Patientengeschichten, Erfahrungsberichte – Literatur

Adams, Mary, Glenn Robert, and Jill Maben. “Exploring the Legacies of Filmed Patient Narratives: The Interpretation and Appropriation of Patient Films by Health Care Staff.” Qualitative Health Research 25, no. 9 (September 2015): 1241–50. https://doi.org/10.1177/1049732314566329.

Balatsoukas, Panos, Catriona M. Kennedy, Iain Buchan, John Powell, and John Ainsworth. “The Role of Social Network Technologies in Online Health Promotion: A Narrative Review of Theoretical and Empirical Factors Influencing Intervention Effectiveness.” Journal of Medical Internet Research 17, no. 6 (June 11, 2015): e141. https://doi.org/10.2196/jmir.3662.

Bekker, Hilary L., Anna E. Winterbottom, Phyllis Butow, Amanda J. Dillard, Deb Feldman-Stewart, Floyd J. Fowler, Maria L. Jibaja-Weiss, Victoria A. Shaffer, and Robert J. Volk. “Do Personal Stories Make Patient Decision Aids More Effective? A Critical Review of Theory and Evidence.” BMC Medical Informatics and Decision Making 13 Suppl 2 (2013): S9. https://doi.org/10.1186/1472-6947-13-S2-S9.

Betsch, Cornelia, Frank Renkewitz, and Niels Haase. “Effect of Narrative Reports about Vaccine Adverse Events and Bias-Awareness Disclaimers on Vaccine Decisions: A Simulation of an Online Patient Social Network.” Medical Decision Making: An International Journal of the Society for Medical Decision Making 33, no. 1 (2013): 14–25. https://doi.org/10.1177/0272989X12452342.

Betsch, Cornelia, Corina Ulshöfer, Frank Renkewitz, and Tilmann Betsch. “The Influence of Narrative v. Statistical Information on Perceiving Vaccination Risks.” Medical Decision Making: An International Journal of the Society for Medical Decision Making 31, no. 5 (October 2011): 742–53. https://doi.org/10.1177/0272989X11400419.

Biglino, Giovanni, Sofie Layton, Lindsay-Kay Leaver, and Jo Wray. “Fortune Favours the Brave: Composite First-Person Narrative of Adolescents with Congenital Heart Disease.” BMJ Paediatrics Open 1, no. 1 (2017): e000186. https://doi.org/10.1136/bmjpo-2017-000186.

Biller-Andorno, Nikola, Martina Breuning, Anne Brüning, Anna Geldermann, Andrea Glässel, Saskia Jünger, Birgit Hiller, et al. "Gute Praxis Erfahrungsberichte. Qualitätsanforderungen an Erfahrungsberichte im Gesundheitswesen. Positionspapier der AG Erfahrungsberichte im Gesundheitswesen im DNGK e.V." DNGK-Positionspapiere. Köln: Deutsches Netzwerk Gesundheitskompetenz DNGK, July 11, 2023.

Blödt, Susanne, Claudia M. Witt, and Christine Holmberg. “Women’s Reasons for Participation in a Clinical Trial for Menstrual Pain: A Qualitative Study.” BMJ Open 6, no. 12 (13 2016): e012592. https://doi.org/10.1136/bmjopen-2016-012592.

Blödt, Susanne, Jacqueline Müller-Nordhorn, Georg Seifert, and Christine Holmberg. “Trust, Medical Expertise and Humaneness: A Qualitative Study on People with Cancer’ Satisfaction with Medical Care.” Health Expectations: An International Journal of Public Participation in Health Care and Health Policy 24, no. 2 (April 2021): 317–26. https://doi.org/10.1111/hex.13171.

Blödt, Susanne, Maleen Kaiser, Yvonne Adam, Sandra Adami, Martin Schultze, Jacqueline Müller-Nordhorn, and Christine Holmberg. “Understanding the Role of Health Information in Patients’ Experiences: Secondary Analysis of Qualitative Narrative Interviews with People Diagnosed with Cancer in Germany.” BMJ Open 8, no. 3 (12 2018): e019576. https://doi.org/10.1136/bmjopen-2017-019576.

Boeijinga, Anniek, Hans Hoeken, and José Sanders. “Storybridging: Four Steps for Constructing Effective Health Narratives.” Health Education Journal 76, no. 8 (December 2017): 923–35. https://doi.org/10.1177/0017896917725360.

Bol, Nadine, Julia C. M. van Weert, Hanneke C. J. M. de Haes, Eugene F. Loos, and Ellen M. A. Smets. “The Effect of Modality and Narration Style on Recall of Online Health Information: Results from a Web-Based Experiment.” Journal of Medical Internet Research 17, no. 4 (April 24, 2015): e104. https://doi.org/10.2196/jmir.4164.

Borghi, Lidia, Sara Galimberti, Claudia Baratè, Massimiliano Bonifacio, Enrico Capochiani, Antonio Cuneo, Franca Falzetti, et al. "Chronic Myeloid Leukemia Patient's Voice About the Experience of Treatment-Free Remission Failure: Results From the Italian Sub-Study of ENESTPath Exploring the Emotional Experience of Patients During Different Phases of a Clinical Trial." Frontiers in Psychology 10 (February 20, 2019). https://doi.org/10.3389/fpsyg.2019.00329.

Boyd, Kerry, Heidi Diepstra, Kareem Elbard, Yani Hamdani, and Yona Lunsky. "Consumer inclusion: Experience of patients with intellectual and developmental disabilities informs primary care." Canadian Family Physician Medecin De Famille Canadien 64, no. Suppl 2 (2018): S8–11.

Brand, Anna, Linde Gao, Alexandra Hamann, Claudia Crayen, Hannah Brand, Susan M. Squier, Karl Stangl, Friederike Kendel, and Verena Stangl. “Medical Graphic Narratives to Improve Patient Comprehension and Periprocedural Anxiety Before Coronary Angiography and Percutaneous Coronary Intervention: A Randomized Trial.” Annals of Internal Medicine 170, no. 8 (16 2019): 579–81. https://doi.org/10.7326/M18-2976.

Breuning, Martina, Lisa Schäfer-Fauth, Gabriele Lucius-Hoene, and Christine Holmberg. “Connecting One’s Own Illness Story to the Illness Experiences of Others on a Website-An Evaluation Study Using the Think Aloud Method.” Patient Education and Counseling 103, no. 1 (January 2020): 199–207. https://doi.org/10.1016/j.pec.2019.08.014.

Breuning, Martina, Gabriele Lucius-Hoene, Christina Burbaum, Wolfgang Himmel, and Jürgen Bengel. "Subjektive Krankheitserfahrungen und Patientenorientierung." Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz 60, no. 4 (April 1, 2017): 453–61.

Bunge, Martina, Ingrid Mühlhauser, and Anke Steckelberg. “What Constitutes Evidence-Based Patient Information? Overview of Discussed Criteria.” Patient Education and Counseling 78, no. 3 (March 2010): 316–28. https://doi.org/10.1016/j.pec.2009.10.029.

Charon, R. “The Patient-Physician Relationship. Narrative Medicine: A Model for Empathy, Reflection, Profession, and Trust.” JAMA 286, no. 15 (October 17, 2001): 1897–1902. https://doi.org/10.1001/jama.286.15.1897.

Charon, Rita. “At the Membranes of Care:  Stories in Narrative Medicine.” Academic Medicine: Journal of the Association of American Medical Colleges 87, no. 3 (March 2012): 342–47. https://doi.org/10.1097/ACM.0b013e3182446fbb.

Chinn, Deborah. "Review of Interventions to Enhance the Health Communication of People with Intellectual Disabilities: A Communicative Health Literacy Perspective." Journal of Applied Research in Intellectual Disabilities 30, no. 2 (2017): 345-359 (15 Seiten).

Clarke, Christopher E., Jeff Niederdeppe, and Helen C. Lundell. “Narratives and Images Used by Public Communication Campaigns Addressing Social Determinants of Health and Health Disparities.” International Journal of Environmental Research and Public Health 9, no. 12 (December 2012): 4254–77. https://doi.org/10.3390/ijerph9124254.

Cornejo Müller, Alejandro, Benjamin Wachtler, and Thomas Lampert. “Digital Divide – Soziale Unterschiede in der Nutzung digitaler Gesundheitsangebote.” Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz, January 8, 2020. https://doi.org/10.1007/s00103-019-03081-y.

Coulter, Angela, Louise Locock, Sue Ziebland, and Joe Calabrese. “Collecting Data on Patient Experience Is Not Enough: They Must Be Used to Improve Care.” BMJ (Clinical Research Ed.) 348 (March 26, 2014): g2225. https://doi.org/10.1136/bmj.g2225.

Daraz, Lubna, Allison S. Morrow, Oscar J. Ponce, Bradley Beuschel, Magdoleen H. Farah, Abdulrahman Katabi, Mouaz Alsawas, et al. “Can Patients Trust Online Health Information? A Meta-Narrative Systematic Review Addressing the Quality of Health Information on the Internet.” Journal of General Internal Medicine 34, no. 9 (September 2019): 1884–91. https://doi.org/10.1007/s11606-019-05109-0.

De Martino, Ivan, Rocco D’Apolito, Alexander S. McLawhorn, Keith A. Fehring, Peter K. Sculco, and Giorgio Gasparini. “Social Media for Patients: Benefits and Drawbacks.” Current Reviews in Musculoskeletal Medicine 10, no. 1 (March 2017): 141–45. https://doi.org/10.1007/s12178-017-9394-7.

Quattro, Leah de. "Co-producing childbirth knowledge: a qualitative study of birth stories in antenatal sessions." BMC Pregnancy and Childbirth 19 (November 26, 2019). https://doi.org/10.1186/s12884-019-2605-z.

Devine, Alexandra, Cathy Vaughan, Anne Kavanagh, Helen Dickinson, Sean Byars, Stefanie Dimov, Bill Gye, and Lisa Brophy. “‘I’m Proud of How Far I’ve Come. I’m Just Ready to Work’: Mental Health Recovery Narratives within the Context of Australia’s Disability Employment Services.” BMC Public Health 20, no. 1 (March 12, 2020): 325. https://doi.org/10.1186/s12889-020-8452-z.

DNGK. "DNGK: Gute Praxis Erfahrungsberichte - Qualitätsmerkmale und Hilfestellungen für Patientengeschichten und Erfahrungsberichte. Deutsches Netzwerk Gesundheitskompetenz," November 27, 2022.

Donner-Banzhoff, Norbert. "Mechanistische Narrative als Mittel der Dissemination: das Beispiel koronarer Technologien." Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz 63, no. 5 (May 1, 2020): 521–26.

Donner-Banzhoff, Norbert, Beate Müller, Martin Beyer, Jörg Haasenritter, and Carola Seifart. "Thresholds, rules and defensive strategies: how physicians learn from their prior diagnosis-related experiences." Diagnosis 7, no. 2 (June 1, 2020): 115–21. https://doi.org/10.1515/dx-2019-0025.

Drewniak, Daniel, Andrea Glässel, Martina Hodel, and Nikola Biller-Andorno. “Risks and Benefits of Web-Based Patient Narratives: Systematic Review.” Journal of Medical Internet Research 22, no. 3 (March 26, 2020): e15772. https://doi.org/10.2196/15772.

Echsel, Angelika, Lee Price, Staffan Josephsson, and Christina Schulze. "'Together on the Way': Occupational Therapy in Mainstream Education—A Narrative Study of Emerging Practice in Switzerland." Occupational Therapy International 2019 (April 30, 2019): e7464607. https://doi.org/10.1155/2019/7464607.

Eggeling, Marie, Martina Bientzle, Simone Korger, and Joachim Kimmerle. “The Impact of Patient Narratives on Medical Students’ Perceptions of Shared Decision Making: A Randomized Controlled Trial.” Medical Education Online 26, no. 1 (December 2021): 1886642. https://doi.org/10.1080/10872981.2021.1886642.

Engler, Jennifer, Sandra Adami, Yvonne Adam, Bettina Keller, Tim Repke, Hella Fügemann, Gabriele Lucius-Hoene, Jacqueline Müller-Nordhorn, and Christine Holmberg. “Using Others’ Experiences. Cancer Patients’ Expectations and Navigation of a Website Providing Narratives on Prostate, Breast and Colorectal Cancer.” Patient Education and Counseling 99, no. 8 (2016): 1325–32. https://doi.org/10.1016/j.pec.2016.03.015.

Entwistle, Vikki Ann, Emma F. France, Sally Wyke, Ruth Jepson, Kate Hunt, Sue Ziebland, and Andrew Thompson. “How Information about Other People’s Personal Experiences Can Help with Healthcare Decision-Making: A Qualitative Study.” Patient Education and Counseling 85, no. 3 (December 2011): e291-298. https://doi.org/10.1016/j.pec.2011.05.014.

Europäischer Auswärtiger Dienst (EAD). "EAD Sonderbericht. Update: Kurzbewertung der Narrative und disinformation der COVID-19-Pandemie (Aktualisierung 2.-22. April 2020)," April 29, 2020.

Evans, D. Gareth, Julian Barwell, Diana M. Eccles, Amanda Collins, Louise Izatt, Chris Jacobs, Alan Donaldson, et al. “The Angelina Jolie Effect: How High Celebrity Profile Can Have a Major Impact on Provision of Cancer Related Services.” Breast Cancer Research: BCR 16, no. 5 (September 19, 2014): 442. https://doi.org/10.1186/s13058-014-0442-6.

Fadlallah, Racha, Fadi El-Jardali, Mohamed Nomier, Nour Hemadi, Khurram Arif, Etienne V. Langlois, and Elie A. Akl. “Using Narratives to Impact Health Policy-Making: A Systematic Review.” Health Research Policy and Systems 17, no. 1 (March 5, 2019): 26. https://doi.org/10.1186/s12961-019-0423-4.

Farmanova, Elina, Luc Bonneville, and Louise Bouchard. “Organizational Health Literacy: Review of Theories, Frameworks, Guides, and Implementation Issues.” Inquiry: A Journal of Medical Care Organization, Provision and Financing 55 (December 2018): 46958018757848. https://doi.org/10.1177/0046958018757848.

Farmasi, Lilla, Attila Kiss, and István Szendi. "The Narrative Facilitation of Recovery. The Application of Narrative Theories in a Group Therapy for Patients with Schizophrenia." DIEGESIS 7, no. 1 (June 6, 2018).

Field, Kate, Suman Prinjha, and Kathy Rowan. "'One patient amongst many': a qualitative analysis of intensive care unit patients' experiences of transferring to the general ward." Critical Care 12, no. 1 (2008): R21. https://doi.org/10.1186/cc6795.

Finucane, Elaine. "Personal experiences or anecdotes (stories) are an unreliable basis for assessing the effects of most treatments." Evidently Cochrane, September 25, 2020.

Fioretti, Chiara, Ketti Mazzocco, Silvia Riva, Serena Oliveri, Marianna Masiero, and Gabriella Pravettoni. “Research Studies on Patients’ Illness Experience Using the Narrative Medicine Approach: A Systematic Review.” BMJ Open 6, no. 7 (14 2016): e011220. https://doi.org/10.1136/bmjopen-2016-011220.

Gidman, Janice. “Listening to Stories: Valuing Knowledge from Patient Experience.” Nurse Education in Practice 13, no. 3 (May 2013): 192–96. https://doi.org/10.1016/j.nepr.2012.09.006.

Giesler, Jürgen M., Bettina Keller, Tim Repke, Rainer Leonhart, Joachim Weis, Rebecca Muckelbauer, Nina Rieckmann, Jacqueline Müller-Nordhorn, Gabriele Lucius-Hoene, and Christine Holmberg. “Effect of a Website That Presents Patients’ Experiences on Self-Efficacy and Patient Competence of Colorectal Cancer Patients: Web-Based Randomized Controlled Trial.” Journal of Medical Internet Research 19, no. 10 (13 2017): e334. https://doi.org/10.2196/jmir.7639.

Glässel, Andrea, Peter Zumstein, Theresa Scherer, Emanuel Feusi, and Nikola Biller-Andorno. “Case Vignettes for Simulated Patients Based on Real Patient Experiences in the Context of OSCE Examinations: Workshop Experiences from Interprofessional Education.” GMS Journal for Medical Education 38, no. 5 (June 15, 2021): Doc91. https://doi.org/10.3205/zma001487.

Glenton, Claire, Elin S. Nilsen, and Benedicte Carlsen. “Lay Perceptions of Evidence-Based Information--a Qualitative Evaluation of a Website for Back Pain Sufferers.” BMC Health Services Research 6 (March 15, 2006): 34. https://doi.org/10.1186/1472-6963-6-34.

Greenhalgh, T. Cultural contexts of health: the use of narrative research in the health sector. World Health Organization. Regional Office for Europe, 2016.

Greenhalgh, Trisha, and Brian Hurwitz. "Why study narrative?" BMJ : British Medical Journal 318, no. 7175 (January 2, 1999): 48–50.