprachbarrieren%20schwierig.%20Um%20die%20Zugangsmoglichkeiten%20zu%20Informationen%20uber%20PV%20in%20Europa%20zu%20untersuchen%2C%20fuhrte%20die%20European%20Association%20for%20Palliative%20Care%20eine%20Umfrage%20zum%20Informationsbedarf%20in%2028%20Landern%20in%20Mittel-%20und%20Osteuropa%20%28MOEL%29%20sowie%20der%20Gemeinschaft%20Unabhangiger%20Staaten%20%28GUS%29%20durch.%20Methodik%3A%20Ein%20Fragebogen%20zum%20Informationsbedarf%20wurde%20in%20englischer%20Sprache%20entwickelt%20und%20von%20Ansprechpartnern%20in%20den%20Ziellandern%20in%2015%20verschiedene%20Sprachen%20ubersetzt.%20Die%20Fragebogen%20wurden%20als%20Online-Befragung%20sowie%20in%20gedruckter%20Form%20zur%20Verfugung%20gestellt%20und%20uber%20die%20nationalen%20Hospiz-%20und%20PV-Verbande%20verteilt.%20Ergebnis%3A%20Insgesamt%20wurden%20575%20Fragebogen%20in%2013%20Sprachen%20ausgefullt.%20Die%20Mehrheit%20der%20Befragten%20waren%20Arzte%20%2847%25%29%2C%20Pflegende%20%2821%25%29%20und%20Angehorige%20psychosozialer%20Berufe%20%2813%25%29.%20Neben%20medikamentoser%20Symptomkontrolle%20%2855%25%29%20wurde%20Informationsbedarf%20am%20haufigsten%20fur%20Gesetzgebung%20und%20offizielle%20Dokumente%20%2867%25%29%2C%20Aus-%2C%20Fort-%2C%20und%20Weiterbildungsmoglichkeiten%20%2865%25%29%20und%20Fundraising%20fur%20Projekte%5C%2FOrganisationen%20%2856%25%29%20benannt.%20Die%20Entwicklung%20einer%20guten%20Internetseite%20%2875%25%29%2C%20regelmasige%20Treffen%5C%2FKonferenzen%20%2864%25%29%20sowie%20ein%20elektronischer%20Newsletter%20%2862%25%29%20wurden%20am%20wichtigsten%20erachtet%2C%20um%20sich%20uber%20PV%20zu%20informieren%20%5Cu2013%20vorzugsweise%20in%20der%20eigenen%20Sprache.%20Schlussfolgerung%3A%20Die%20Ergebnisse%20dieser%20Befragung%20weisen%20darauf%20hin%2C%20dass%20Informationen%20zur%20Starkung%20der%20finanziellen%2C%20strategischen%20und%20professionellen%20Position%20der%20PV%20die%20hochste%20Relevanz%20fur%20Fachkrafte%20im%20Gesundheitswesen%20in%20MOEL%20und%20der%20GUS%20haben.%20Die%20Umfrageergebnisse%20unterstutzen%20eine%20gezielte%20Bereitstellung%20von%20Informationen%2C%20Aus-%2C%20Fort-%20und%20Weiterbildungsmoglichkeiten%20sowie%20Offentlichkeitsarbeit%20zur%20Forderung%20der%20Weiterentwicklung%20der%20PV%20in%20diesen%20Landern.%22%2C%22date%22%3A%222012-09-05%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1055%5C%2Fs-0032-1323126%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22https%3A%5C%2F%5C%2Fwww.thieme-connect.de%5C%2Fproducts%5C%2Fejournals%5C%2Fabstract%5C%2F10.1055%5C%2Fs-0032-1323126%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%22%22%2C%22language%22%3A%22de%22%2C%22collections%22%3A%5B%222G8YLGV7%22%2C%2246NNKHWR%22%2C%226DCTQ3Z4%22%2C%2299FDCW4Z%22%2C%22I6PUATQS%22%2C%22QXIGN3AI%22%2C%22SPWXRLZV%22%2C%22X7PUUBWP%22%5D%2C%22dateModified%22%3A%222024-03-11T09%3A54%3A44Z%22%7D%7D%2C%7B%22key%22%3A%22IDLU36FK%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Kremeike%20et%20al.%22%2C%22parsedDate%22%3A%222021%22%2C%22numChildren%22%3A1%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BKremeike%2C%20Kerstin%2C%20Thomas%20Dojan%2C%20Carolin%20Rosendahl%2C%20Saskia%20J%26%23xFC%3Bnger%2C%20Vanessa%20Romotzky%2C%20Kathleen%20Bostr%26%23xF6%3Bm%2C%20Gerrit%20Frerich%2C%20and%20Raymond%20Voltz.%20%26%23x201C%3B%26%23x2018%3BWithstanding%20Ambivalence%20Is%20of%20Particular%20Importance%26%23x2019%3B-Controversies%20among%20Experts%20on%20Dealing%20with%20Desire%20to%20Die%20in%20Palliative%20Care.%26%23x201D%3B%20%26lt%3Bi%26gt%3BPloS%20One%26lt%3B%5C%2Fi%26gt%3B%2016%2C%20no.%209%20%282021%29%3A%20e0257382.%20%26lt%3Ba%20class%3D%26%23039%3Bzp-DOIURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1371%5C%2Fjournal.pone.0257382%26%23039%3B%26gt%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1371%5C%2Fjournal.pone.0257382%26lt%3B%5C%2Fa%26gt%3B.%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22%5C%22Withstanding%20ambivalence%20is%20of%20particular%20importance%5C%22-Controversies%20among%20experts%20on%20dealing%20with%20desire%20to%20die%20in%20palliative%20care%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Kerstin%22%2C%22lastName%22%3A%22Kremeike%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Thomas%22%2C%22lastName%22%3A%22Dojan%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Carolin%22%2C%22lastName%22%3A%22Rosendahl%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Saskia%22%2C%22lastName%22%3A%22J%5Cu00fcnger%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Vanessa%22%2C%22lastName%22%3A%22Romotzky%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Kathleen%22%2C%22lastName%22%3A%22Bostr%5Cu00f6m%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Gerrit%22%2C%22lastName%22%3A%22Frerich%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Raymond%22%2C%22lastName%22%3A%22Voltz%22%7D%5D%2C%22abstractNote%22%3A%22In%20order%20to%20investigate%20controversies%20surrounding%20the%20desire%20to%20die%20phenomenon%20in%20palliative%20care%20by%20analyzing%20expert%20opinions%20on%20the%20topic%2C%20we%20carried%20out%20a%20secondary%20qualitative%20data%20analysis%20of%20free%20text%20comments%20collected%20during%20a%20Delphi%20survey%20that%20was%20designed%20to%20develop%20a%20conversation%20aid%20for%20dealing%20with%20desire%20to%20die%20in%20everyday%20clinical%20practice.%20Between%2001%5C%2F2018%20and%2003%5C%2F2018%2C%20a%20two-round%20Delphi%20survey%20was%20carried%20out%20with%20national%20%28German%29%20and%20international%20palliative%20care%20experts.%20Free%20text%20comments%20were%20reinvestigated%20to%20identify%20controversies%20surrounding%20the%20desire%20to%20die%20phenomenon.%20An%20additional%20in-depth%20analysis%20focused%20on%20statements%20expressing%20attitudes%20towards%20proactively%20addressing%20%28potential%29%20desires%20to%20die.%20Within%20the%20Delphi%20survey%2C%20103%20of%20149%20multi-professional%20participants%20%28almost%20all%20of%20them%20with%20practical%20and%20only%20six%20with%20exclusively%20theoretical%20expertise%20in%20palliative%20care%29%20generated%20444%20free%20text%20comments.%20Thereof%2C%20we%20identified%20three%20main%20categories%20related%20to%20dealing%20with%20desire%20to%20die%3A%20%26quot%3Bouter%20framework%26quot%3B%2C%20%26quot%3Bextended%20care%20system%26quot%3B%20and%20%26quot%3Bhealth-professional-patient-relationship%26quot%3B.%20Ambivalences%2C%20taboos%20and%20uncertainties%20surrounding%20desire%20to%20die%20in%20palliative%20care%20became%20apparent.%20Experts%20are%20divided%20concerning%20the%20practice%20of%20proactively%20addressing%20desire%20to%20die.%20Even%20if%20these%20conversations-especially%20the%20proactive%20approach-are%20also%20viewed%20critically%2C%20we%20conclude%20that%20open-ended%20and%20respectful%20communication%20about%20desire%20to%20die%20between%20health%20professionals%20and%20patients%20can%20be%20understood%20as%20an%20eligible%20intervention%20in%20palliative%20care.%20Proactively%20addressing%20the%20topic%20is%20a%20possible%20way%20to%20open%20up%20such%20conversations.%22%2C%22date%22%3A%222021%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1371%5C%2Fjournal.pone.0257382%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%221932-6203%22%2C%22language%22%3A%22eng%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%2299FDCW4Z%22%2C%22I6PUATQS%22%5D%2C%22dateModified%22%3A%222024-05-15T17%3A29%3A59Z%22%7D%7D%2C%7B%22key%22%3A%22JKJ939XE%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Kremeike%20et%20al.%22%2C%22parsedDate%22%3A%222020-04-16%22%2C%22numChildren%22%3A1%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BKremeike%2C%20Kerstin%2C%20Gerrit%20Frerich%2C%20Vanessa%20Romotzky%2C%20Kathleen%20Bostr%26%23xF6%3Bm%2C%20Thomas%20Dojan%2C%20Maren%20Galushko%2C%20Kija%20Shah-Hosseini%2C%20et%20al.%20%26%23x201C%3BThe%20Desire%20to%20Die%20in%20Palliative%20Care%3A%20A%20Sequential%20Mixed%20Methods%20Study%20to%20Develop%20a%20Semi-Structured%20Clinical%20Approach.%26%23x201D%3B%20%26lt%3Bi%26gt%3BBMC%20Palliative%20Care%26lt%3B%5C%2Fi%26gt%3B%2019%2C%20no.%201%20%28April%2016%2C%202020%29%3A%2049.%20%26lt%3Ba%20class%3D%26%23039%3Bzp-DOIURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1186%5C%2Fs12904-020-00548-7%26%23039%3B%26gt%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1186%5C%2Fs12904-020-00548-7%26lt%3B%5C%2Fa%26gt%3B.%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22The%20desire%20to%20die%20in%20palliative%20care%3A%20a%20sequential%20mixed%20methods%20study%20to%20develop%20a%20semi-structured%20clinical%20approach%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Kerstin%22%2C%22lastName%22%3A%22Kremeike%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Gerrit%22%2C%22lastName%22%3A%22Frerich%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Vanessa%22%2C%22lastName%22%3A%22Romotzky%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Kathleen%22%2C%22lastName%22%3A%22Bostr%5Cu00f6m%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Thomas%22%2C%22lastName%22%3A%22Dojan%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Maren%22%2C%22lastName%22%3A%22Galushko%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Kija%22%2C%22lastName%22%3A%22Shah-Hosseini%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Saskia%22%2C%22lastName%22%3A%22J%5Cu00fcnger%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Gary%22%2C%22lastName%22%3A%22Rodin%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Holger%22%2C%22lastName%22%3A%22Pfaff%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Klaus%20Maria%22%2C%22lastName%22%3A%22Perrar%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Raymond%22%2C%22lastName%22%3A%22Voltz%22%7D%5D%2C%22abstractNote%22%3A%22BACKGROUND%3A%20Although%20desire%20to%20die%20of%20varying%20intensity%20and%20permanence%20is%20frequent%20in%20patients%20receiving%20palliative%20care%2C%20uncertainty%20exists%20concerning%20appropriate%20therapeutic%20responses%20to%20it.%20To%20support%20health%20professionals%20in%20dealing%20with%20patients%5Cu00b4%20potential%20desire%20to%20die%2C%20a%20training%20program%20and%20a%20semi-structured%20clinical%20approach%20was%20developed.%20This%20study%20aimed%20for%20a%20revision%20of%20and%20consensus%20building%20on%20the%20clinical%20approach%20to%20support%20proactively%20addressing%20desire%20to%20die%20and%20routine%20exploration%20of%20death%20and%20dying%20distress.%5CnMETHODS%3A%20Within%20a%20sequential%20mixed%20methods%20design%2C%20we%20invited%2016%20palliative%20patients%20to%20participate%20in%20semi-structured%20interviews%20and%20377%20%28inter-%29national%20experts%20to%20attend%20a%20two-round%20Delphi%20process.%20Interviews%20were%20analyzed%20using%20qualitative%20content%20analysis%20and%20an%20agreement%20consensus%20for%20the%20Delphi%20was%20determined%20according%20to%20predefined%20criteria.%5CnRESULTS%3A%2011%20%2869%25%29%20patients%20from%20different%20settings%20participated%20in%20face-to-face%20interviews.%20As%20key%20issues%20for%20conversations%20on%20desire%20to%20die%20they%20pointed%20out%20the%20relationship%20between%20professionals%20and%20patients%2C%20the%20setting%20and%20support%20from%20external%20experts%2C%20if%20required.%20A%20set%20of%20149%20%2840%25%29%20experts%20%28132%5C%2F89%25%20from%20Germany%2C%2017%5C%2F11%25%20from%209%20other%20countries%29%20evaluated%20ten%20domains%20of%20the%20semi-structured%20clinical%20approach.%20There%20was%20immediate%20consensus%20on%20nine%20domains%20concerning%20conversation%20design%2C%20suggestions%20for%20%28self-%29reflection%2C%20and%20further%20recommended%20action.%20The%20one%20domain%20in%20which%20consensus%20was%20not%20achieved%20until%20the%20second%20round%20was%20%26quot%3Bproactively%20addressing%20desire%20to%20die%26quot%3B.%5CnCONCLUSIONS%3A%20We%20have%20provided%20the%20first%20semi-structured%20clinical%20approach%20to%20identify%20and%20address%20desire%20to%20die%20and%20to%20respond%20therapeutically%20-%20based%20on%20evidence%2C%20patients%26%23039%3B%20views%20and%20consensus%20among%20professional%20experts.%5CnTRIAL%20REGISTRATION%3A%20The%20study%20is%20registered%20in%20the%20German%20Clinical%20Trials%20Register%20%28DRKS00012988%3B%20registration%20date%3A%2027.9.2017%29%20and%20in%20the%20Health%20Services%20Research%20Database%20%28VfD_DEDIPOM_17_003889%3B%20registration%20date%3A%2014.9.2017%29.%22%2C%22date%22%3A%22Apr%2016%2C%202020%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1186%5C%2Fs12904-020-00548-7%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%221472-684X%22%2C%22language%22%3A%22eng%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%2298J4DESJ%22%2C%2299FDCW4Z%22%2C%22I6PUATQS%22%2C%22P9CVNWVH%22%2C%22X7PUUBWP%22%2C%22ZKMQLZWF%22%5D%2C%22dateModified%22%3A%222024-02-27T18%3A50%3A04Z%22%7D%7D%2C%7B%22key%22%3A%223ZMJF8PL%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Kremeike%20et%20al.%22%2C%22parsedDate%22%3A%222012-09-11%22%2C%22numChildren%22%3A0%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BKremeike%2C%20Kerstin%2C%20Nina%20Eulitz%2C%20Saskia%20J%5Cu00fcnger%2C%20Annette%20Sander%2C%20Max%20Geraedts%2C%20and%20Dirk%20Reinhardt.%20%26quot%3B%26lt%3Ba%20class%3D%26%23039%3Bzp-ItemURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1186%5C%2F1756-0500-5-498%26%23039%3B%26gt%3BPaediatric%20palliative%20home%20care%20in%20areas%20of%20Germany%20with%20low%20population%20density%20and%20long%20distances%3A%20a%20questionnaire%20survey%20with%20general%20paediatricians%26lt%3B%5C%2Fa%26gt%3B.%26quot%3B%20%26lt%3Bi%26gt%3BBMC%20Research%20Notes%26lt%3B%5C%2Fi%26gt%3B%205%2C%20no.%201%20%28September%2011%2C%202012%29%3A%20498.%20%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Paediatric%20palliative%20home%20care%20in%20areas%20of%20Germany%20with%20low%20population%20density%20and%20long%20distances%3A%20a%20questionnaire%20survey%20with%20general%20paediatricians%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Kerstin%22%2C%22lastName%22%3A%22Kremeike%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Nina%22%2C%22lastName%22%3A%22Eulitz%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Saskia%22%2C%22lastName%22%3A%22J%5Cu00fcnger%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Annette%22%2C%22lastName%22%3A%22Sander%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Max%22%2C%22lastName%22%3A%22Geraedts%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Dirk%22%2C%22lastName%22%3A%22Reinhardt%22%7D%5D%2C%22abstractNote%22%3A%22In%202007%2C%20the%20patient%5Cu2019s%20right%20to%20specialised%20palliative%20home%20care%20became%20law%20in%20Germany.%20However%2C%20childhood%20palliative%20care%20in%20territorial%20states%20with%20low%20patient%20numbers%20and%20long%20distances%20requires%20adapted%20models%20to%20ensure%20an%20area-wide%20maintenance.%20Actually%2C%20general%20paediatricians%20are%20the%20basic%20care%20providers%20for%20children%20and%20adolescents.%20They%20also%20provide%20home%20care.%20The%20aim%20of%20this%20study%20was%20to%20improve%20the%20knowledge%20about%20general%20paediatrician%5Cu2019s%20involvement%20in%20and%20contribution%20to%20palliative%20care%20in%20children.%22%2C%22date%22%3A%222012-09-11%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1186%5C%2F1756-0500-5-498%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22https%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1186%5C%2F1756-0500-5-498%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%221756-0500%22%2C%22language%22%3A%22en%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%2299FDCW4Z%22%2C%22I6PUATQS%22%2C%22P9CVNWVH%22%2C%22S488ZYK4%22%2C%22X7PUUBWP%22%5D%2C%22dateModified%22%3A%222021-03-23T15%3A57%3A48Z%22%7D%7D%2C%7B%22key%22%3A%22KNAGWUWT%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Lamb%20et%20al.%22%2C%22parsedDate%22%3A%222016-06%22%2C%22numChildren%22%3A1%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BLamb%2C%20E.-S.%2C%20P.%20Liebl%2C%20M.-J.%20K%26%23xF6%3Bster%2C%20and%20J.%20H%26%23xFC%3Bbner.%20%26%23x201C%3BAnalyse%20von%20Beitr%26%23xE4%3Bgen%20im%20gr%26%23xF6%3B%26%23xDF%3Bten%20deutschen%20Chatforum%20f%26%23xFC%3Br%20Tumorpatienten%20zum%20Thema%20Palliativmedizin.%26%23x201D%3B%20%26lt%3Bi%26gt%3BDeutsche%20Medizinische%20Wochenschrift%20%281946%29%26lt%3B%5C%2Fi%26gt%3B%20141%2C%20no.%2012%20%28June%202016%29%3A%20e106-114.%20%26lt%3Ba%20class%3D%26%23039%3Bzp-DOIURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1055%5C%2Fs-0041-108278%26%23039%3B%26gt%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1055%5C%2Fs-0041-108278%26lt%3B%5C%2Fa%26gt%3B.%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Analyse%20von%20Beitr%5Cu00e4gen%20im%20gr%5Cu00f6%5Cu00dften%20deutschen%20Chatforum%20f%5Cu00fcr%20Tumorpatienten%20zum%20Thema%20Palliativmedizin%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22E.-S.%22%2C%22lastName%22%3A%22Lamb%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22P.%22%2C%22lastName%22%3A%22Liebl%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22M.-J.%22%2C%22lastName%22%3A%22K%5Cu00f6ster%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22J.%22%2C%22lastName%22%3A%22H%5Cu00fcbner%22%7D%5D%2C%22abstractNote%22%3A%22INTRODUCTION%3A%20Patients%20are%20looking%20for%20information%20regarding%20palliative%20care%20in%20different%20sources.%20Goal%20of%20this%20study%20is%20the%20analysis%20of%20the%20most%20important%20online%20forum%20for%20cancer%20patients%2C%20Cancer%20Compass%2C%20concerning%20palliative%20care.%5CnMETHODOLOGY%3A%20On%20the%20chosen%20date%2C%203.02.2012%2C%20all%20threads%20on%20the%20various%20topics%20%28cancer%20types%2C%20cancer%20treatment%2C%20specific%20user%20groups%2C%20general%20topics%2C%20advice%20and%20addresses%2C%20countries%20and%20regions%2C%20%5Cu00dcber%20den%20Krebs-Kompass%20%26amp%3B%20Vermischtes%29%20were%20systematically%20analyzed.%20All%20entries%20relating%20to%20palliative%20care%20were%20recorded%20and%20subsequently%20analyzed%20and%20summarized.%5CnRESULTS%3A%20From%20231%20threads%20relating%20to%20palliative%20care%2C%20163%20were%20relevant.The%20general%20practitioner%20is%20the%20main%20source%20of%20information%2C%20but%20the%20internet%20is%20gaining%20importance.%20The%20forum%20users%20often%20offer%20good%20explanations%20of%20cancer%20and%20palliative%20care%20and%20also%20refer%20to%20web%20pages%20with%20exact%20definitions.%20Reliability%20of%20web%20pages%20is%20a%20one%20issue%20discussed%20in%20the%20forum.Patients%20are%20afraid%20of%20pain%20and%20dying.%20Relatives%20fear%20for%20the%20patient%2C%20are%20overwhelmed%20and%20experience%20existential%20problems.%20Both%20groups%20use%20the%20Cancer%20Compass%20to%20share%20experiences%20and%20get%20psychological%20support.%20Thus%20Cancer%20Compass%20offers%20a%20possibility%20to%20discuss%20options%20for%20improving%20quality%20of%20life.Especially%20in%20the%20initial%20phase%20of%20care%2C%20many%20users%20are%20uncertain%20what%20palliative%20care%20means.%20The%20treatment%20of%20pain%20represents%20the%20main%20concern%20of%20patients%20and%20their%20families.%20Whereas%20dedicated%20palliative%20care%20wards%20are%20rated%20positively%2C%20users%20speak%20less%20positively%20about%20pain%20treatment%20in%20general%20wards%20in%20home%20care.In%20general%2C%20inpatient%20palliative%20care%20was%20rated%20positively.%20However%20information%20regarding%20outpatient%20care%20is%20lacking.%20Family%20care%20is%20mostly%20not%20possible%20on%20account%20of%20geographical%20distance.%20One%20point%20of%20criticism%20is%20the%20discrepancy%20between%20urban%20and%20rural%20areas.%20Patients%20place%20more%20trust%20in%20their%20general%20practitioner%20than%20in%20hospital%20doctors.%5CnCONCLUSION%3A%20Cancer%20Compass%20is%20an%20important%20medium%20for%20patients%20and%20their%20families%20to%20share%20information%2C%20i.%20a.%20on%20palliative%20care.%20In%20order%20to%20improve%20the%20reliability%20of%20information%20from%20the%20internet%2C%20a%20certification%20of%20websites%20would%20be%20helpful.%20In%20web%20forums%20moderators%20may%20improve%20the%20quality%20of%20information.%22%2C%22date%22%3A%22Jun%202016%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1055%5C%2Fs-0041-108278%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%221439-4413%22%2C%22language%22%3A%22ger%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%2299FDCW4Z%22%2C%22AQHM6PNY%22%2C%22BEQ38XPW%22%2C%22N24UXA6K%22%2C%22NEESRGYP%22%2C%22P9CVNWVH%22%2C%22SPWXRLZV%22%2C%22W637CI9M%22%5D%2C%22dateModified%22%3A%222024-06-06T04%3A22%3A22Z%22%7D%7D%2C%7B%22key%22%3A%22QMFHUTXY%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Linge-Dahl%20et%20al.%22%2C%22parsedDate%22%3A%222015-10-20%22%2C%22numChildren%22%3A1%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BLinge-Dahl%2C%20Lisa%2C%20Marjolein%20Vranken%2C%20Saskia%20Juenger%2C%20Kate%20North%2C%20Willem%20Scholten%2C%20Sheila%20Payne%2C%20and%20Lukas%20Radbruch.%20%26quot%3B%26lt%3Ba%20class%3D%26%23039%3Bzp-ItemURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fwww.researchgate.net%5C%2Fpublication%5C%2F283050985_Identification_of_Challenges_to_the_Availability_and_Accessibility_of_Opioids_in_Twelve_European_Countries_Conclusions_from_Two_ATOME_Six-Country_Workshops%26%23039%3B%26gt%3BIdentification%20of%20Challenges%20to%20the%20Availability%20and%20Accessibility%20of%20Opioids%20in%20Twelve%20European%20Countries%3A%20Conclusions%20from%20Two%20ATOME%20Six-Country%20Workshops%26lt%3B%5C%2Fa%26gt%3B.%26quot%3B%20%26lt%3Bi%26gt%3BJournal%20of%20Palliative%20Medicine%26lt%3B%5C%2Fi%26gt%3B%2018%20%28October%2020%2C%202015%29.%20https%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1089%5C%2Fjpm.2015.0051.%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Identification%20of%20Challenges%20to%20the%20Availability%20and%20Accessibility%20of%20Opioids%20in%20Twelve%20European%20Countries%3A%20Conclusions%20from%20Two%20ATOME%20Six-Country%20Workshops%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Lisa%22%2C%22lastName%22%3A%22Linge-Dahl%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Marjolein%22%2C%22lastName%22%3A%22Vranken%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Saskia%22%2C%22lastName%22%3A%22Juenger%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Kate%22%2C%22lastName%22%3A%22North%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Willem%22%2C%22lastName%22%3A%22Scholten%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Sheila%22%2C%22lastName%22%3A%22Payne%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Lukas%22%2C%22lastName%22%3A%22Radbruch%22%7D%5D%2C%22abstractNote%22%3A%22Background%3A%20%5CnAccess%20to%20many%20controlled%20medicines%20is%20inadequate%20in%20a%20number%20of%20European%20countries.%20This%20leads%20to%20deficits%20in%20the%20treatment%20of%20moderate%20to%20severe%20pain%20as%20well%20as%20in%20opioid%20agonist%20therapy.%5Cn%5CnObjective%3A%5CnThe%20study%20objective%20was%20to%20elaborate%20the%20reasons%20for%20this%20inadequacy.%20The%20work%20plan%20of%20the%20Access%20to%20Opioid%20Medication%20in%20Europe%20%28ATOME%29%20project%20included%20two%20six-country%20workshops.%20These%20workshops%20comprised%20a%20national%20situational%20analysis%2C%20drafting%20tailor-made%20recommendations%20for%20improvement%20and%20developing%20action%20plans%20for%20their%20implementation.%5Cn%5CnMethods%3A%5CnIn%20total%2C%2084%20representatives%20of%20the%20national%20Ministries%20of%20Health%2C%20national%20controlled%20substances%20authorities%2C%20experts%20representing%20regulatory%20and%20law%20enforcement%20authorities%2C%20leading%20health%20care%20professionals%2C%20and%20patient%20representatives%20from%2013%20European%20countries%20participated%20in%20either%20one%20of%20the%20workshops.%20The%20delegates%20used%20breakout%20sessions%20to%20identify%20key%20common%20challenges.%20Content%20analysis%20was%20used%20for%20the%20evaluation%20of%20protocols%20and%20field%20notes.%5Cn%5CnResults%3A%5CnA%20number%20of%20challenges%20to%20opioid%20accessibility%20in%20the%20countries%20was%20identified%20in%20the%20domains%20of%20knowledge%20and%20educational%2C%20regulatory%2C%20legislative%2C%20as%20well%20as%20public%20awareness%20and%20training%20barriers%20that%20limit%20opioid%20prescription.%20In%20addition%2C%20short%20validity%20of%20prescriptions%20and%20bureaucratic%20practices%20resulting%20in%20overregulation%20impeded%20availablity%20of%20some%20essential%20medicines.%20Stigmatization%20and%20criminalisation%20of%20people%20who%20use%20drugs%20remained%20the%20major%20impediment%20to%20increasing%20opioid%20agonist%20program%20coverage.%5Cn%5CnConclusions%3A%5CnThe%20challenges%20identified%20during%20outcomes%20of%20the%20workshops%20were%20used%20as%20the%20basis%20for%20subsequent%20dissemination%20and%20implementation%20activities%20in%20the%20ATOME%20project%2C%20and%20in%20some%20countries%20the%20workshop%20proceedings%20already%20served%20as%20a%20stepping-stone%20for%20the%20first%20changes%20in%20regulations%20and%20legislation.%22%2C%22date%22%3A%222015-10-20%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1089%5C%2Fjpm.2015.0051%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22https%3A%5C%2F%5C%2Fwww.researchgate.net%5C%2Fpublication%5C%2F283050985_Identification_of_Challenges_to_the_Availability_and_Accessibility_of_Opioids_in_Twelve_European_Countries_Conclusions_from_Two_ATOME_Six-Country_Workshops%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%22%22%2C%22language%22%3A%22en%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%2299FDCW4Z%22%2C%22I6PUATQS%22%2C%22JL4N5KDE%22%2C%22X7PUUBWP%22%2C%22XSMILFVY%22%5D%2C%22dateModified%22%3A%222024-05-17T10%3A36%3A33Z%22%7D%7D%2C%7B%22key%22%3A%223HSMJX39%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22National%20Academies%20of%20Sciences%22%2C%22parsedDate%22%3A%222016-05-20%22%2C%22numChildren%22%3A0%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BNational%20Academies%20of%20Sciences%2C%20Engineering.%20%26lt%3Bi%26gt%3B%26lt%3Ba%20class%3D%26%23039%3Bzp-ItemURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fwww.nap.edu%5C%2Fcatalog%5C%2F21839%5C%2Fhealth-literacy-and-palliative-care-workshop-summary%26%23039%3B%26gt%3BHealth%20Literacy%20and%20Palliative%20Care%3A%20Workshop%20Summary%26lt%3B%5C%2Fa%26gt%3B%26lt%3B%5C%2Fi%26gt%3B%2C%202016.%20https%3A%5C%2F%5C%2Fdoi.org%5C%2F10.17226%5C%2F21839.%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22book%22%2C%22title%22%3A%22Health%20Literacy%20and%20Palliative%20Care%3A%20Workshop%20Summary%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Engineering%22%2C%22lastName%22%3A%22National%20Academies%20of%20Sciences%22%7D%5D%2C%22abstractNote%22%3A%22Download%20a%20PDF%20of%20%26quot%3BHealth%20Literacy%20and%20Palliative%20Care%26quot%3B%20by%20the%20National%20Academies%20of%20Sciences%2C%20Engineering%2C%20and%20Medicine%20for%20free.%22%2C%22date%22%3A%222016%5C%2F05%5C%2F20%22%2C%22originalDate%22%3A%22%22%2C%22originalPublisher%22%3A%22%22%2C%22originalPlace%22%3A%22%22%2C%22format%22%3A%22%22%2C%22ISBN%22%3A%22978-0-309-38036-2%22%2C%22DOI%22%3A%22%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22https%3A%5C%2F%5C%2Fwww.nap.edu%5C%2Fcatalog%5C%2F21839%5C%2Fhealth-literacy-and-palliative-care-workshop-summary%22%2C%22ISSN%22%3A%22%22%2C%22language%22%3A%22en%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%2299FDCW4Z%22%5D%2C%22dateModified%22%3A%222020-05-29T07%3A18%3A13Z%22%7D%7D%2C%7B%22key%22%3A%222WYSACPX%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Noordman%20et%20al.%22%2C%22parsedDate%22%3A%222019-04-12%22%2C%22numChildren%22%3A2%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BNoordman%2C%20Janneke%2C%20Liesbeth%20van%20Vliet%2C%20Menno%20Kaunang%2C%20Maria%20van%20den%20Muijsenbergh%2C%20Gudule%20Boland%2C%20and%20Sandra%20van%20Dulmen.%20%26%23x201C%3BTowards%20Appropriate%20Information%20Provision%20for%20and%20Decision-Making%20with%20Patients%20with%20Limited%20Health%20Literacy%20in%20Hospital-Based%20Palliative%20Care%20in%20Western%20Countries%3A%20A%20Scoping%20Review%20into%20Available%20Communication%20Strategies%20and%20Tools%20for%20Healthcare%20Providers.%26%23x201D%3B%20%26lt%3Bi%26gt%3BBMC%20Palliative%20Care%26lt%3B%5C%2Fi%26gt%3B%2018%2C%20no.%201%20%28April%2012%2C%202019%29%3A%2037.%20%26lt%3Ba%20class%3D%26%23039%3Bzp-DOIURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1186%5C%2Fs12904-019-0421-x%26%23039%3B%26gt%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1186%5C%2Fs12904-019-0421-x%26lt%3B%5C%2Fa%26gt%3B.%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Towards%20appropriate%20information%20provision%20for%20and%20decision-making%20with%20patients%20with%20limited%20health%20literacy%20in%20hospital-based%20palliative%20care%20in%20Western%20countries%3A%20a%20scoping%20review%20into%20available%20communication%20strategies%20and%20tools%20for%20healthcare%20providers%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Janneke%22%2C%22lastName%22%3A%22Noordman%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Liesbeth%22%2C%22lastName%22%3A%22van%20Vliet%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Menno%22%2C%22lastName%22%3A%22Kaunang%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Maria%22%2C%22lastName%22%3A%22van%20den%20Muijsenbergh%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Gudule%22%2C%22lastName%22%3A%22Boland%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Sandra%22%2C%22lastName%22%3A%22van%20Dulmen%22%7D%5D%2C%22abstractNote%22%3A%22BACKGROUND%3A%20Person-centred%20palliative%20care%20poses%20high%20demands%20on%20professionals%20and%20patients%20regarding%20appropriate%20and%20effective%20communication%20and%20informed%20decision-making.%20This%20is%20even%20more%20so%20for%20patients%20with%20limited%20health%20literacy%2C%20as%20they%20lack%20the%20necessary%20skills%20to%20find%2C%20understand%20and%20apply%20information%20about%20their%20health%20and%20healthcare.%20Recognizing%20patients%20with%20limited%20health%20literacy%20and%20adapting%20the%20communication%2C%20information%20provision%20and%20decision-making%20process%20to%20their%20skills%20and%20needs%20is%20essential%20to%20achieve%20desired%20person-centred%20palliative%20care.%20The%20aim%20of%20this%20study%20is%20to%20summarize%20available%20strategies%20and%20tools%20for%20healthcare%20providers%20towards%20successful%20communication%2C%20information%20provision%20and%5C%2For%20shared%20decision-making%20in%20supporting%20patients%20with%20limited%20health%20literacy%20in%20hospital-based%20palliative%20care%20in%20Western%20countries.%5CnMETHODS%3A%20A%20scoping%20review%20was%20conducted.%20First%2C%20databases%20PubMed%2C%20Embase%2C%20CINAHL%2C%20and%20PsycINFO%20were%20searched.%20Next%2C%20grey%20literature%20was%20examined%20using%20several%20online%20databases%20and%20by%20contacting%20national%20experts.%20In%20addition%2C%20all%20references%20of%20included%20studies%20were%20checked.%5CnRESULTS%3A%20Five%20studies%20were%20included%20that%20showed%20that%20there%20are%20face-to-face%2C%20written%20as%20well%20as%20online%20strategies%20available%20for%20healthcare%20providers%20to%20support%20communication%2C%20information%20provision%20and%2C%20to%20a%20lesser%20extent%2C%20%28shared%29%20decision-making%20in%20palliative%20care%20for%20patients%20with%20limited%20health%20literacy.%20Strategies%20that%20were%20mentioned%20several%20times%20were%3A%20teach-back%20method%2C%20jargon-free%20communication%20and%20developing%20and%20testing%20materials%20with%20patients%20with%20limited%20health%20literacy%2C%20among%20others.%20Two%20supporting%20tools%20were%20found%3A%20patient%20decision%20aids%20and%20question%20prompt%20lists.%5CnCONCLUSIONS%3A%20To%20guarantee%20high%20quality%20person-centred%20palliative%20care%2C%20the%20role%20of%20health%20literacy%20should%20be%20considered.%20Although%20there%20are%20several%20strategies%20available%20for%20healthcare%20providers%20to%20facilitate%20such%20communication%2C%20only%20few%20tools%20are%20offered.%20Moreover%2C%20the%20strategies%20and%20tools%20appear%20not%20specific%20for%20the%20setting%20of%20palliative%20care%2C%20but%20seem%20helpful%20for%20providers%20to%20support%20the%20communication%2C%20information%20provision%20and%20decision%20making%20with%20patients%20with%20limited%20health%20literacy%20in%20general.%20Future%20research%20should%20focus%20on%20which%20strategies%20or%20tools%20are%20%28most%29%20effective%20in%20supporting%20patients%20with%20limited%20health%20literacy%20in%20palliative%20care%2C%20and%20the%20implementation%20of%20these%20strategies%20and%20tools%20in%20practice.%22%2C%22date%22%3A%22Apr%2012%2C%202019%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1186%5C%2Fs12904-019-0421-x%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%221472-684X%22%2C%22language%22%3A%22eng%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%2272HALNLA%22%2C%2299FDCW4Z%22%2C%22AQHM6PNY%22%2C%22BEQ38XPW%22%2C%22ERQ322N6%22%2C%22I2KQCY6E%22%2C%22IE7JTZ2W%22%2C%22QXIGN3AI%22%2C%22SPWXRLZV%22%2C%22X7PUUBWP%22%2C%22ZFT52UPQ%22%5D%2C%22dateModified%22%3A%222020-01-27T09%3A59%3A25Z%22%7D%7D%2C%7B%22key%22%3A%22L7VZ5DQF%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Noordman%20et%20al.%22%2C%22parsedDate%22%3A%222020-10-07%22%2C%22numChildren%22%3A1%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BNoordman%2C%20Janneke%2C%20Lotte%20Schulze%2C%20Ruud%20Roodbeen%2C%20Gudule%20Boland%2C%20Liesbeth%20M.%20van%20Vliet%2C%20Maria%20van%20den%20Muijsenbergh%2C%20and%20Sandra%20van%20Dulmen.%20%26%23x201C%3BInstrumental%20and%20Affective%20Communication%20with%20Patients%20with%20Limited%20Health%20Literacy%20in%20the%20Palliative%20Phase%20of%20Cancer%20or%20COPD.%26%23x201D%3B%20%26lt%3Bi%26gt%3BBMC%20Palliative%20Care%26lt%3B%5C%2Fi%26gt%3B%2019%2C%20no.%201%20%28October%207%2C%202020%29%3A%20152.%20%26lt%3Ba%20class%3D%26%23039%3Bzp-DOIURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1186%5C%2Fs12904-020-00658-2%26%23039%3B%26gt%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1186%5C%2Fs12904-020-00658-2%26lt%3B%5C%2Fa%26gt%3B.%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Instrumental%20and%20affective%20communication%20with%20patients%20with%20limited%20health%20literacy%20in%20the%20palliative%20phase%20of%20cancer%20or%20COPD%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Janneke%22%2C%22lastName%22%3A%22Noordman%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Lotte%22%2C%22lastName%22%3A%22Schulze%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Ruud%22%2C%22lastName%22%3A%22Roodbeen%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Gudule%22%2C%22lastName%22%3A%22Boland%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Liesbeth%20M.%22%2C%22lastName%22%3A%22van%20Vliet%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Maria%22%2C%22lastName%22%3A%22van%20den%20Muijsenbergh%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Sandra%22%2C%22lastName%22%3A%22van%20Dulmen%22%7D%5D%2C%22abstractNote%22%3A%22BACKGROUND%3A%20Patients%20have%20a%20%26%23039%3Bneed%20to%20know%26%23039%3B%20%28instrumental%20need%29%20and%20a%20%26%23039%3Bneed%20to%20feel%20known%26%23039%3B%20%28affective%20need%29.%20During%20consultations%20with%20patients%20with%20limited%20health%20literacy%20%28LHL%29%20in%20the%20palliative%20phase%20of%20their%20disease%2C%20both%20the%20instrumental%20and%20the%20affective%20communication%20skills%20of%20healthcare%20providers%20are%20important.%20The%20study%20aims%20to%20explore%20instrumental%20and%20affective%20communication%20between%20care%20providers%20and%20LHL%20patients%20in%20the%20palliative%20phase%20of%20COPD%20or%20cancer.%5CnMETHODS%3A%20In%202018%2C%20consultations%20between%20LHL%20patients%20in%20the%20palliative%20phase%20of%20cancer%20or%20COPD%20and%20their%20healthcare%20providers%20were%20video-recorded%20in%20four%20hospitals%20in%20the%20Netherlands.%20As%20there%20was%20no%20observation%20algorithm%20available%20for%20this%20setting%2C%20several%20items%20were%20created%20to%20parameterize%20healthcare%20providers%26%23039%3B%20instrumental%20communication%20%28seven%20items%3A%20understanding%2C%20patient%20priorities%2C%20medical%20status%2C%20treatment%20options%2C%20treatment%20consequences%2C%20prognosis%2C%20and%20information%20about%20emotional%20distress%29%20and%20affective%20communication%20%28six%20items%3A%20hope%2C%20support%2C%20reassurance%2C%20empathy%2C%20appreciation%2C%20and%20emotional%20coping%29.%20The%20degree%20of%20each%20item%20was%20recorded%20for%20each%20consultation%2C%20with%20relevant%20segments%20of%20the%20observation%20selected%20and%20transcribed%20to%20support%20the%20items.%5CnRESULTS%3A%20Consultations%20between%2017%20care%20providers%20and%2039%20patients%20were%20video-recorded%20and%20analyzed.%20Care%20providers%20primarily%20used%20instrumental%20communication%2C%20most%20often%20by%20giving%20information%20about%20treatment%20options%20and%20assessing%20patients%26%23039%3B%20care%20priorities.%20Care%20providers%20assessed%20patients%26%23039%3B%20understanding%20of%20their%20disease%20less%20often.%20The%20patients%26%23039%3B%20prognosis%20was%20not%20mentioned%20in%20half%20the%20consultations.%20Within%20the%20affective%20domain%2C%20the%20care%20providers%20did%20provide%20support%20for%20their%20patients%3B%20providing%20hope%2C%20reassurance%2C%20empathy%2C%20and%20appreciation%20and%20discussing%20emotional%20coping%20were%20observed%20less%20often.%5CnCONCLUSIONS%3A%20Care%20providers%20used%20mostly%20instrumental%20communication%2C%20especially%20treatment%20information%2C%20in%20consultations%20with%20LHL%20patients%20in%20the%20palliative%20phase%20of%20cancer%20or%20COPD.%20Most%20care%20providers%20did%20not%20check%20if%20the%20patient%20understood%20the%20information%2C%20which%20is%20rather%20crucial%2C%20especially%20given%20patients%26%23039%3B%20limited%20level%20of%20health%20literacy.%20Healthcare%20providers%20did%20provide%20support%20for%20patients%2C%20but%20other%20expressions%20of%20affective%20communication%20by%20care%20providers%20were%20less%20common.%20To%20adapt%20the%20communication%20to%20LHL%20patients%20in%20palliative%20care%2C%20care%20providers%20could%20be%20less%20wordy%20and%20reduce%20the%20amount%20of%20information%2C%20use%20%26%23039%3Bteach-back%26%23039%3B%20techniques%20and%20pay%20more%20attention%20to%20affective%20communication.%22%2C%22date%22%3A%22Oct%2007%2C%202020%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1186%5C%2Fs12904-020-00658-2%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%221472-684X%22%2C%22language%22%3A%22eng%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%226AFHATSB%22%2C%2299FDCW4Z%22%2C%22QXIGN3AI%22%2C%22SPWXRLZV%22%2C%22W637CI9M%22%5D%2C%22dateModified%22%3A%222024-05-15T14%3A07%3A04Z%22%7D%7D%2C%7B%22key%22%3A%22PI4ZS3WN%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22O%27Reilly%20and%20Walshe%22%2C%22parsedDate%22%3A%222015-09%22%2C%22numChildren%22%3A1%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BO%26%23x2019%3BReilly%2C%20Aoife%20C.%2C%20and%20Margaret%20Walshe.%20%26%23x201C%3BPerspectives%20on%20the%20Role%20of%20the%20Speech%20and%20Language%20Therapist%20in%20Palliative%20Care%3A%20An%20International%20Survey.%26%23x201D%3B%20%26lt%3Bi%26gt%3BPalliative%20Medicine%26lt%3B%5C%2Fi%26gt%3B%2029%2C%20no.%208%20%28September%202015%29%3A%20756%26%23x2013%3B61.%20%26lt%3Ba%20class%3D%26%23039%3Bzp-DOIURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1177%5C%2F0269216315575678%26%23039%3B%26gt%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1177%5C%2F0269216315575678%26lt%3B%5C%2Fa%26gt%3B.%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Perspectives%20on%20the%20role%20of%20the%20speech%20and%20language%20therapist%20in%20palliative%20care%3A%20An%20international%20survey%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Aoife%20C.%22%2C%22lastName%22%3A%22O%27Reilly%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Margaret%22%2C%22lastName%22%3A%22Walshe%22%7D%5D%2C%22abstractNote%22%3A%22BACKGROUND%3A%20Speech%20and%20language%20therapists%20can%20improve%20the%20quality%20of%20life%20of%20people%20receiving%20palliative%20care%20through%20the%20management%20of%20communication%20and%20swallowing%20difficulties%20%28dysphagia%29.%20However%2C%20their%20role%20in%20this%20domain%20is%20poorly%20defined%20and%20little%20is%20understood%20about%20the%20current%20international%20professional%20practice%20in%20this%20field.%5CnAIMS%3A%20To%20examine%20how%20speech%20and%20language%20therapists%20perceive%20their%20role%20in%20the%20delivery%20of%20palliative%20care%20to%20clients%2C%20to%20discover%20current%20international%20speech%20and%20language%20therapist%20practices%20and%20to%20explore%20the%20similarities%20and%20differences%20in%20speech%20and%20language%20therapists%26%23039%3B%20practice%20in%20palliative%20care%20internationally.%20This%20will%20inform%20professional%20clinical%20guidelines%20and%20practice%20in%20this%20area.%5CnDESIGN%3A%20Anonymous%2C%20non-experimental%2C%20cross-sectional%20survey%20design.%5CnPARTICIPANTS%3A%20Speech%20and%20language%20therapists%20working%20with%20adult%20and%20paediatric%20palliative%20care%20populations%20in%20Republic%20of%20Ireland%2C%20United%20Kingdom%2C%20United%20States%2C%20Canada%2C%20Australia%20and%20New%20Zealand%20where%20the%20speech%20and%20language%20therapist%20profession%20is%20well%20established.%5CnMETHOD%3A%20Purposive%20and%20snowball%20sampling%20were%20used%20to%20recruit%20participants%20internationally%20using%20gatekeepers.%20An%20online%20survey%20was%20disseminated%20using%20Survey%20Monkey%20%28http%3A%5C%2F%5C%2Fwww.surveymonkey.com%29.%5CnRESULTS%3A%20A%20total%20of%20322%20speech%20and%20language%20therapists%20responded%20to%20the%20survey.%20Speech%20and%20language%20therapist%20practices%20in%20palliative%20care%20were%20similar%20across%20continents.%20Current%20speech%20and%20language%20therapist%20practices%20along%20with%20barriers%20and%20facilitators%20to%20practice%20were%20identified.%20The%20need%20for%20a%20speech%20and%20language%20therapist%20professional%20position%20paper%20on%20this%20topic%20was%20emphasised%20by%20respondents.%5CnCONCLUSION%3A%20Internationally%2C%20speech%20and%20language%20therapists%20believe%20they%20have%20a%20role%20in%20palliative%20care.%20The%20speech%20and%20language%20therapist%20respondents%20highlighted%20that%20this%20area%20of%20practice%20is%20under-resourced%2C%20under-acknowledged%20and%20poorly%20developed.%20They%20highlighted%20the%20need%20for%20additional%20research%20as%20well%20as%20specialist%20training%20and%20education%20for%20speech%20and%20language%20therapists%20and%20other%20multidisciplinary%20team%20members%20in%20the%20area%20of%20palliative%20care.%22%2C%22date%22%3A%222015-09%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1177%5C%2F0269216315575678%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%221477-030X%22%2C%22language%22%3A%22eng%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%224FVKAB4K%22%2C%2299FDCW4Z%22%2C%22N24UXA6K%22%2C%22SPWXRLZV%22%2C%22X7PUUBWP%22%5D%2C%22dateModified%22%3A%222025-05-18T08%3A10%3A55Z%22%7D%7D%2C%7B%22key%22%3A%22HPEXQNLN%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Pastrana%20et%20al.%22%2C%22parsedDate%22%3A%222008-05-01%22%2C%22numChildren%22%3A1%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BPastrana%2C%20Tania%2C%20S%20J%5Cu00fcnger%2C%20Christoph%20Ostgathe%2C%20Frank%20Elsner%2C%20and%20Lukas%20Radbruch.%20%26quot%3B%26lt%3Ba%20class%3D%26%23039%3Bzp-ItemURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fwww.researchgate.net%5C%2Fpublication%5C%2F5373270_A_matter_of_definition_-_Key_elements_identified_in_a_discourse_analysis_of_definitions_of_palliative_care%26%23039%3B%26gt%3BA%20matter%20of%20definition%20-%20Key%20elements%20identified%20in%20a%20discourse%20analysis%20of%20definitions%20of%20palliative%20care%26lt%3B%5C%2Fa%26gt%3B.%26quot%3B%20%26lt%3Bi%26gt%3BPalliative%20Medicine%26lt%3B%5C%2Fi%26gt%3B%2022%20%28May%201%2C%202008%29%3A%20222%5Cu201332.%20https%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1177%5C%2F0269216308089803.%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22A%20matter%20of%20definition%20-%20Key%20elements%20identified%20in%20a%20discourse%20analysis%20of%20definitions%20of%20palliative%20care%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Tania%22%2C%22lastName%22%3A%22Pastrana%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22S%22%2C%22lastName%22%3A%22J%5Cu00fcnger%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Christoph%22%2C%22lastName%22%3A%22Ostgathe%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Frank%22%2C%22lastName%22%3A%22Elsner%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Lukas%22%2C%22lastName%22%3A%22Radbruch%22%7D%5D%2C%22abstractNote%22%3A%22For%20more%20than%2030%20years%2C%20the%20term%20%26quot%3Bpalliative%20care%26quot%3B%20has%20been%20used.%20From%20the%20outset%2C%20the%20term%20has%20undergone%20a%20series%20of%20transformations%20in%20its%20definitions%20and%20consequently%20in%20its%20tasks%20and%20goals.%20There%20remains%20a%20lack%20of%20consensus%20on%20a%20definition.%20The%20aim%20of%20this%20article%20is%20to%20analyse%20the%20definitions%20of%20palliative%20care%20in%20the%20specialist%20literature%20and%20to%20identify%20the%20key%20elements%20of%20palliative%20care%20using%20discourse%20analysis%3A%20a%20qualitative%20methodology.%20The%20literature%20search%20focused%20on%20definitions%20of%20the%20term%20%26%23039%3Bpalliative%20medicine%26%23039%3B%20and%20%26%23039%3Bpalliative%20care%26%23039%3B%20in%20the%20World%20Wide%20Web%20and%20medical%20reference%20books%20in%20English%20and%20German.%20A%20total%20of%2037%20English%20and%2026%20German%20definitions%20were%20identified%20and%20analysed.%20Our%20study%20confirmed%20the%20lack%20of%20a%20consistent%20meaning%20concerning%20the%20investigated%20terms%2C%20reflecting%20on-going%20discussion%20about%20the%20nature%20of%20the%20field%20among%20palliative%20care%20practitioners.%20Several%20common%20key%20elements%20were%20identified.%20Four%20main%20categories%20emerged%20from%20the%20discourse%20analysis%20of%20the%20definition%20of%20palliative%20care%3A%20target%20groups%2C%20structure%2C%20tasks%20and%20expertise.%20In%20addition%2C%20the%20theoretical%20principles%20and%20goals%20of%20palliative%20care%20were%20discussed%20and%20found%20to%20be%20key%20elements%2C%20with%20relief%20and%20prevention%20of%20suffering%20and%20improvement%20of%20quality%20of%20life%20as%20main%20goals.%20The%20identified%20key%20elements%20can%20contribute%20to%20the%20definition%20of%20the%20concept%20%26%23039%3Bpalliative%20care%26%23039%3B.%20Our%20study%20confirms%20the%20importance%20of%20semantic%20and%20ethical%20influences%20on%20palliative%20care%20that%20should%20be%20considered%20in%20future%20research%20on%20semantics%20in%20different%20languages.%22%2C%22date%22%3A%222008-05-01%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1177%5C%2F0269216308089803%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22https%3A%5C%2F%5C%2Fwww.researchgate.net%5C%2Fpublication%5C%2F5373270_A_matter_of_definition_-_Key_elements_identified_in_a_discourse_analysis_of_definitions_of_palliative_care%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%22%22%2C%22language%22%3A%22en%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%226CWITS3E%22%2C%2299FDCW4Z%22%2C%22I6PUATQS%22%2C%22N24UXA6K%22%2C%22X7PUUBWP%22%5D%2C%22dateModified%22%3A%222024-06-05T08%3A50%3A28Z%22%7D%7D%2C%7B%22key%22%3A%229M9UICHG%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Peeler%20et%20al.%22%2C%22parsedDate%22%3A%222025-05-16%22%2C%22numChildren%22%3A1%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BPeeler%2C%20Anna%2C%20Oladayo%20Ayobami%20Afolabi%2C%20Katherine%20E.%20Sleeman%2C%20Maha%20El%20Akoum%2C%20Nahla%20Gafer%2C%20Asmus%20Hammerich%2C%20and%20Richard%20Harding.%20%26quot%3B%26lt%3Ba%20class%3D%26%23039%3Bzp-ItemURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fgh.bmj.com%5C%2Fcontent%5C%2F10%5C%2F5%5C%2Fe017624%26%23039%3B%26gt%3BConfronting%20global%20inequities%20in%20palliative%20care%26lt%3B%5C%2Fa%26gt%3B.%26quot%3B%20%26lt%3Bi%26gt%3BBMJ%20Global%20Health%26lt%3B%5C%2Fi%26gt%3B%2010%2C%20no.%205%20%28May%2016%2C%202025%29%3A%20e017624.%20https%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1136%5C%2Fbmjgh-2024-017624.%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Confronting%20global%20inequities%20in%20palliative%20care%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Anna%22%2C%22lastName%22%3A%22Peeler%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Oladayo%20Ayobami%22%2C%22lastName%22%3A%22Afolabi%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Katherine%20E.%22%2C%22lastName%22%3A%22Sleeman%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Maha%22%2C%22lastName%22%3A%22El%20Akoum%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Nahla%22%2C%22lastName%22%3A%22Gafer%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Asmus%22%2C%22lastName%22%3A%22Hammerich%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Richard%22%2C%22lastName%22%3A%22Harding%22%7D%5D%2C%22abstractNote%22%3A%22The%20number%20of%20people%20dying%20with%20preventable%2C%20serious%20health-related%20suffering%20is%20rapidly%20increasing%2C%20and%20international%20calls%20for%20the%20expansion%20of%20palliative%20care%20services%20have%20been%20made%2C%20such%20as%20the%20World%20Health%20Assembly%20Resolution%2067.19%2C%20which%20named%20palliative%20care%20as%20an%20essential%20component%20of%20Universal%20Health%20Coverage.%20Despite%20this%2C%20only%20about%2014%25%20of%20all%20palliative%20care%20need%20globally%20is%20met%20today%2C%20and%20health%20systems%20around%20the%20world%20are%20unprepared%20to%20meet%20the%20growing%20need.%20Palliative%20care%20has%20been%20shown%20to%20improve%20patient%2C%20caregiver%20and%20health-system%20outcomes%20and%20reduce%20costs%20for%20many%20populations%20and%20contexts.%20Geographic%2C%20social%2C%20cultural%20and%20health-literacy%20related%20inequities%20in%20access%20to%20and%20quality%20of%20palliative%20care%20services%20persist.%20We%20provide%20evidence-based%20recommendations%20which%20require%20immediate%2C%20coordinated%20action%20to%20improve%20progress%20towards%20achieving%20equitable%20access%20to%20high-quality%20palliative%20care%20for%20all.%20These%20include%20but%20are%20not%20limited%20to%20ensuring%20every%20country%20has%20palliative%20care%20codified%20into%20national%20health%20policy%3B%20providing%20evidence-based%2C%20basic%20palliative%20care%20education%20and%20training%20for%20all%20non-specialist%20healthcare%20workers%3B%20empowering%20and%20facilitating%20community%20action%20in%20research%20and%20service%20development%3B%20and%20ensuring%20that%20all%20essential%20palliative%20care%20medicines%20are%20available%20for%20those%20who%20need%20them.%20Unless%20urgent%2C%20evidence-based%2C%20coordinated%20action%20is%20taken%2C%20countries%2C%20health%20systems%2C%20and%20communities%20will%20fail%20to%20meet%20the%20growing%20palliative%20care%20demand%2C%20and%20millions%20of%20people%20around%20the%20world%20will%20experience%20preventable%20suffering.%22%2C%22date%22%3A%222025-05-16%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1136%5C%2Fbmjgh-2024-017624%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22https%3A%5C%2F%5C%2Fgh.bmj.com%5C%2Fcontent%5C%2F10%5C%2F5%5C%2Fe017624%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%222059-7908%22%2C%22language%22%3A%22eng%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%225XGJEAVF%22%2C%2299FDCW4Z%22%5D%2C%22dateModified%22%3A%222025-05-20T10%3A47%3A56Z%22%7D%7D%2C%7B%22key%22%3A%22CMZDU477%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Pilote%20et%20al.%22%2C%22parsedDate%22%3A%222019%22%2C%22numChildren%22%3A2%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BPilote%2C%20Laurie%2C%20Luc%20C%26%23xF4%3Bt%26%23xE9%3B%2C%20Selma%20Chipenda%20Dansokho%2C%20%26%23xC9%3Bmilie%20Brouillard%2C%20Anik%20M.%20C.%20Gigu%26%23xE8%3Bre%2C%20France%20L%26%23xE9%3Bgar%26%23xE9%3B%2C%20Roland%20Grad%2C%20and%20Holly%20O.%20Witteman.%20%26%23x201C%3BTalking%20about%20Treatment%20Benefits%2C%20Harms%2C%20and%20What%20Matters%20to%20Patients%20in%20Radiation%20Oncology%3A%20An%20Observational%20Study.%26%23x201D%3B%20%26lt%3Bi%26gt%3BBMC%20Medical%20Informatics%20and%20Decision%20Making%26lt%3B%5C%2Fi%26gt%3B%2019%2C%20no.%201%20%2811%202019%29%3A%2084.%20%26lt%3Ba%20class%3D%26%23039%3Bzp-DOIURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1186%5C%2Fs12911-019-0800-5%26%23039%3B%26gt%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1186%5C%2Fs12911-019-0800-5%26lt%3B%5C%2Fa%26gt%3B.%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Talking%20about%20treatment%20benefits%2C%20harms%2C%20and%20what%20matters%20to%20patients%20in%20radiation%20oncology%3A%20an%20observational%20study%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Laurie%22%2C%22lastName%22%3A%22Pilote%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Luc%22%2C%22lastName%22%3A%22C%5Cu00f4t%5Cu00e9%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Selma%22%2C%22lastName%22%3A%22Chipenda%20Dansokho%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22%5Cu00c9milie%22%2C%22lastName%22%3A%22Brouillard%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Anik%20M.%20C.%22%2C%22lastName%22%3A%22Gigu%5Cu00e8re%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22France%22%2C%22lastName%22%3A%22L%5Cu00e9gar%5Cu00e9%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Roland%22%2C%22lastName%22%3A%22Grad%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Holly%20O.%22%2C%22lastName%22%3A%22Witteman%22%7D%5D%2C%22abstractNote%22%3A%22BACKGROUND%3A%20Shared%20decision%20making%20is%20associated%20with%20improved%20patient%20outcomes%20in%20radiation%20oncology.%20Our%20study%20aimed%20to%20capture%20how%20shared%20decision-making%20practices-namely%2C%20communicating%20potential%20harms%20and%20benefits%20and%20discussing%20what%20matters%20to%20patients-occur%20in%20usual%20care.%5CnMETHODS%3A%20We%20invited%20a%20convenience%20sample%20of%20clinicians%20and%20patients%20in%20a%20radiation%20oncology%20clinic%20to%20participate%20in%20a%20mixed%20methods%20study.%20Prior%20to%20consultations%2C%20clinicians%20and%20patients%20completed%20self-administered%20questionnaires.%20We%20audio-recorded%20consultations%20and%20conducted%20qualitative%20content%20analysis.%20Patients%20completed%20a%20questionnaire%20immediately%20post-consultation%20about%20their%20recall%20and%20perceptions.%5CnRESULTS%3A%2011%20radiation%20oncologists%2C%204%20residents%2C%2014%20nurses%2C%20and%2040%20patients%20%2855%25%20men%3B%20mean%20age%2064%2C%20standard%20deviation%20or%20SD%209%29%20participated.%20Patients%20had%20a%20variety%20of%20cancers%3B%2030%25%20had%20been%20referred%20for%20palliative%20radiotherapy.%20During%20consultations%20%28mean%20length%2045%5Cu2009min%2C%20SD%2016%29%2C%20clinicians%20presented%20a%20median%20of%208%20potential%20harms%20%28interquartile%20range%206-11%29%2C%20using%20quantitative%20estimates%2017%25%20of%20the%20time.%20Patients%20recalled%20significantly%20fewer%20harms%20%28median%20recall%202%2C%20interquartile%20range%200-3%2C%20t%2838%29%5Cu2009%3D%5Cu20099.3%2C%20p%5Cu00a0%26lt%3B%5Cu2009.001%29.%20Better%20recall%20was%20associated%20with%20discussing%20potential%20harms%20with%20a%20nurse%20after%20seeing%20the%20physician%20%28odds%20ratio%207.5%2C%2095%25%20confidence%20interval%201.3-67.0%2C%20p%5Cu00a0%3D%5Cu2009.04.%29%20Clinicians%20initiated%2063%25%20of%20discussions%20of%20harms%20and%20benefits%20while%20patients%20and%20families%20initiated%2069%25%20of%20discussions%20about%20values%20and%20preferences%20%28Chi-squared%281%29%5Cu2009%3D%5Cu200937.8%2C%20p%5Cu00a0%26lt%3B%5Cu2009.001%29.%2056%25%20of%20patients%20reported%20their%20clinician%20asked%20what%20mattered%20to%20them.%5CnCONCLUSIONS%3A%20Radiation%20oncology%20clinics%20may%20wish%20to%20use%20interprofessional%20care%20and%20initiate%20more%20discussions%20about%20what%20matters%20to%20patients%20to%20heed%20Jain%26%23039%3Bs%20%282014%29%20reminder%20that%2C%20%26quot%3Ba%20patient%20isn%26%23039%3Bt%20a%20disease%20with%20a%20body%20attached%20but%20a%20life%20into%20which%20a%20disease%20has%20intruded.%26quot%3B%22%2C%22date%22%3A%2204%2011%2C%202019%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1186%5C%2Fs12911-019-0800-5%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%221472-6947%22%2C%22language%22%3A%22eng%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%226DCTQ3Z4%22%2C%2299FDCW4Z%22%2C%22QXIGN3AI%22%2C%22SPWXRLZV%22%2C%22W637CI9M%22%2C%22X7PUUBWP%22%2C%22ZFT52UPQ%22%2C%22ZKMQLZWF%22%5D%2C%22dateModified%22%3A%222024-05-15T14%3A25%3A06Z%22%7D%7D%2C%7B%22key%22%3A%22VPDYXZS9%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Radbruch%20et%20al.%22%2C%22parsedDate%22%3A%222011-07%22%2C%22numChildren%22%3A0%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BRadbruch%2C%20L.%2C%20C.%20Bausewein%2C%20S.%20T.%20Simon%2C%20W.%20Sipp%2C%20W.%20Wodarg%2C%20and%20S.%20J%5Cu00fcnger.%20%26quot%3B%26lt%3Ba%20class%3D%26%23039%3Bzp-ItemURL%26%23039%3B%20href%3D%26%23039%3Bhttp%3A%5C%2F%5C%2Fwww.thieme-connect.de%5C%2FDOI%5C%2FDOI%3F10.1055%5C%2Fs-0030-1266142%26%23039%3B%26gt%3BEurop%5Cu00e4ische%20Empfehlungen%20zur%20Palliativversorgung%20und%20Hospizarbeit%20und%20ihre%20Umsetzung%20in%20Deutschland%26lt%3B%5C%2Fa%26gt%3B.%26quot%3B%20%26lt%3Bi%26gt%3BZeitschrift%20f%5Cu00fcr%20Palliativmedizin%26lt%3B%5C%2Fi%26gt%3B%2012%2C%20no.%204%20%28July%202011%29%3A%20175%5Cu201383.%20https%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1055%5C%2Fs-0030-1266142.%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Europ%5Cu00e4ische%20Empfehlungen%20zur%20Palliativversorgung%20und%20Hospizarbeit%20und%20ihre%20Umsetzung%20in%20Deutschland%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22L.%22%2C%22lastName%22%3A%22Radbruch%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22C.%22%2C%22lastName%22%3A%22Bausewein%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22S.%20T.%22%2C%22lastName%22%3A%22Simon%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22W.%22%2C%22lastName%22%3A%22Sipp%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22W.%22%2C%22lastName%22%3A%22Wodarg%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22S.%22%2C%22lastName%22%3A%22J%5Cu00fcnger%22%7D%5D%2C%22abstractNote%22%3A%22Thieme%20E-Books%20%26amp%3B%20E-Journals%22%2C%22date%22%3A%222011%5C%2F07%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1055%5C%2Fs-0030-1266142%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22http%3A%5C%2F%5C%2Fwww.thieme-connect.de%5C%2FDOI%5C%2FDOI%3F10.1055%5C%2Fs-0030-1266142%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%221615-2921%2C%201615-293X%22%2C%22language%22%3A%22de%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%2299FDCW4Z%22%2C%22I6PUATQS%22%2C%22P9CVNWVH%22%5D%2C%22dateModified%22%3A%222021-03-23T15%3A58%3A13Z%22%7D%7D%2C%7B%22key%22%3A%22FC3IUCLR%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Reifegerste%20et%20al.%22%2C%22parsedDate%22%3A%222019%22%2C%22numChildren%22%3A2%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BReifegerste%2C%20Doreen%2C%20Fabian%20Czerwinski%2C%20Magdalena%20Rosset%2C%20Eva%20Baumann%2C%20Evelyn%20Kludt%2C%20and%20Susanne%20Weg-Remers.%20%26%23x201C%3BDemographic%20and%20Cancer-Related%20Differences%20between%20Self-Seeking%20Patients%20and%20Supported%20Patients%3A%20Analysis%20of%20Cancer%20Information-Service%20Data.%26%23x201D%3B%20%26lt%3Bi%26gt%3BPsycho-Oncology%26lt%3B%5C%2Fi%26gt%3B%2028%2C%20no.%204%20%282019%29%3A%20759%26%23x2013%3B66.%20%26lt%3Ba%20class%3D%26%23039%3Bzp-DOIURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1002%5C%2Fpon.5016%26%23039%3B%26gt%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1002%5C%2Fpon.5016%26lt%3B%5C%2Fa%26gt%3B.%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Demographic%20and%20cancer-related%20differences%20between%20self-seeking%20patients%20and%20supported%20patients%3A%20Analysis%20of%20cancer%20information-service%20data%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Doreen%22%2C%22lastName%22%3A%22Reifegerste%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Fabian%22%2C%22lastName%22%3A%22Czerwinski%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Magdalena%22%2C%22lastName%22%3A%22Rosset%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Eva%22%2C%22lastName%22%3A%22Baumann%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Evelyn%22%2C%22lastName%22%3A%22Kludt%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Susanne%22%2C%22lastName%22%3A%22Weg-Remers%22%7D%5D%2C%22abstractNote%22%3A%22OBJECTIVE%3A%20Surrogate%20information%20seeking%20is%20quite%20common%2C%20and%20several%20studies%20have%20presented%20data%20on%20caregivers%2C%20family%20members%2C%20and%20friends%20who%20seek%20health%20information%20on%20the%20Internet%20or%20from%20a%20cancer-information%20service%20%28CIS%29%20on%20behalf%20of%20cancer%20patients.%20However%2C%20these%20studies%20provide%20little%20information%20about%20the%20patients%20who%20are%20supported%20by%20surrogate%20seekers.%20Therefore%2C%20this%20study%20analyzed%20demographic%20and%20cancer-related%20differences%2C%20including%20diverse%20informational%20needs%2C%20between%20self-seeking%20patients%20and%20patients%20who%20benefited%20from%20surrogate%20seekers%20%28ie%2C%20caregivers%2C%20family%2C%20or%20friends%29%20requesting%20information%20on%20their%20behalf.%5CnMETHODS%3A%20We%20conducted%20a%20retrospective%20audit%20of%20phone%20and%20e-mail%20inquiries%20to%20a%20German%20CIS%20between%20January%20and%20December%202016%20from%20self-seeking%20patients%20%28n%5Cu00a0%3D%5Cu00a013%5Cu00a0723%29%20and%20surrogate%20information%20seekers%2C%20as%20well%20as%20the%20corresponding%20supported%20patients%20%28n%5Cu00a0%3D%5Cu00a06696%29.%5CnRESULTS%3A%20Supported%20patients%20were%20more%20likely%20to%20be%20males%20%28P%5Cu00a0%26lt%3B%5Cu00a00.001%29%2C%20older%20than%20self-seeking%20patients%20%28P%5Cu00a0%26lt%3B%5Cu00a00.001%29%2C%20and%20older%20than%20the%20corresponding%20surrogate%20seekers%20%28P%5Cu00a0%26lt%3B%5Cu00a00.001%29.%20They%20were%20also%20more%20likely%20to%20be%20in%20the%20diagnostic%20or%20palliative%20stage%20%28P%5Cu00a0%26lt%3B%5Cu00a00.001%29%20and%20were%20less%20likely%20to%20suffer%20from%20breast%20cancer%20or%20prostate%20cancer%20%28P%5Cu00a0%26lt%3B%5Cu00a00.001%29%20than%20self-seeking%20patients.%20There%20were%20significant%20differences%20in%20the%20CIS%20requests%20of%20self-seekers%20and%20surrogate%20seekers.%5CnCONCLUSIONS%3A%20The%20results%20point%20to%20different%20support%20needs%20of%20self-seekers%20and%20surrogate%20seekers.%20Thus%2C%20surrogate%20seekers%20and%20their%20corresponding%20supported%20patients%20should%20be%20seen%20as%20a%20separate%20target%20group%20to%20self-seeking%20patients%2C%20with%20the%20former%20requiring%20informational%20and%20emotional%20support%20on%20diverging%20topics%20and%20at%20different%20disease%20stages.%22%2C%22date%22%3A%2204%202019%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1002%5C%2Fpon.5016%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%221099-1611%22%2C%22language%22%3A%22eng%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%227NLACL24%22%2C%2299FDCW4Z%22%2C%22AQHM6PNY%22%2C%22C33IVT4V%22%2C%22EBMCDUNP%22%2C%22IKLALR4Z%22%2C%22W637CI9M%22%5D%2C%22dateModified%22%3A%222024-05-26T15%3A06%3A37Z%22%7D%7D%2C%7B%22key%22%3A%222RDCB24E%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Romotzky%20et%20al.%22%2C%22parsedDate%22%3A%222018-03-08%22%2C%22numChildren%22%3A2%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BRomotzky%2C%20Vanessa%2C%20Julia%20Strupp%2C%20Alexander%20Hayn%2C%20Jens%20Ulrich%20R%26%23xFC%3Bffer%2C%20Judith%20Gr%26%23xFC%3Bmmer%2C%20and%20Raymond%20Voltz.%20%26%23x201C%3B%26%23x2018%3BAll%20of%20a%20Sudden%2C%20a%20Lot%20Less%20Still%20Makes%20It%20Worthwhile%20to%20Be%20Alive%3A%26%23x2019%3B%20Palliative%20Care%20Patients%26%23x2019%3B%20Views%20on%20Life.%26%23x201D%3B%20%26lt%3Bi%26gt%3BPalliative%20%26amp%3B%20Supportive%20Care%26lt%3B%5C%2Fi%26gt%3B%2C%20March%208%2C%202018%2C%201%26%23x2013%3B7.%20%26lt%3Ba%20class%3D%26%23039%3Bzp-DOIURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1017%5C%2FS1478951518000081%26%23039%3B%26gt%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1017%5C%2FS1478951518000081%26lt%3B%5C%2Fa%26gt%3B.%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22%5C%22All%20of%20a%20sudden%2C%20a%20lot%20less%20still%20makes%20it%20worthwhile%20to%20be%20alive%3A%5C%22%20Palliative%20care%20patients%27%20views%20on%20life%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Vanessa%22%2C%22lastName%22%3A%22Romotzky%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Julia%22%2C%22lastName%22%3A%22Strupp%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Alexander%22%2C%22lastName%22%3A%22Hayn%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Jens%20Ulrich%22%2C%22lastName%22%3A%22R%5Cu00fcffer%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Judith%22%2C%22lastName%22%3A%22Gr%5Cu00fcmmer%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Raymond%22%2C%22lastName%22%3A%22Voltz%22%7D%5D%2C%22abstractNote%22%3A%22OBJECTIVE%3A%20We%20aimed%20to%20elucidate%20the%20views%20on%20life%20as%20narrated%20by%20patients%20in%20palliative%20care%20%28PC%29%20to%20find%20out%20what%20patients%20deem%20to%20be%20essential%20in%20their%20life%2C%20whether%20something%20has%20changed%20concerning%20their%20view%20of%20life%20in%20light%20of%20the%20disease%2C%20and%20whether%20interviewees%20would%20like%20to%20give%20others%20something%20to%20take%20with%20them.%5CnMETHOD%3A%20Data%20were%20collected%20from%20narrative%20audio%20and%20video%20interviews%20with%2018%20inpatients%20in%20a%20specialized%20PC%20unit.%20Interviews%20were%20recorded%20and%20transcribed%20verbatim%20and%20analyzed%20using%20qualitative%20content%20analysis%20applying%20MAXQDA%20software.%20CDs%20and%20DVDs%20with%20recorded%20interviews%20were%20provided%20to%20patients.%20Result%20Eighteen%20interviews%20were%20analyzed%3A%2011%20audio%20and%207%20video%20recordings.%20The%20age%20range%20was%2041-80%20years.%20Patients%20reported%20on%20changes%20in%20their%20views%20on%20life.%20Despite%20it%20being%20a%20complex%20and%20painful%20process%2C%20patients%20still%20gave%20examples%20of%20benefits%20experienced%20during%20their%20illness%20trajectory.%20Patients%20identified%20resources%20and%20coping%20strategies%20such%20as%20meaningful%20contacts%20with%20close%20others%20and%20mindfulness.%20Shifts%20have%20occurred%20in%20terms%20of%20taking%20more%20time%20for%20themselves%2C%20enjoying%20the%20moment%2C%20being%20more%20calm%2C%20and%20spending%20more%20time%20with%20family%20and%20friends.%20What%20patients%20wanted%20to%20pass%20on%20to%20others%20was%20to%20pay%20attention%20to%20the%20needs%20of%20both%20the%20self%20and%20the%20others%2C%20shape%20your%20life%20individually%2C%20confront%20yourself%20early%20with%20issues%20of%20death%20and%20dying%2C%20and%20care%20for%20your%20fellow%20human%20beings.%20Patients%20and%20relatives%20valued%20the%20opportunity%20to%20keep%20their%20interview%20as%20a%20CD%5C%2FDVD.%20Significance%20of%20results%20Results%20support%20the%20idea%20that%20many%20people%20facing%20terminal%20illness%20continue%20to%20focus%20on%20living%20and%20remain%20within%20their%20biographies%20and%20the%20contexts%20of%20their%20lives%2C%20even%20if%20their%20functional%20status%20declines.%20Patients%20and%20relatives%20appreciated%20that%20interviews%20were%20provided%20as%20kind%20of%20a%20legacy.%20Yet%2C%20more%20robust%20research%20is%20needed%20to%20decide%20whether%20such%20interviews%20yield%20any%20therapeutic%20effect.%22%2C%22date%22%3A%22Mar%2008%2C%202018%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1017%5C%2FS1478951518000081%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%221478-9523%22%2C%22language%22%3A%22eng%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%2299FDCW4Z%22%2C%22BEQ38XPW%22%2C%22J987ELTY%22%2C%22LSGM8V2E%22%2C%22S488ZYK4%22%2C%22X7PUUBWP%22%5D%2C%22dateModified%22%3A%222024-05-15T09%3A05%3A36Z%22%7D%7D%2C%7B%22key%22%3A%22FQP3P5W7%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Schartmann-Unrath%20et%20al.%22%2C%22parsedDate%22%3A%222007-12-01%22%2C%22numChildren%22%3A1%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BSchartmann-Unrath%2C%20D.%2C%20Frank%20Elsner%2C%20V.%20Jaust%2C%20R.%20Joppich%2C%20S.%20J%26%23xFC%3Bnger%2C%20and%20Lukas%20Radbruch.%20%26%23x201C%3BHistorische%20Entwicklung%20und%20heutiger%20Stand%20der%20Palliativversorgung%20in%20der%20Region%20Aachen.%26%23x201D%3B%20%26lt%3Bi%26gt%3BZeitschrift%20f%26%23xFC%3Br%20Palliativmedizin%26lt%3B%5C%2Fi%26gt%3B%208%20%28December%201%2C%202007%29.%20%26lt%3Ba%20class%3D%26%23039%3Bzp-DOIURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1055%5C%2Fs-2007-986300%26%23039%3B%26gt%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.1055%5C%2Fs-2007-986300%26lt%3B%5C%2Fa%26gt%3B.%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Historische%20Entwicklung%20und%20heutiger%20Stand%20der%20Palliativversorgung%20in%20der%20Region%20Aachen%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22D.%22%2C%22lastName%22%3A%22Schartmann-Unrath%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Frank%22%2C%22lastName%22%3A%22Elsner%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22V.%22%2C%22lastName%22%3A%22Jaust%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22R.%22%2C%22lastName%22%3A%22Joppich%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22S.%22%2C%22lastName%22%3A%22J%5Cu00fcnger%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Lukas%22%2C%22lastName%22%3A%22Radbruch%22%7D%5D%2C%22abstractNote%22%3A%22Hintergrund%20In%20der%20Region%20Aachen%20hat%20sich%20eine%20grenz%5Cu00fcberschreitende%20Landschaft%20von%20Hospizen%20und%20palliativen%20Einrichtungen%20gebildet.%20Zur%20Erfassung%20des%20Versorgungsstands%20wurde%20das%20PIA-Inventar%20%28Palliativ-Informationen%20Aachen%29%20erstellt%2C%20in%20das%20Einrichtungen%20aufgenommen%20wurden%2C%20die%20in%20die%20Betreuung%20von%20Palliativpatienten%20eingebunden%20sind.%20Es%20werden%20Ergebnisse%20von%20Interviews%20mit%20wichtigen%20Entscheidungstr%5Cu00e4gern%2C%20sogenannten%20Schl%5Cu00fcsselpersonen%2C%20dargestellt.%20Dabei%20wird%20sowohl%20das%20bisher%20Erreichte%20als%20auch%20ein%20zuk%5Cu00fcnftiger%20Bedarf%20offengelegt.%20Methodik%20Erg%5Cu00e4nzend%20zu%20Telefoninterviews%20mit%20Pflegediensten%2C%20Arztpraxen%20und%20anderen%20Behandelnden%20wurden%20im%20Januar%202006%20Schl%5Cu00fcsselpersonen%20der%20Hospiz-%20und%20Palliativarbeit%20von%20Mitarbeitern%20der%20Klinik%20f%5Cu00fcr%20Palliativmedizin%20anhand%20semistrukturierter%20Interviews%20befragt.%20Die%20Daten%20wurden%20inhaltsanalytisch%20ausgewertet.%20Ergebnisse%20Die%20Auswertung%20der%20Interviews%20mit%20den%20Schl%5Cu00fcsselpersonen%20zeigt%20unterschiedliche%20Ans%5Cu00e4tze%20bei%20der%20Gr%5Cu00fcndung%20der%20jeweiligen%20Institutionen.%20Zielgruppen%20dieser%20Institutionen%20bzw.%20Einrichtungen%20sind%20nicht%20nur%20Palliativpatienten%20selbst%2C%20sondern%20auch%20Betreuende%20und%20die%20%5Cu00d6ffentlichkeit.%20Insgesamt%20l%5Cu00e4sst%20sich%20eine%20enge%20Vernetzung%20aller%20Einrichtungen%20hervorheben.%20L%5Cu00fccken%20werden%20in%20der%20Finanzierung%2C%20den%20fehlenden%20Bedarfszahlen%2C%20in%20der%20Aufkl%5Cu00e4rung%20der%20%5Cu00d6ffentlichkeit%2C%20den%20Qualit%5Cu00e4tsstandards%20und%20in%20der%20Zusammenarbeit%20mit%20Kliniken%20gesehen.%20Die%20unterschiedlichen%20sozialen%20Sicherungssysteme%20Belgiens%2C%20der%20Niederlande%20und%20Deutschlands%20behindern%20bisher%20eine%20engere%20Zusammenarbeit.%20Verbesserungsvorschl%5Cu00e4ge%20reichen%20von%20mehr%20%5Cu00d6ffentlichkeitsarbeit%20%5Cu00fcber%20intensivere%20Kooperation%20bis%20zu%20bedarfsbezogeneren%20L%5Cu00f6sungen%20f%5Cu00fcr%20Palliativpatienten.%20Schlussfolgerungen%20In%20der%20Region%20Aachen%20hat%20sich%20in%20den%20letzten%2030%20Jahren%20eine%20tragf%5Cu00e4hige%2C%20ausbauf%5Cu00e4hige%20Palliativlandschaft%20gestaltet.%20Eine%20weitere%2C%20auch%20grenz%5Cu00fcbergreifende%20Vernetzung%20k%5Cu00f6nnte%20die%20Versorgung%20der%20Palliativpatienten%20verbessern%20und%20langfristig%20die%20Akzeptanz%20der%20Einrichtungen%20in%20der%20Bev%5Cu00f6lkerung%20erh%5Cu00f6hen.%20Die%20Finanzierung%20einiger%20Einrichtungen%20ist%20unsicher.%20Bedarfszahlen%20gibt%20es%20bisher%20nicht.%22%2C%22date%22%3A%222007-12-01%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.1055%5C%2Fs-2007-986300%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%22%22%2C%22language%22%3A%22de%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%226DCTQ3Z4%22%2C%2299FDCW4Z%22%2C%22I6PUATQS%22%2C%22P9CVNWVH%22%2C%22SPWXRLZV%22%2C%22X7PUUBWP%22%5D%2C%22dateModified%22%3A%222024-06-06T03%3A44%3A41Z%22%7D%7D%2C%7B%22key%22%3A%22IT6THG5R%22%2C%22library%22%3A%7B%22id%22%3A6298796%7D%2C%22meta%22%3A%7B%22creatorSummary%22%3A%22Sim%5Cu00f5es%20Corr%5Cu00eaa%20Galendi%20et%20al.%22%2C%22parsedDate%22%3A%222022%22%2C%22numChildren%22%3A1%7D%2C%22bib%22%3A%22%26lt%3Bdiv%20class%3D%26quot%3Bcsl-bib-body%26quot%3B%20style%3D%26quot%3Bline-height%3A%201.35%3B%20padding-left%3A%201em%3B%20text-indent%3A-1em%3B%26quot%3B%26gt%3B%5Cn%20%20%26lt%3Bdiv%20class%3D%26quot%3Bcsl-entry%26quot%3B%26gt%3BSim%26%23xF5%3Bes%20Corr%26%23xEA%3Ba%20Galendi%2C%20Julia%2C%20Sin%20Yuin%20Yeo%2C%20Holger%20Gr%26%23xFC%3Bll%2C%20Grischa%20Bratke%2C%20Dennis%20Akuamoa-Boateng%2C%20Christian%20Baues%2C%20Clemens%20Bos%2C%20et%20al.%20%26%23x201C%3BEarly%20Economic%20Modeling%20of%20Magnetic%20Resonance%20Image-Guided%20High%20Intensity%20Focused%20Ultrasound%20Compared%20to%20Radiotherapy%20for%20Pain%20Palliation%20of%20Bone%20Metastases.%26%23x201D%3B%20%26lt%3Bi%26gt%3BFrontiers%20in%20Oncology%26lt%3B%5C%2Fi%26gt%3B%2012%20%282022%29%3A%20987546.%20%26lt%3Ba%20class%3D%26%23039%3Bzp-DOIURL%26%23039%3B%20href%3D%26%23039%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.3389%5C%2Ffonc.2022.987546%26%23039%3B%26gt%3Bhttps%3A%5C%2F%5C%2Fdoi.org%5C%2F10.3389%5C%2Ffonc.2022.987546%26lt%3B%5C%2Fa%26gt%3B.%26lt%3B%5C%2Fdiv%26gt%3B%5Cn%26lt%3B%5C%2Fdiv%26gt%3B%22%2C%22data%22%3A%7B%22itemType%22%3A%22journalArticle%22%2C%22title%22%3A%22Early%20economic%20modeling%20of%20magnetic%20resonance%20image-guided%20high%20intensity%20focused%20ultrasound%20compared%20to%20radiotherapy%20for%20pain%20palliation%20of%20bone%20metastases%22%2C%22creators%22%3A%5B%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Julia%22%2C%22lastName%22%3A%22Sim%5Cu00f5es%20Corr%5Cu00eaa%20Galendi%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Sin%20Yuin%22%2C%22lastName%22%3A%22Yeo%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Holger%22%2C%22lastName%22%3A%22Gr%5Cu00fcll%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Grischa%22%2C%22lastName%22%3A%22Bratke%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Dennis%22%2C%22lastName%22%3A%22Akuamoa-Boateng%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Christian%22%2C%22lastName%22%3A%22Baues%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Clemens%22%2C%22lastName%22%3A%22Bos%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Helena%20M.%22%2C%22lastName%22%3A%22Verkooijen%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Arim%22%2C%22lastName%22%3A%22Shukri%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Stephanie%22%2C%22lastName%22%3A%22Stock%22%7D%2C%7B%22creatorType%22%3A%22author%22%2C%22firstName%22%3A%22Dirk%22%2C%22lastName%22%3A%22M%5Cu00fcller%22%7D%5D%2C%22abstractNote%22%3A%22INTRODUCTION%3A%20Magnetic%20Resonance%20Image-guided%20High%20Intensity%20Focused%20Ultrasound%20%28MR-HIFU%29%20is%20a%20non-invasive%20treatment%20option%20for%20palliative%20patients%20with%20painful%20bone%20metastases.%20Early%20evidence%20suggests%20that%20MR-HIFU%20is%20associated%20with%20similar%20overall%20treatment%20response%2C%20but%20more%20rapid%20pain%20palliation%20compared%20to%20external%20beam%20radiotherapy%20%28EBRT%29.%20This%20modelling%20study%20aimed%20to%20assess%20the%20cost-effectiveness%20of%20MR-HIFU%20as%20an%20alternative%20treatment%20option%20for%20painful%20bone%20metastases%20from%20the%20perspective%20of%20the%20German%20Statutory%20Health%20Insurance%20%28SHI%29.%5CnMATERIALS%20AND%20METHODS%3A%20A%20microsimulation%20model%20with%20lifelong%20time%20horizon%20and%20one-month%20cycle%20length%20was%20developed.%20To%20calculate%20the%20incremental%20cost-effectiveness%20ratio%20%28ICER%29%2C%20strategy%20A%20%28MR-HIFU%20as%20first-line%20treatment%20or%20as%20retreatment%20option%20in%20case%20of%20persistent%20pain%20or%20only%20partial%20pain%20relief%20after%20EBRT%29%20was%20compared%20to%20strategy%20B%20%28EBRT%20alone%29%20for%20patients%20with%20bone%20metastases%20due%20to%20breast%2C%20prostate%2C%20or%20lung%20cancer.%20Input%20parameters%20used%20for%20the%20model%20were%20extracted%20from%20the%20literature.%20Results%20were%20expressed%20as%20EUR%20per%20quality-adjusted%20life%20years%20%28QALYs%29%20and%20EUR%20per%20pain%20response%20%28i.e.%2C%20months%20spent%20with%20complete%20or%20partial%20pain%20response%29.%20Deterministic%20and%20probabilistic%20sensitivity%20analyses%20%28PSA%29%20were%20performed%20to%20test%20the%20robustness%20of%20results%2C%20and%20a%20value%20of%20information%20analysis%20was%20conducted.%5CnRESULTS%3A%20Compared%20to%20strategy%20B%2C%20strategy%20A%20resulted%20in%20additional%20costs%20%28EUR%20399%29%20and%20benefits%20%280.02%20QALYs%20and%200.95%20months%20with%20pain%20response%29.%20In%20the%20base%20case%2C%20the%20resulting%20ICERs%20%28strategy%20A%20vs.%20strategy%20B%29%20are%20EUR%2019%2C845%5C%2FQALY%20and%20EUR%20421%20per%20pain%20response.%20Offering%20all%20patients%20MR-HIFU%20as%20first-line%20treatment%20would%20increase%20the%20ICER%20by%2050%25%20%2831%2C048%20EUR%5C%2FQALY%29.%20PSA%20showed%20that%20at%20a%20%28hypothetical%29%20willingness%20to%20pay%20of%20EUR%2020%2C000%5C%2FQALY%2C%20the%20probability%20of%20MR-HIFU%20being%20cost-effective%20was%2052%25.%20The%20expected%20value%20of%20perfect%20information%20%28EVPI%29%20for%20the%20benefit%20population%20in%20Germany%20is%20approximately%20EUR%20190%20Mio.%5CnCONCLUSION%3A%20Although%20there%20is%20considerable%20uncertainty%2C%20the%20results%20demonstrate%20that%20introducing%20MR-HIFU%20as%20a%20treatment%20alternative%20for%20painful%20bone%20metastases%20might%20be%20cost-effective%20for%20the%20German%20SHI.%20The%20high%20EVPI%20indicate%20that%20further%20studies%20to%20reduce%20uncertainty%20would%20be%20worthwhile.%22%2C%22date%22%3A%222022%22%2C%22section%22%3A%22%22%2C%22partNumber%22%3A%22%22%2C%22partTitle%22%3A%22%22%2C%22DOI%22%3A%2210.3389%5C%2Ffonc.2022.987546%22%2C%22citationKey%22%3A%22%22%2C%22url%22%3A%22%22%2C%22PMID%22%3A%22%22%2C%22PMCID%22%3A%22%22%2C%22ISSN%22%3A%222234-943X%22%2C%22language%22%3A%22eng%22%2C%22collections%22%3A%5B%2246NNKHWR%22%2C%2299FDCW4Z%22%2C%22H4RZ68DD%22%2C%22NPCAGTXX%22%2C%22P9CVNWVH%22%2C%22W637CI9M%22%5D%2C%22dateModified%22%3A%222024-05-15T13%3A51%3A42Z%22%7D%7D%5D%7D
Afshar, Kambiz, Angelika Feichtner, Kirsty Boyd, Scott Murray, Saskia Jünger, Birgitt Wiese, Nils Schneider, and Gabriele Müller-Mundt. “Systematic Development and Adjustment of the German Version of the Supportive and Palliative Care Indicators Tool (SPICT-DE).” BMC Palliative Care 17, no. 1 (February 17, 2018): 27. https://doi.org/10.1186/s12904-018-0283-7.
Behmann, Mareike, Saskia Jünger, Lukas Radbruch, and Nils Schneider. "Public health actions to improve palliative care in Germany: Results of a three-round Delphi study." Health Policy 106, no. 3 (August 1, 2012): 303–12. https://doi.org/10.1016/j.healthpol.2012.03.014.
Behmann, M., S. Jünger, L. Radbruch, and N. Schneider. "Kernmaßnahmen zur Entwicklung der Palliativversorgung aus Public-Health-Perspektive." Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz 54, no. 5 (May 1, 2011): 642–48. https://doi.org/10.1007/s00103-011-1267-4.
Breuing, Jessica, Nadja Könsgen, Katharina Doni, Annika Lena Neuhaus, and Dawid Pieper. “Information Needs of Patients Undergoing Bariatric Surgery in Germany: A Qualitative Study.” BMC Health Services Research 22, no. 1 (April 19, 2022): 515. https://doi.org/10.1186/s12913-022-07950-2.
Dust, Gloria, Nicolas Schippel, Stephanie Stock, Julia Strupp, Raymond Voltz, Christian Rietz, and CoRe-Net Co-applicants. “Quality of Care in the Last Year of Life: Adaptation and Validation of the German ‘Views of Informal Carers’ Evaluation of Services - Last Year of Life - Cologne.’” BMC Health Services Research 22, no. 1 (November 28, 2022): 1433. https://doi.org/10.1186/s12913-022-08700-0.
Ehmann, Michael, Martin Härter, Ralf Rambach, and Eva Winkler. “Onkologische Therapien - was sind patientenrelevante Endpunkte?” Onkologie 36 Suppl 6 (2013): 5–8. https://doi.org/10.1159/000353716.
Ernstmann, Nicole, Anna Enders, Sarah Halbach, Hannah Nakata, Christina Kehrer, Holger Pfaff, and Franziska Geiser. “Psycho-Oncology Care in Breast Cancer Centres: A Nationwide Survey.” BMJ Supportive & Palliative Care, April 13, 2019. https://doi.org/10.1136/bmjspcare-2018-001704.
Ewertowski, Helen, Fabian Tetzlaff, Stephanie Stiel, Nils Schneider, and Saskia Jünger. "Primary palliative Care in General Practice – study protocol of a three-stage mixed-methods organizational health services research study." BMC Palliative Care 17, no. 1 (January 30, 2018): 21.
Gaertner, Jan, Sonja Zindel, Stephanie Stock, and Raymond Voltz. “Talking about Life-Threatening Illness. JPM Patient Information.” Journal of Palliative Medicine 13, no. 11 (November 2010): 1396–97. https://doi.org/10.1089/jpm.2010.9758.
Gaertner, Jan, Waldemar Siemens, Joerg J Meerpohl, Gerd Antes, Cornelia Meffert, Carola Xander, Stephanie Stock, Dirk Mueller, Guido Schwarzer, and Gerhild Becker. "Effect of specialist palliative care services on quality of life in adults with advanced incurable illness in hospital, hospice, or community settings: systematic review and meta-analysis." BMJ, July 4, 2017, j2925. https://doi.org/10.1136/bmj.j2925.
Geiger, Karin, Nils Schneider, Jutta Bleidorn, Katharina Klindtworth, Saskia Jünger, and Gabriele Müller-Mundt. “Caring for Frail Older People in the Last Phase of Life - the General Practitioners’ View.” BMC Palliative Care 15 (June 2, 2016): 52. https://doi.org/10.1186/s12904-016-0124-5.
Hentrich, Marie-Christin, S. Jünger, Marion Grumbach-Wendt, S. Reichling, and Lukas Radbruch. "Die Palliativversorgung von Kindern und Jugendlichen in Nordrhein-Westfalen aus der Sicht der Eltern." Zeitschrift für Palliativmedizin 10 (December 1, 2009). https://doi.org/10.1055/s-0029-1223415.
Hodiamont, Farina, Saskia Jünger, Reiner Leidl, Bernd Oliver Maier, Eva Schildmann, and Claudia Bausewein. “Understanding Complexity - the Palliative Care Situation as a Complex Adaptive System.” BMC Health Services Research 19, no. 1 (March 12, 2019): 157. https://doi.org/10.1186/s12913-019-3961-0.
Hodiamont, Farina, Helena Hock, Clare Ellis-Smith, Catherine Evans, Susanne de Wolf-Linder, Saskia Jünger, Janine Diehl-Schmid, Isabel Burner-Fritsch, and Claudia Bausewein. “Culture in the Spotlight-Cultural Adaptation and Content Validity of the Integrated Palliative Care Outcome Scale for Dementia: A Cognitive Interview Study.” Palliative Medicine 35, no. 5 (May 2021): 962–71. https://doi.org/10.1177/02692163211004403.
Jünger, S., and S. Payne. "Guidance on postgraduate education for psychologists involved in palliative care." European Journal of Palliative Care 18 (January 1, 2011): 238–52.
Jünger, Saskia, and Lukas Radbruch. “Cartographers in an Uncharted Terrain--the Importance of Going the Extra Mile.” European Journal of Pediatrics 172, no. 1 (January 2013): 1–3. https://doi.org/10.1007/s00431-012-1881-7.
Jünger, S., Sheila Payne, Anna Costantini, C. Kalus, and J. Werth. "The EAPC TASK Force on education for psychologists in palliative care." European Journal of Palliative Care 17 (March 1, 2010).
Jünger, Saskia, Sheila Payne, Sarah Brearley, Verena Ploenes, and Lukas Radbruch. "Consensus Building in Palliative Care: A Europe-Wide Delphi Study on Common Understandings and Conceptual Differences." Journal of Pain and Symptom Management 44, no. 2 (August 1, 2012): 192–205. https://doi.org/10.1016/j.jpainsymman.2011.09.009.
Jünger, S., Sheila Payne, A. Costantini, C. Kalus, and J. L. Werth. "EAPC task force on education for psychologists in palliative care." European Journal of Palliative Care 17, no. 2 (March 2010): 84–87.
Jünger, Saskia, Andrea E. Vedder, Sigurd Milde, Thomas Fischbach, Boris Zernikow, and Lukas Radbruch. "Paediatric palliative home care by general paediatricians: a multimethod study on perceived barriers and incentives." BMC Palliative Care 9, no. 1 (June 4, 2010): 11.
Jünger, Saskia, Tania Pastrana, Martina Pestinger, Martina Kern, Boris Zernikow, and Lukas Radbruch. "Barriers and needs in paediatric palliative home care in Germany: a qualitative interview study with professional experts." BMC Palliative Care 9, no. 1 (June 2, 2010): 10.
Jünger, Saskia, Jasper Klose, Sarah Brearley, Katalin Hegedus, Sheila Payne, and Lukas Radbruch. “Palliative Care Information Needs in Central and Eastern Europe and the Commonwealth of Independent States.” Journal of Palliative Care 31, no. 2 (2015): 109–17. https://doi.org/10.1177/082585971503100207.
Jünger, S, M Pestinger, Frank Elsner, Norbert Krumm, and Lukas Radbruch. "Erfolgskriterien berufsgruppenübergreifender Kooperation im Team einer Palliativstation." Zeitschrift für Palliativmedizin 7 (August 1, 2006). https://doi.org/10.1055/s-2006-954097.
Jünger, S, M Pestinger, Frank Elsner, Norbert Krumm, and Lukas Radbruch. "Criteria for successful multiprofessional cooperation in palliative care teams." Palliative medicine 21 (July 1, 2007): 347–54. https://doi.org/10.1177/0269216307078505.
Jünger, S., S. A. Payne, J. Brine, L. Radbruch, and S. G. Brearley. "Verwendung der Delphi-Technik zur Entwicklung von Best-Practice-Leitlinien in der Palliativversorgung – eine methodologische systematische Übersichtsarbeit." In Zeitschrift für Palliativmedizin, 17:P174. Georg Thieme Verlag KG, 2016. https://doi.org/10.1055/s-0036-1594187.
Jünger, Saskia, Nils Schneider, Birgitt Wiese, Jochen Vollmann, and Jan Schildmann. "Palliativversorgung und Sterbehilfe." In Gesundheitsmonitor 2016: Bürgerorientierung im Gesundheitswesen, 253 ff. Gütersloh: Verlag Bertelsmann Stiftung, 2016.
Jünger, S, N Schneider, Birgitt Wiese, Jochen Vollmann, and J Schildmann. "Haltungen zur Palliativversorgung und zur ärztlich assistierten Selbsttötung – eine repräsentative Bevölkerungsumfrage." Zeitschrift für Palliativmedizin 17 (December 13, 2016): 1–59. https://doi.org/10.1055/s-0036-1594155.
Jünger, S, Andrea Vedder, Tania Pastrana, M Pestinger, and Lukas Radbruch. "Ambulante pädiatrische Palliativversorgung durch niedergelassene Kinder und Jugendärzte." Zeitschrift für Palliativmedizin 9 (September 1, 2008). https://doi.org/10.1055/s-0028-1088458.
Jünger, Saskia, Sarah Brearley, Sheila Payne, Aukje Mantel-Teeuwisse, Thomas Lynch, Willem Scholten, and Lukas Radbruch. "Consensus Building on Access to Controlled Medicines: A Four-Stage Delphi Consensus Procedure." Journal of Pain and Symptom Management 46 (May 21, 2013). https://doi.org/10.1016/j.jpainsymman.2013.01.014.
Jünger, Saskia, Sheila Payne, Jenny Brine, Lukas Radbruch, and Sarah Brearley. "Guidance on Conducting and REporting DElphi Studies (CREDES) in palliative care: Recommendations based on a methodological systematic review." Palliative Medicine 31 (February 13, 2017): 026921631769068. https://doi.org/10.1177/0269216317690685.
Kasdorf, Alina, Gloria Dust, Nicolas Schippel, Holger Pfaff, Christian Rietz, Raymond Voltz, Julia Strupp, and And on Behalf Of CoRe-Net. "Dying in hospital is worse for non-cancer patients. A regional cross-sectional survey of bereaved relatives' views." European Journal of Cancer Care 31, no. 6 (2022): e13683. https://doi.org/10.1111/ecc.13683.
Kasdorf, Alina, Gloria Dust, Stefanie Hamacher, Nicolas Schippel, Christian Rietz, Raymond Voltz, Julia Strupp, and CoRe-Net. “The Last Year of Life for Patients Dying from Cancer vs. Non-Cancer Causes: A Retrospective Cross-Sectional Survey of Bereaved Relatives.” Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer 30, no. 6 (June 2022): 4971–79. https://doi.org/10.1007/s00520-022-06908-8.
Klose, J, S Jünger, Katalin Hegedus, Tom Lynch, A Greenwood, S Payne, and Lukas Radbruch. "Informationsbedarf zur Palliativversorgung in Mittel- und Osteuropa und der Gemeinschaft Unabhängiger Staaten." Zeitschrift für Palliativmedizin 13 (September 5, 2012). https://doi.org/10.1055/s-0032-1323126.
Kremeike, Kerstin, Thomas Dojan, Carolin Rosendahl, Saskia Jünger, Vanessa Romotzky, Kathleen Boström, Gerrit Frerich, and Raymond Voltz. “‘Withstanding Ambivalence Is of Particular Importance’-Controversies among Experts on Dealing with Desire to Die in Palliative Care.” PloS One 16, no. 9 (2021): e0257382. https://doi.org/10.1371/journal.pone.0257382.
Kremeike, Kerstin, Gerrit Frerich, Vanessa Romotzky, Kathleen Boström, Thomas Dojan, Maren Galushko, Kija Shah-Hosseini, et al. “The Desire to Die in Palliative Care: A Sequential Mixed Methods Study to Develop a Semi-Structured Clinical Approach.” BMC Palliative Care 19, no. 1 (April 16, 2020): 49. https://doi.org/10.1186/s12904-020-00548-7.
Kremeike, Kerstin, Nina Eulitz, Saskia Jünger, Annette Sander, Max Geraedts, and Dirk Reinhardt. "Paediatric palliative home care in areas of Germany with low population density and long distances: a questionnaire survey with general paediatricians." BMC Research Notes 5, no. 1 (September 11, 2012): 498.
Lamb, E.-S., P. Liebl, M.-J. Köster, and J. Hübner. “Analyse von Beiträgen im größten deutschen Chatforum für Tumorpatienten zum Thema Palliativmedizin.” Deutsche Medizinische Wochenschrift (1946) 141, no. 12 (June 2016): e106-114. https://doi.org/10.1055/s-0041-108278.
Linge-Dahl, Lisa, Marjolein Vranken, Saskia Juenger, Kate North, Willem Scholten, Sheila Payne, and Lukas Radbruch. "Identification of Challenges to the Availability and Accessibility of Opioids in Twelve European Countries: Conclusions from Two ATOME Six-Country Workshops." Journal of Palliative Medicine 18 (October 20, 2015). https://doi.org/10.1089/jpm.2015.0051.
National Academies of Sciences, Engineering. Health Literacy and Palliative Care: Workshop Summary, 2016. https://doi.org/10.17226/21839.
Noordman, Janneke, Liesbeth van Vliet, Menno Kaunang, Maria van den Muijsenbergh, Gudule Boland, and Sandra van Dulmen. “Towards Appropriate Information Provision for and Decision-Making with Patients with Limited Health Literacy in Hospital-Based Palliative Care in Western Countries: A Scoping Review into Available Communication Strategies and Tools for Healthcare Providers.” BMC Palliative Care 18, no. 1 (April 12, 2019): 37. https://doi.org/10.1186/s12904-019-0421-x.
Noordman, Janneke, Lotte Schulze, Ruud Roodbeen, Gudule Boland, Liesbeth M. van Vliet, Maria van den Muijsenbergh, and Sandra van Dulmen. “Instrumental and Affective Communication with Patients with Limited Health Literacy in the Palliative Phase of Cancer or COPD.” BMC Palliative Care 19, no. 1 (October 7, 2020): 152. https://doi.org/10.1186/s12904-020-00658-2.
O’Reilly, Aoife C., and Margaret Walshe. “Perspectives on the Role of the Speech and Language Therapist in Palliative Care: An International Survey.” Palliative Medicine 29, no. 8 (September 2015): 756–61. https://doi.org/10.1177/0269216315575678.
Pastrana, Tania, S Jünger, Christoph Ostgathe, Frank Elsner, and Lukas Radbruch. "A matter of definition - Key elements identified in a discourse analysis of definitions of palliative care." Palliative Medicine 22 (May 1, 2008): 222–32. https://doi.org/10.1177/0269216308089803.
Peeler, Anna, Oladayo Ayobami Afolabi, Katherine E. Sleeman, Maha El Akoum, Nahla Gafer, Asmus Hammerich, and Richard Harding. "Confronting global inequities in palliative care." BMJ Global Health 10, no. 5 (May 16, 2025): e017624. https://doi.org/10.1136/bmjgh-2024-017624.
Pilote, Laurie, Luc Côté, Selma Chipenda Dansokho, Émilie Brouillard, Anik M. C. Giguère, France Légaré, Roland Grad, and Holly O. Witteman. “Talking about Treatment Benefits, Harms, and What Matters to Patients in Radiation Oncology: An Observational Study.” BMC Medical Informatics and Decision Making 19, no. 1 (11 2019): 84. https://doi.org/10.1186/s12911-019-0800-5.
Radbruch, L., C. Bausewein, S. T. Simon, W. Sipp, W. Wodarg, and S. Jünger. "Europäische Empfehlungen zur Palliativversorgung und Hospizarbeit und ihre Umsetzung in Deutschland." Zeitschrift für Palliativmedizin 12, no. 4 (July 2011): 175–83. https://doi.org/10.1055/s-0030-1266142.
Reifegerste, Doreen, Fabian Czerwinski, Magdalena Rosset, Eva Baumann, Evelyn Kludt, and Susanne Weg-Remers. “Demographic and Cancer-Related Differences between Self-Seeking Patients and Supported Patients: Analysis of Cancer Information-Service Data.” Psycho-Oncology 28, no. 4 (2019): 759–66. https://doi.org/10.1002/pon.5016.
Romotzky, Vanessa, Julia Strupp, Alexander Hayn, Jens Ulrich Rüffer, Judith Grümmer, and Raymond Voltz. “‘All of a Sudden, a Lot Less Still Makes It Worthwhile to Be Alive:’ Palliative Care Patients’ Views on Life.” Palliative & Supportive Care, March 8, 2018, 1–7. https://doi.org/10.1017/S1478951518000081.
Schartmann-Unrath, D., Frank Elsner, V. Jaust, R. Joppich, S. Jünger, and Lukas Radbruch. “Historische Entwicklung und heutiger Stand der Palliativversorgung in der Region Aachen.” Zeitschrift für Palliativmedizin 8 (December 1, 2007). https://doi.org/10.1055/s-2007-986300.
Simões Corrêa Galendi, Julia, Sin Yuin Yeo, Holger Grüll, Grischa Bratke, Dennis Akuamoa-Boateng, Christian Baues, Clemens Bos, et al. “Early Economic Modeling of Magnetic Resonance Image-Guided High Intensity Focused Ultrasound Compared to Radiotherapy for Pain Palliation of Bone Metastases.” Frontiers in Oncology 12 (2022): 987546. https://doi.org/10.3389/fonc.2022.987546.